ID

14686

Description

The Stroke Symptoms Form from the Jackson Heart Study is an interviewer-administered questionnaire that captures the history of stroke(s) and associated symptoms such as slurred speech, double vision, loss of vision and paralysis. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

Link

https://cde.nlm.nih.gov

Keywords

  1. 4/26/16 4/26/16 -
Uploaded on

April 26, 2016

DOI

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License

Creative Commons BY-NC 3.0

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History of Stroke - Ischemic Infarction and Hemorrhage Protocol PhenX Toolkit

History of Stroke - Ischemic Infarction and Hemorrhage Protocol PhenX Toolkit

PhenX - history of stroke protocol
Description

PhenX - history of stroke protocol

Alias
UMLS CUI-1
C3169825
Have you ever been told by a physician that you had a stroke?
Description

stroke

Data type

boolean

Alias
UMLS CUI [1]
C0038454
When did the first stroke occur?
Description

time first stroke

Data type

date

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0011008
Have you ever had any sudden loss or changes in speech lasting 24 hours or longer?
Description

sudden loss of speech

Data type

integer

Alias
UMLS CUI [1]
C0542223
Did the episode come on suddenly?
Description

episode occur suddenly

Data type

boolean

Alias
UMLS CUI [1,1]
C0542223
UMLS CUI [1,2]
C1272517
Do any of the following describe your change in speech [PhenX]
Description

speech change

Data type

boolean

Alias
UMLS CUI [1]
C0037822
Most Representative Symptom
Description

describe speech change

Data type

text

Alias
UMLS CUI [1]
C3176236
Things occurring with episode of change in speech [PhenX]
Description

things with change in speech

Data type

integer

Alias
UMLS CUI [1]
C3176237
While you were having your episode of change in speech, did any of these things occur [PhenX]
Description

things with change speech occur

Data type

boolean

Alias
UMLS CUI [1]
C3176238
Did you have difficulty on
Description

side affected

Data type

integer

Alias
UMLS CUI [1]
C3166323
Did you have
Description

visual disturbance description

Data type

text

Alias
UMLS CUI [1]
C0547030
Have you ever had any sudden loss of vision, or blurring, lasting 24 hours or longer?
Description

sudden loss of vision or blurring

Data type

integer

Alias
UMLS CUI [1]
C0155002
UMLS CUI [2]
C1847840
During the episode, which of the following parts of your vision were affected?
Description

parts of vision affected

Data type

integer

Alias
UMLS CUI [1]
C3176308
Did you have
Description

trouble seeing

Data type

text

Alias
UMLS CUI [1]
C3174656
Things occurring with loss of vision [PhenX]
Description

things with vision loss blurring

Data type

integer

Alias
UMLS CUI [1]
C3176243
While you were having your loss of vision, did any of these things occur [PhenX]
Description

things vision loss occur

Data type

boolean

Alias
UMLS CUI [1]
C3174638
Have you ever had a sudden spell of double vision, which lasted 24 hours or longer?
Description

sudden spell of double vision

Data type

integer

Alias
UMLS CUI [1,1]
C0012569
UMLS CUI [1,2]
C1276802
If you closed one eye, did the double vision go away?
Description

double vision one eye

Data type

integer

Alias
UMLS CUI [1]
C3174641
Things occurring with double vision [PhenX]
Description

things with double vision

Data type

integer

Alias
UMLS CUI [1]
C3174643
While you were having your double vision, did any of these things occur [PhenX]
Description

things with double vision occur

Data type

boolean

Alias
UMLS CUI [1]
C3174644
Have you ever had sudden numbness, tingling, or loss of feeling on one side of your body, including your face, arm, or leg which lasted 24 hours or longer?
Description

sudden numbness tingling

Data type

integer

Alias
UMLS CUI [1]
C3174645
Did the feeling of numbness or tingling occur only when you kept your arms or legs in a certain position?
Description

