ID

43995

Description

Further Information: http://www.eumds.org/

Link

http://www.eumds.org/

Keywords

  1. 5/28/15 5/28/15 - Martin Dugas
  2. 10/18/17 10/18/17 - Martin Dugas
  3. 9/20/21 9/20/21 -
Copyright Holder

EUMDS consortium

Uploaded on

September 20, 2021

DOI

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License

Creative Commons BY-NC 3.0

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EUMDS registry DRKS00003844 NCT00600860

Visit details

Details at visit
Description

Details at visit

Alias
UMLS CUI-1
C0545082
Visit date
Description

Visit date

Data type

date

Measurement units
  • DD/MM/YY
Alias
UMLS CUI-1
C1320303
DD/MM/YY
Height
Description

Height

Data type

float

Measurement units
  • m
Alias
UMLS CUI-1
C0005890
m
Weight
Description

Weight

Data type

float

Measurement units
  • kg
Alias
UMLS CUI-1
C0005910
kg
Karnofsky Status
Description

Karnofsky Status

Data type

integer

Alias
UMLS CUI-1
C0206065
History of MDS Treatment
Description

History of MDS Treatment

Alias
UMLS CUI-1
C0814462
No previous treatment
Description

No previous treatment

Data type

boolean

Clinical trial
Description

Clinical trial

Data type

boolean

Alias
UMLS CUI-1
C0008976
Clinical trial start date
Description

Clinical trial start date

Data type

date

Clinical trial stop date
Description

Clinical trial stop date

Data type

date

History of MDS Treatment
Description

History of MDS Treatment

Medication
Description

Medication

Data type

integer

Alias
UMLS CUI-1
C0013227
Medication start date
Description

Medication start date

Data type

date

Alias
UMLS CUI-1
C3173309
Medication ongoing
Description

Medication ongoing

Data type

boolean

Alias
UMLS CUI-1
C2826666
Medication stop date
Description

Medication stop date

Data type

date

Alias
UMLS CUI-1
C3483769
Medication comment
Description

Medication comment

Data type

text

Treatment with Iron Chelators
Description

Treatment with Iron Chelators

Never treated with iron chelator
Description

Never treated with iron chelator

Data type

boolean

Treatment with Iron Chelators
Description

Treatment with Iron Chelators

Medication
Description

Medication

Data type

integer

Alias
UMLS CUI-1
C0013227
Daily dose
Description

Daily dose

Data type

text

Alias
UMLS CUI-1
C2348070
Schedule
Description

Schedule

Data type

text

Alias
UMLS CUI-1
C3476109
Start Date
Description

Start Date

Data type

date

Measurement units
  • DD/MM/YY
Alias
UMLS CUI-1
C3173309
DD/MM/YY
Stop Date/Ongoing
Description

Stop Date/Ongoing

Data type

date

Alias
UMLS CUI-1
C3483769
Number of courses
Description

Number of courses

Data type

text

Route of administrion
Description

Route of administrion

Data type

integer

Alias
UMLS CUI-1
C0013153
Red cell transfusion
Description

Red cell transfusion

Alias
UMLS CUI-1
C1879316
No transfusions
Description

No transfusions

Data type

boolean

Alias
UMLS CUI-1
C0005841
UMLS CUI-2
C3640974
Date of first transfusion
Description

Date of first transfusion

Data type

date

Alias
UMLS CUI-1
C1264703
UMLS CUI-2
C0205435
Number of RBC units transfused
Description

Number of RBC units transfused

Data type

integer

Alias
UMLS CUI-1
C1976527
Date of last transfusion
Description

Date of last transfusion

Data type

date

Alias
UMLS CUI-1
C1264703
UMLS CUI-2
C1517741
Number of units transfused
Description

