ID

44204

Description

Freigabe zur Verarbeitung durch Frau Prof. Rössig, Quellenangabe: "Pädiatrische Hämatologie und Onkologie, UKM" Klinik für Kinder- und Jugendmedizin, Universitätsklinikum Münster Released for adaption by Frau Prof. Rössig Source:Pediatric Hematology und Oncology, University hospital Münster

Keywords

  1. 12/3/16 12/3/16 -
  2. 12/3/16 12/3/16 -
  3. 12/4/16 12/4/16 -
  4. 12/9/16 12/9/16 -
  5. 12/9/16 12/9/16 -
  6. 12/9/16 12/9/16 -
  7. 4/13/21 4/13/21 - Dr. rer. medic Philipp Neuhaus
  8. 9/20/21 9/20/21 -
Uploaded on

September 20, 2021

DOI

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License

Creative Commons BY-NC 3.0

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Patient Admision Pediatric Hematology and Oncology UK Muenster

Patient Admision Pediatric Hematology and Oncology UK Muenster

Patient
Description

Patient

Alias
UMLS CUI-1
C0030705
Name
Description

last name

Data type

text

Alias
UMLS CUI [1]
C1301584
Vorname
Description

first name

Data type

text

Alias
UMLS CUI [1]
C1443235
Gender
Description

gender

Data type

integer

Alias
UMLS CUI [1]
C0079399
Religion
Description

religion

Data type

text

Alias
UMLS CUI [1]
C0035039
Patient adress
Description

Patient adress

Data type

text

Alias
UMLS CUI [1]
C0421449
Characteristics
Description

characteristics

Data type

text

Alias
UMLS CUI [1]
C1521970
School/Occupations
Description

school/occupations

Data type

text

Alias
UMLS CUI [1]
C0036375
UMLS CUI [2]
C0028811
Body Weight
Description

body weight

Data type

integer

Measurement units
  • kg
Alias
UMLS CUI [1]
C0005910
kg
Body Height
Description

Body Height

Data type

integer

Measurement units
  • cm
Alias
UMLS CUI [1]
C0005890
cm
Date of birth
Description

Date of birth

Data type

date

Alias
UMLS CUI [1]
C0421451
Nationality
Description

Nationality

Data type

text

Alias
UMLS CUI [1]
C0027473
Health insurance
Description

Health insurance

Data type

text

Alias
UMLS CUI [1]
C0021682
Insurance ID
Description

insurance id

Data type

text

Alias
UMLS CUI [1]
C1547687
Patients insurance ID
Description

Patients insurance ID

Data type

text

Alias
UMLS CUI [1,1]
C1269815
UMLS CUI [1,2]
C0021672
Insured by
Description

insured by

Data type

integer

entitled to custody
Description

custody

Data type

integer

Alias
UMLS CUI [1]
C0680610
specify person entitled to custody
Description

specify person entitled to custody

Data type

text

Alias
UMLS CUI [1]
C0680610
Father
Description

Father

Alias
UMLS CUI-1
C0015671
Last name
Description

last name

Data type

text

Alias
UMLS CUI [1]
C1301584
First name
Description

first name

Data type

text

Alias
UMLS CUI [1]
C1443235
Date of birth
Description

Date of birth

Data type

date

Alias
UMLS CUI [1]
C0421451
Confession
Description

confession

Data type

text

Alias
UMLS CUI [1]
C0681202
Address
Description

address

Data type

text

Alias
UMLS CUI [1,1]
C1442065
UMLS CUI [1,2]
C0015671
Telephone number
Description

telephone number

Data type

text

Alias
UMLS CUI [1]
C1515258
Mobile phone number
Description

mobile phone number

Data type

text

Alias
UMLS CUI [1]
C3273868
Email address/Fax
Description

email address/fax

Data type

text

Alias
UMLS CUI [1]
C1705961
UMLS CUI [2]
C1549619
Occupation
Description

occupation

Data type

text

Alias
UMLS CUI [1]
C0028811
Occupation details
Description

full time job

Data type

integer

Alias
UMLS CUI [1]
C0682295
Nationality
Description

nationality

Data type

integer

Alias
UMLS CUI [1]
C0027473
if other nationality, please specify
Description

if other nationality, please specify

Data type

text

Alias
UMLS CUI [1]
C0027473
Mother
Description

Mother

Alias
UMLS CUI-1
C0026591
Last name
Description

last name

Data type

text

Alias
UMLS CUI [1]
C1301584
First name
Description

first name

Data type

text

Alias
UMLS CUI [1]
C1443235
Date of birth
Description

Date of birth

Data type

date

Alias
UMLS CUI [1]
C0421451
Confession
Description

confession

Data type

text

Alias
UMLS CUI [1]
C0681202
Address
Description

address

Data type

text

Alias
UMLS CUI [1,1]
C1442065
UMLS CUI [1,2]
C0015671
Telephone number
Description