numbness tingling certain position

Data type

integer

Alias
UMLS CUI [1]
C3174647
Body part [PhenX]
Description

body part

Data type

integer

Alias
UMLS CUI [1]
C0229962
Was this part of your body affected [PhenX]
Description

body part affected

Data type

integer

Alias
UMLS CUI [1]
C3174633
During this episode, did the abnormal sensation start in one part of your body and spread to another, or did it stay in the same place?
Description

sensation spread

Data type

text

Alias
UMLS CUI [1]
C3174634
Things occurring with tingling and loss of sensation [PhenX]
Description

things with tingling

Data type

integer

Alias
UMLS CUI [1]
C3174636
While you were having numbness, tingling and loss of sensation, did any of these things occur [PhenX]
Description

things with tingling occur

Data type

boolean

Alias
UMLS CUI [1]
C3174637
Have you ever had any sudden episode of paralysis or weakness on one side of your body, including your face, arm, or leg which lasted at least 24 hours?
Description

paralysis or weakness

Data type

integer

Alias
UMLS CUI [1]
C3176029
Things occurring with paralysis or weakness [PhenX]
Description

things with paralysis weakness

Data type

integer

Alias
UMLS CUI [1]
C3176031
While you were having paralysis or weakness did any of these things occur [PhenX]
Description

things paralysis weakness occur

Data type

boolean

Alias
UMLS CUI [1]
C3176032
Have you had any sudden spells of dizziness, loss of balance, or sensation of spinning which lasted 24 hours or longer?
Description

dizziness or loss of balance

Data type

integer

Alias
UMLS CUI [1]
C0012833
UMLS CUI [2]
C0241981
UMLS CUI [3]
C0042571
Did the dizziness, loss of balance or spinning sensation occur only when changing the position of your head or body?
Description

dizziness change position only

Data type

integer

Alias
UMLS CUI [1]
C3174652
Things occurring with dizziness, loss of balance or spinning sensation [PhenX]
Description

things with dizziness loss balance

Data type

integer

Alias
UMLS CUI [1]
C3174654
While you were having sudden spells of dizziness, loss of balance or spinning sensation, did any of these things occur [PhenX]
Description