Number of units transfused

Data type

integer

Date of blood sample for Hb
Description

Date of blood sample for Hb

Data type

date

Measurement units
  • DD/MM/YY
DD/MM/YY
Pre-transfusion Hb
Description

Pre-transfusion Hb

Data type

float

Pre-transfusion Hb unit
Description

Pre-transfusion Hb unit

Data type

text

Similar models

Visit details

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Details at visit
C0545082 (UMLS CUI-1)
Visit date
Item
Visit date
date
C1320303 (UMLS CUI-1)
Height
Item
Height
float
C0005890 (UMLS CUI-1)
Weight
Item
Weight
float
C0005910 (UMLS CUI-1)
Item
Karnofsky Status
integer
C0206065 (UMLS CUI-1)
Code List
Karnofsky Status
CL Item
Normal - no complaints; no evidence of disease. (100)
C3829431 (UMLS CUI-1)
CL Item
Able to carry on normal activity; minor sign or symptoms of disease. (90)
C3829422 (UMLS CUI-1)
CL Item
Normal activity; minor sign of symptoms of disease. (80)
C3829423 (UMLS CUI-1)
CL Item
Care for self; unable to carry on normal activity or to do active work. (70)
C3829424 (UMLS CUI-1)
CL Item
Requires occasional assistance, but is able to care for most personal needs. (60)
C3829425 (UMLS CUI-1)
CL Item
Requires considerable assistance and frequent medical care. (50)
C3829426 (UMLS CUI-1)
CL Item
Disabled; requires special care and assistance. (40)
C3829427 (UMLS CUI-1)
CL Item
Severely disabled; hospital admission is indicated although death not imminent. (30)
C3829428 (UMLS CUI-1)
CL Item
Very sick; hospital admission is necessary; active supportive treament necessary. (20)
C3829429 (UMLS CUI-1)
CL Item
Moribund; fatal processes progressing rapidly. (10)
C3829430 (UMLS CUI-1)
CL Item
Dead. (0)
C3829432 (UMLS CUI-1)
Item Group
History of MDS Treatment
C0814462 (UMLS CUI-1)
No previous treatment
Item
No previous treatment
boolean
Clinical trial
Item
Clinical trial
boolean
C0008976 (UMLS CUI-1)
Clinical trial start date
Item
Clinical trial start date
date
Clinical trial stop date
Item
Clinical trial stop date
date
Item Group
History of MDS Treatment
Item
Medication
integer
C0013227 (UMLS CUI-1)
Code List
Medication
CL Item
Hydroxyurea (1)
C0020402 (UMLS CUI-1)
CL Item
Erythropoietin (2)
C0014822 (UMLS CUI-1)
CL Item
Demethylating (3)
C2613367 (UMLS CUI-1)
CL Item
Immunosuppressive agent (4)
C0021081 (UMLS CUI-1)
CL Item
G-CSF (5)
C0079459 (UMLS CUI-1)
CL Item
Prednisolone (6)
CL Item
Other Agent (7)
Medication start date
Item
Medication start date
date
C3173309 (UMLS CUI-1)
Medication ongoing
Item
Medication ongoing
boolean
C2826666 (UMLS CUI-1)
Medication end date
Item
Medication stop date
date
C3483769 (UMLS CUI-1)
Medication comment
Item
Medication comment
text
Item Group
Treatment with Iron Chelators
Never treated with iron chelator
Item
Never treated with iron chelator
boolean
Item Group
Treatment with Iron Chelators
Item
Medication
integer
C0013227 (UMLS CUI-1)
Code List
Medication
CL Item
Deferoxamine (1)
C0011145 (UMLS CUI-1)
CL Item
Deferiprone (2)
C0043832 (UMLS CUI-1)
CL Item
Deferasirox (3)
C1619629 (UMLS CUI-1)
CL Item
Ferritin (4)
C0015879 (UMLS CUI-1)
Daily dose
Item
Daily dose
text
C2348070 (UMLS CUI-1)
Schedule
Item
Schedule
text
C3476109 (UMLS CUI-1)
Medication start date
Item
Start Date
date
C3173309 (UMLS CUI-1)
Medication stop date
Item
Stop Date/Ongoing
date
C3483769 (UMLS CUI-1)
Number of courses
Item
Number of courses
text
Item
Route of administrion
integer
C0013153 (UMLS CUI-1)
Code List
Route of administrion
CL Item
IV (1)
C0348016 (UMLS CUI-1)
CL Item
SC (2)
C1522438 (UMLS CUI-1)
Item Group
Red cell transfusion
C1879316 (UMLS CUI-1)
No transfusions
Item
No transfusions
boolean
C0005841 (UMLS CUI-1)
C3640974 (UMLS CUI-2)
Date of first transfusion
Item
Date of first transfusion
date
C1264703 (UMLS CUI-1)
C0205435 (UMLS CUI-2)
Number of RBC units
Item
Number of RBC units transfused
integer
C1976527 (UMLS CUI-1)
Date of last transfusion
Item
Date of last transfusion
date
C1264703 (UMLS CUI-1)
C1517741 (UMLS CUI-2)
Number of units transfused
Item
Number of units transfused
integer
Date of blood sample for Hb
Item
Date of blood sample for Hb
date
Pre-transfusion Hb
Item
Pre-transfusion Hb
float
Pre-transfusion Hb unit
Item
Pre-transfusion Hb unit
text

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