telephone number

Data type

text

Alias
UMLS CUI [1]
C1515258
Mobile phone number
Description

mobile phone number

Data type

text

Alias
UMLS CUI [1]
C3273868
Email address/Fax
Description

email address/fax

Data type

text

Alias
UMLS CUI [1]
C1705961
UMLS CUI [2]
C1549619
Occupation
Description

occupation

Data type

text

Alias
UMLS CUI [1]
C0028811
Occupation details
Description

full time job

Data type

integer

Alias
UMLS CUI [1]
C0682295
Nationality
Description

nationality

Data type

integer

Alias
UMLS CUI [1]
C0027473
if other nationality, please specify
Description

if other nationality, please specify

Data type

text

Alias
UMLS CUI [1]
C0027473
Living arrangement
Description

Living arrangement

Alias
UMLS CUI-1
C1563343
Language spoken at home
Description

Language spoken at home

Data type

integer

Alias
UMLS CUI [1,1]
C0442519
UMLS CUI [1,2]
C0023008
specify language spoken at home
Description

specify language spoken at home

Data type

text

Alias
UMLS CUI [1,1]
C0442519
UMLS CUI [1,2]
C0023008
Translator needed
Description

Translator

Data type

boolean

Alias
UMLS CUI [1]
C0402036
Parents
Description

parents living arrangement

Data type

integer

Alias
UMLS CUI [1,1]
C0030551
UMLS CUI [1,2]
C0024819
divorced, widowed since
Description

divorced, widowed since

Data type

date

Alias
UMLS CUI [1,1]
C0012828
UMLS CUI [1,2]
C0011008
UMLS CUI [2,1]
C0206275
UMLS CUI [2,2]
C0011008
childs living at
Description

childs place of living

Data type

integer

Alias
UMLS CUI [1,1]
C0023913
UMLS CUI [1,2]
C0008059
Sibling
Description

Sibling

Alias
UMLS CUI-1
C0037047
Last name
Description

sibling name

Data type

text

Alias
UMLS CUI [1]
C1301584
First name
Description

sibling first name

Data type

text

Alias
UMLS CUI [1]
C1443235
Date of birth
Description

Date of birth

Data type

date

Alias
UMLS CUI [1]
C0421451
Characteristics
Description

Characteristics

Data type

text

Alias
UMLS CUI [1]
C1521970
Medical history
Description

Medical history

Alias
UMLS CUI-1
C0262926
any characterics of pregnancy, birth or child development connected to present illness
Description

any characterics of pregnancy, birth or child development connected to present illness

Data type

text

Alias
UMLS CUI [1,1]
C1521970
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C1521970
UMLS CUI [1,4]
C0005615
UMLS CUI [2,1]
C1521970
UMLS CUI [2,2]
C0008071
Primary disease
Description

Primary disease

Data type

text

Alias
UMLS CUI [1]
C0277554
Date of first diagnosis
Description

Date of first diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
Further Illnesses
Description

other illness

Data type

text

Alias
UMLS CUI [1]
C3843746
Progressive disease
Description

progressive disease

Data type

boolean

Alias
UMLS CUI [1]
C1335499
Complications or surgery
Description

Complications or surgery

Data type

text

Alias
UMLS CUI [1]
C0009566
UMLS CUI [2]
C0543467
Hypersensitivities
Description

Hypersensitivities

Data type

text

Alias
UMLS CUI [1]
C0020517
Patient transfered by
Description

Patient transfered by

Data type

integer

Alias
UMLS CUI [1]
C0030704
When?
Description

Date of consent discussion

Data type

date

Alias
UMLS CUI [1,1]
C0515995
UMLS CUI [1,2]
C0011008
Who did the interview?
Description

consent discussion investigator

Data type

text

Alias
UMLS CUI [1,1]
C0515995
UMLS CUI [1,2]
C0021821
What was the interview's topic?
Description

consent discussion topic

Data type

text

Alias
UMLS CUI [1,1]
C0515995
UMLS CUI [1,2]
C1706203
Which symptoms of the child should be eased?
Description

childrens symptoms

Data type

text

Alias
UMLS CUI [1]
C3824891
Whereby do you as parents need help by the palliative team?
Description

support for parents

Data type

text

Alias
UMLS CUI [1]
C0150232
Nursing support
Description

Nursing support

Alias
UMLS CUI-1
C0344211
Nursing insurance
Description

nursing insurance

Data type

integer

Alias
UMLS CUI [1]
C0021690
Severe disability identity card
Description

severe disability identity card

Data type

boolean

Alias
UMLS CUI [1]
C0424990
Disability evaluation
Description

Disability evaluation

Data type

integer

Measurement units
  • %
Alias
UMLS CUI [1]
C0012605
%
Outpatient children care
Description