things dizziness balance occur

Data type

boolean

Alias
UMLS CUI [1]
C3174655

Similar models

History of Stroke - Ischemic Infarction and Hemorrhage Protocol PhenX Toolkit

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
PhenX - history of stroke protocol
C3169825 (UMLS CUI-1)
stroke
Item
Have you ever been told by a physician that you had a stroke?
boolean
C0038454 (UMLS CUI [1])
time first stroke
Item
When did the first stroke occur?
date
C0038454 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Have you ever had any sudden loss or changes in speech lasting 24 hours or longer?
integer
C0542223 (UMLS CUI [1])
Code List
Have you ever had any sudden loss or changes in speech lasting 24 hours or longer?
CL Item
No (0)
C1298908 (UMLS CUI-1)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
Don't know (9)
C3843613 (UMLS CUI-1)
episode occur suddenly
Item
Did the episode come on suddenly?
boolean
C0542223 (UMLS CUI [1,1])
C1272517 (UMLS CUI [1,2])
speech change
Item
Do any of the following describe your change in speech [PhenX]
boolean
C0037822 (UMLS CUI [1])
Item
Most Representative Symptom
text
C3176236 (UMLS CUI [1])
Code List
Most Representative Symptom
CL Item
Slurred speech  (Slurred speech )
CL Item
Wrong words came out  (Wrong words came out )
CL Item
Words would not come out  (Words would not come out )
CL Item
Could not think of the right words (Could not think of the right words)
Item
Things occurring with episode of change in speech [PhenX]
integer
C3176237 (UMLS CUI [1])
Code List
Things occurring with episode of change in speech [PhenX]
CL Item
Numbness or tingling  (1)
C3842982 (UMLS CUI-1)
CL Item
Paralysis or weakness (2)
C3842981 (UMLS CUI-1)
CL Item
Lightheadedness, dizziness, or loss of balance  (3)
C3842980 (UMLS CUI-1)
CL Item
Blackouts or fainting  (4)
C3842979 (UMLS CUI-1)
CL Item
Seizures or convulsions  (5)
C3842978 (UMLS CUI-1)
CL Item
Headache  (6)
C0018681 (UMLS CUI-1)
CL Item
Visual disturbances (7)
C0547030 (UMLS CUI-1)
things with change speech occur
Item
While you were having your episode of change in speech, did any of these things occur [PhenX]
boolean
C3176238 (UMLS CUI [1])
Item
Did you have difficulty on
integer
C3166323 (UMLS CUI [1])
Code List
Did you have difficulty on
CL Item
Right side only  (1)
C3842977 (UMLS CUI-1)
CL Item
Left side only  (2)
C3842976 (UMLS CUI-1)
CL Item
Both sides (3)
C0238767 (UMLS CUI-1)
Item
Did you have
text
C0547030 (UMLS CUI [1])
Code List
Did you have
CL Item
Double vision  (Double vision )
CL Item
Vision loss in right eye only  (Vision loss in right eye only )
CL Item
Vision loss in left eye only  (Vision loss in left eye only )
CL Item
Total loss of vision in both eyes  (Total loss of vision in both eyes )
CL Item
Trouble in both eyes seeing to the right  (Trouble in both eyes seeing to the right )
CL Item
Trouble in both eyes seeing to the left  (Trouble in both eyes seeing to the left )
CL Item
Trouble in both eyes seeing to both sides or straight ahead (Trouble in both eyes seeing to both sides or straight ahead)
Item
Have you ever had any sudden loss of vision, or blurring, lasting 24 hours or longer?
integer
C0155002 (UMLS CUI [1])
C1847840 (UMLS CUI [2])
Code List
Have you ever had any sudden loss of vision, or blurring, lasting 24 hours or longer?
CL Item
No (0)
C1298908 (UMLS CUI-1)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
Don't know (9)
C3843613 (UMLS CUI-1)
Item
During the episode, which of the following parts of your vision were affected?
integer
C3176308 (UMLS CUI [1])
Code List
During the episode, which of the following parts of your vision were affected?
CL Item
Only right eye  (1)
C3842959 (UMLS CUI-1)
CL Item
Only left eye  (2)
C3842958 (UMLS CUI-1)
CL Item
Both eyes (3)
C0229118 (UMLS CUI-1)
Item
Did you have
text
C3174656 (UMLS CUI [1])
Code List
Did you have
CL Item
Trouble seeing to the right, but not to left  (Trouble seeing to the right, but not to left )
CL Item
