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Patient registration

9 forms  
Patient registration
Description

Patient registration

Alias
UMLS CUI-1
C0421512
EUMDS ID
Description

Will be assigned by the database

Data type

text

Alias
UMLS CUI-1
C2348585
Local ID
Description

Your centre’s unique identifier

Data type

text

Alias
UMLS CUI-1
C1549734
Date of Inclusion
Description

Date of Inclusion

Data type

date

Alias
UMLS CUI-1
C0011008
UMLS CUI-2
C1512693
Sex
Description

Sex

Data type

text

Alias
UMLS CUI-1
C0079399
Date of diagnosis
Description

Date of diagnosis

Data type

date

Measurement units
  • DD/MM/YY
DD/MM/YY
D.O.B.
Description

D.O.B.

Data type

date

Measurement units
  • DD/MM/YY
Alias
UMLS CUI-1
C0421451
DD/MM/YY
Ethnicity
Description

Ethnicity

Data type

integer

Alias
UMLS CUI-1
C0015031
MDS Diagnosis
Description

MDS Diagnosis

Data type

integer

Alias
UMLS CUI-1
C0026986
UMLS CUI-2
C3699655
Bone Marrow Blasts
Description

Bone Marrow Blasts

Data type

integer

Alias
UMLS CUI-1
C1982687
Cytopenia
Description

Haemoglobin < 10g/dl Neutrophils < 1.5x10E9/l Platelets < 100x10E9/l

Data type

text

Alias
UMLS CUI-1
C0010828
Cytogenetics
Description

Good [-Y, del(5q), del(20q)] Intermediate [other abnormalities] Poor [≥3 or chromosome 7 abnormalities] Not Available

Data type

integer

Alias
UMLS CUI-1
C0010802
IPSS Score
Description

Calculated by database

Data type

text

Alias
UMLS CUI-1
C2827405
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Patient registration

9 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Patient registration
C0421512 (UMLS CUI-1)
Patient ID EUMDS
Item
EUMDS ID
text
C2348585 (UMLS CUI-1)
Local patient ID
Item
Local ID
text
C1549734 (UMLS CUI-1)
Inclusion date
Item
Date of Inclusion
date
C0011008 (UMLS CUI-1)
C1512693 (UMLS CUI-2)
Item
Sex
text
C0079399 (UMLS CUI-1)
Gender
Code List
Sex
CL Item
M (M)
CL Item
F (F)
Diagnosis date
Item
Date of diagnosis
date
Date of Birth
Item
D.O.B.
date
C0421451 (UMLS CUI-1)
Item
Ethnicity
integer
C0015031 (UMLS CUI-1)
Ethnicity
Code List
Ethnicity
CL Item
Caucasian (1)
CL Item
South Asian (2)
CL Item
North African (3)
CL Item
Sub-Saharan African (4)
CL Item
Afro-Carribean (5)
CL Item
Turk (6)
CL Item
Kurd (7)
CL Item
Latin American (8)
CL Item
Chinese (9)
CL Item
Filipino (10)
CL Item
Roma (11)
CL Item
Other (12)
CL Item
Not Known (13)
Item
MDS Diagnosis
integer
C0026986 (UMLS CUI-1)
C3699655 (UMLS CUI-2)
MDS Diagnosis
Code List
MDS Diagnosis
CL Item
5q syndrome (1)
C0740302 (UMLS CUI-1)
CL Item
RA (2)
C0002893 (UMLS CUI-1)
CL Item
RARA (3)
CL Item
RCMD (4)
CL Item
RCMD-RS (5)
CL Item
RAEB-1 (6)
C1318550 (UMLS CUI-1)
CL Item
RAEB-2 (7)
C1318551 (UMLS CUI-1)
CL Item
MDS-U (8)
Item
Bone Marrow Blasts
integer
C1982687 (UMLS CUI-1)
Bone Marrow Blasts
Code List
Bone Marrow Blasts
CL Item
<5% (1)
CL Item
5% - 10% (2)
CL Item
11% - 20% (3)
CL Item
21% - 30% (4)
Item
Cytopenia
text
C0010828 (UMLS CUI-1)
Cytopenias
Code List
Cytopenia
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
0 (0)
Item
Cytogenetics
integer
C0010802 (UMLS CUI-1)
Cytogenetics
Code List
Cytogenetics
CL Item
Good (1)
CL Item
Intermediate (2)
CL Item
Poor (3)
CL Item
Not Available (4)
Item
IPSS Score
text
C2827405 (UMLS CUI-1)
IPSS Score
Code List
IPSS Score
CL Item
0 (0)
CL Item
0.5 (0.5)
CL Item
1 (1)
CL Item
1.5 (1.5)
CL Item
2 (2)
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