Trouble seeing to the left, but not to right  (Trouble seeing to the left, but not to right )
CL Item
Trouble seeing both sides or straight ahead (Trouble seeing both sides or straight ahead)
Item
Things occurring with loss of vision [PhenX]
integer
C3176243 (UMLS CUI [1])
Code List
Things occurring with loss of vision [PhenX]
CL Item
Speech disturbance  (1)
C0233715 (UMLS CUI-1)
CL Item
Numbness or tingling  (2)
C3842982 (UMLS CUI-1)
CL Item
Paralysis or weakness (3)
C3842981 (UMLS CUI-1)
CL Item
Lightheadedness, dizziness, or loss of balance  (4)
C3842980 (UMLS CUI-1)
CL Item
Blackouts or fainting  (5)
C3842979 (UMLS CUI-1)
CL Item
Seizures or convulsions  (6)
C3842978 (UMLS CUI-1)
CL Item
Headache  (7)
C0018681 (UMLS CUI-1)
CL Item
Flashing lights (8)
C0085635 (UMLS CUI-1)
things vision loss occur
Item
While you were having your loss of vision, did any of these things occur [PhenX]
boolean
C3174638 (UMLS CUI [1])
Item
Have you ever had a sudden spell of double vision, which lasted 24 hours or longer?
integer
C0012569 (UMLS CUI [1,1])
C1276802 (UMLS CUI [1,2])
Code List
Have you ever had a sudden spell of double vision, which lasted 24 hours or longer?
CL Item
No (0)
C1298908 (UMLS CUI-1)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
Don't know (9)
C3843613 (UMLS CUI-1)
Item
If you closed one eye, did the double vision go away?
integer
C3174641 (UMLS CUI [1])
Code List
If you closed one eye, did the double vision go away?
CL Item
No (0)
C1298908 (UMLS CUI-1)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
Don't know (9)
C3843613 (UMLS CUI-1)
Item
Things occurring with double vision [PhenX]
integer
C3174643 (UMLS CUI [1])
Code List
Things occurring with double vision [PhenX]
CL Item
Speech disturbance (1)
C0233715 (UMLS CUI-1)
CL Item
Numbness or tingling (2)
C3842982 (UMLS CUI-1)
CL Item
Paralysis or weakness (3)
C3842981 (UMLS CUI-1)
CL Item
Lightheadedness, dizziness, or loss of balance (4)
C3842980 (UMLS CUI-1)
CL Item
Blackouts or fainting  (5)
C3842979 (UMLS CUI-1)
CL Item
Seizures or convulsions (6)
C3842978 (UMLS CUI-1)
CL Item
Headache (7)
C0018681 (UMLS CUI-1)
things with double vision occur
Item
While you were having your double vision, did any of these things occur [PhenX]
boolean
C3174644 (UMLS CUI [1])
Item
Have you ever had sudden numbness, tingling, or loss of feeling on one side of your body, including your face, arm, or leg which lasted 24 hours or longer?
integer
C3174645 (UMLS CUI [1])
Code List
Have you ever had sudden numbness, tingling, or loss of feeling on one side of your body, including your face, arm, or leg which lasted 24 hours or longer?
CL Item
No (0)
C1298908 (UMLS CUI-1)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
Don't know (9)
C3843613 (UMLS CUI-1)
Item
Did the feeling of numbness or tingling occur only when you kept your arms or legs in a certain position?
integer
C3174647 (UMLS CUI [1])
Code List
Did the feeling of numbness or tingling occur only when you kept your arms or legs in a certain position?
CL Item
No (0)
C1298908 (UMLS CUI-1)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
Don't know (9)
C3843613 (UMLS CUI-1)
Item
Body part [PhenX]
integer
C0229962 (UMLS CUI [1])
Code List
Body part [PhenX]
CL Item
Left arm or hand  (1)
C3842971 (UMLS CUI-1)
CL Item
Left leg or foot (2)
C3842970 (UMLS CUI-1)
CL Item
Left side of face (3)
C0230026 (UMLS CUI-1)
CL Item
Right arm or hand (4)
C3842969 (UMLS CUI-1)
CL Item
Right leg or foot  (5)
C3842968 (UMLS CUI-1)
CL Item
Right side of face  (6)
C0230025 (UMLS CUI-1)
CL Item
Other (7)
C0205394 (UMLS CUI-1)
Item
Was this part of your body affected [PhenX]
integer
C3174633 (UMLS CUI [1])
Code List
Was this part of your body affected [PhenX]
CL Item
No (0)
C1298908 (UMLS CUI-1)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
Don't know (9)
C3843613 (UMLS CUI-1)
Item
During this episode, did the abnormal sensation start in one part of your body and spread to another, or did it stay in the same place?
text
C3174634 (UMLS CUI [1])
Code List
During this episode, did the abnormal sensation start in one part of your body and spread to another, or did it stay in the same place?
CL Item
Started in one part and spread to another  (Started in one part and spread to another )
CL Item
Stayed in one part  (Stayed in one part )
CL Item
Don't know (Don't know)
Item
Things occurring with tingling and loss of sensation [PhenX]
integer
C3174636 (UMLS CUI [1])
Code List
Things occurring with tingling and loss of sensation [PhenX]
CL Item
Speech disturbance  (1)
C0233715 (UMLS CUI-1)
CL Item
Paralysis or weakness  (2)
C3842981 (UMLS CUI-1)
CL Item
Lightheadedness, dizziness, or loss of balance  (3)
C3842980 (UMLS CUI-1)
CL Item
Blackouts or fainting (4)
C3842979 (UMLS CUI-1)
CL Item
Seizures or convulsions (5)
C3842978 (UMLS CUI-1)
CL Item
Headache  (6)
C0018681 (UMLS CUI-1)
CL Item
Pain  (7)
C0030193 (UMLS CUI-1)
CL Item
Visual disturbances (8)
C0547030 (UMLS CUI-1)
things with tingling occur
Item
While you were having numbness, tingling and loss of sensation, did any of these things occur [PhenX]
boolean
C3174637 (UMLS CUI [1])
Item
Have you ever had any sudden episode of paralysis or weakness on one side of your body, including your face, arm, or leg which lasted at least 24 hours?
integer
C3176029 (UMLS CUI [1])
Code List
Have you ever had any sudden episode of paralysis or weakness on one side of your body, including your face, arm, or leg which lasted at least 24 hours?
CL Item
No (0)
C1298908 (UMLS CUI-1)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
Don't know (9)
C3843613 (UMLS CUI-1)
Item
Things occurring with paralysis or weakness [PhenX]
integer
C3176031 (UMLS CUI [1])
Code List
Things occurring with paralysis or weakness [PhenX]
CL Item
Speech disturbance (1)
C0233715 (UMLS CUI-1)
CL Item
Numbness or tingling (2)
C3842982 (UMLS CUI-1)
CL Item
Lightheadedness, dizziness, or loss of balance (3)
C3842980 (UMLS CUI-1)
CL Item
Blackouts or fainting (4)
C3842979 (UMLS CUI-1)
CL Item
Seizures or convulsions (5)
C3842978 (UMLS CUI-1)
CL Item
Headache  (6)
C0018681 (UMLS CUI-1)
CL Item
Pain  (7)
C0030193 (UMLS CUI-1)
CL Item
Visual disturbances (8)
C0547030 (UMLS CUI-1)
things paralysis weakness occur
Item
While you were having paralysis or weakness did any of these things occur [PhenX]
boolean
C3176032 (UMLS CUI [1])
Item
Have you had any sudden spells of dizziness, loss of balance, or sensation of spinning which lasted 24 hours or longer?
integer
C0012833 (UMLS CUI [1])
C0241981 (UMLS CUI [2])
C0042571 (UMLS CUI [3])
Code List
Have you had any sudden spells of dizziness, loss of balance, or sensation of spinning which lasted 24 hours or longer?
CL Item
No (0)
C1298908 (UMLS CUI-1)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
Don't know (9)
C3843613 (UMLS CUI-1)
Item
Did the dizziness, loss of balance or spinning sensation occur only when changing the position of your head or body?
integer
C3174652 (UMLS CUI [1])
Code List
Did the dizziness, loss of balance or spinning sensation occur only when changing the position of your head or body?
CL Item
No (0)
C1298908 (UMLS CUI-1)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
Don't know (9)
C3843613 (UMLS CUI-1)
Item
Things occurring with dizziness, loss of balance or spinning sensation [PhenX]
integer
C3174654 (UMLS CUI [1])
Code List
Things occurring with dizziness, loss of balance or spinning sensation [PhenX]
CL Item
Speech disturbance (1)
C0233715 (UMLS CUI-1)
CL Item
Paralysis or weakness  (2)
C3842981 (UMLS CUI-1)
CL Item
Numbness or tingling  (3)
C3842982 (UMLS CUI-1)
CL Item
Blackouts or fainting  (4)
C3842979 (UMLS CUI-1)
CL Item
Seizures or convulsions (5)
C3842978 (UMLS CUI-1)
CL Item
Headache  (6)
C0018681 (UMLS CUI-1)
CL Item
Visual disturbances (7)
C0547030 (UMLS CUI-1)
things dizziness balance occur
Item
While you were having sudden spells of dizziness, loss of balance or spinning sensation, did any of these things occur [PhenX]
boolean
C3174655 (UMLS CUI [1])

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