Outpatient children care

Data type

boolean

Alias
UMLS CUI [1]
C3826748
hours per week
Description

Outpatient children care hours per week

Data type

integer

Alias
UMLS CUI [1,1]
C3826748
UMLS CUI [1,2]
C0556976
treatment care
Description

treatment care

Data type

boolean

Alias
UMLS CUI [1]
C0011017
basic care
Description

basic care

Data type

boolean

Alias
UMLS CUI [1]
C0509072
integration support
Description

integration support

Data type

boolean

Alias
UMLS CUI [1,1]
C0344211
UMLS CUI [1,2]
C0597478
family support
Description

family support

Data type

boolean

Alias
UMLS CUI [1]
C0150232
outpatient children hospice
Description

outpatient children hospice

Data type

boolean

Alias
UMLS CUI [1,1]
C3826577
UMLS CUI [1,2]
C0557533
hours per week
Description

outpatient children hospice hours per week

Data type

integer

Measurement units
  • hours per week
Alias
UMLS CUI [1,1]
C3826577
UMLS CUI [1,2]
C0557533
UMLS CUI [1,3]
C0556976
hours per week
other support
Description

other support

Data type

boolean

Alias
UMLS CUI [1]
C0150232
UMLS CUI [2]
C0557464
hours per week
Description

other support hours per week

Data type

integer

Measurement units
  • hours per week
Alias
UMLS CUI [1,1]
C0150232
UMLS CUI [1,2]
C0556976
UMLS CUI [2,1]
C0557464
UMLS CUI [2,2]
C0556976
hours per week
Support device
Description

Support device

Alias
UMLS CUI-1
C0183683
nursing bed
Description

nursing bed

Data type

boolean

Alias
UMLS CUI [1]
C0336603
ownership
Description

nursing bed ownership

Data type

integer

Alias
UMLS CUI [1,1]
C0336603
UMLS CUI [1,2]
C0029981
loan from
Description

nursing bed loan

Data type

text

Alias
UMLS CUI [1,1]
C0336603
UMLS CUI [1,2]
C1555585
wheelchair
Description

wheelchair

Data type

boolean

Alias
UMLS CUI [1]
C0043143
ownership
Description

wheelchair ownership

Data type

integer

Alias
UMLS CUI [1,1]
C0043143
UMLS CUI [1,2]
C0029981
loan
Description

wheel chair loan

Data type

text

Alias
UMLS CUI [1,1]
C0043143
UMLS CUI [1,2]
C1555585
walker
Description

walker

Data type

boolean

Alias
UMLS CUI [1]
C0043016
ownership
Description

walker ownership

Data type

integer

Alias
UMLS CUI [1,1]
C0043016
UMLS CUI [1,2]
C0029981
loan
Description

walker loan

Data type

text

Alias
UMLS CUI [1,1]
C0043016
UMLS CUI [1,2]
C1555585
Positioning aids
Description

positioning aids

Data type

boolean

Alias
UMLS CUI [1]
C0182347
ownership
Description

positioning aids ownership

Data type

integer

Alias
UMLS CUI [1,1]
C0182347
UMLS CUI [1,2]
C0029981
loan
Description

positioning aids loan

Data type

text

Alias
UMLS CUI [1,1]
C0182347
UMLS CUI [1,2]
C1555585
Feeding pump
Description

Feeding pump

Data type

boolean

Alias
UMLS CUI [1]
C2317149
ownership
Description

Feeding pump ownership

Data type

integer

Alias
UMLS CUI [1,1]
C2317149
UMLS CUI [1,2]
C0029981
loan
Description

Feeding pump loan

Data type

text

Alias
UMLS CUI [1,1]
C2317149
UMLS CUI [1,2]
C1555585
PCA pump
Description

pca

Data type

boolean

Alias
UMLS CUI [1]
C0078944
ownership
Description

pca ownership

Data type

integer

Alias
UMLS CUI [1,1]
C0078944
UMLS CUI [1,2]
C0029981
loan
Description

pca loan

Data type

text

Alias
UMLS CUI [1,1]
C0078944
UMLS CUI [1,2]
C1555585
C0021436
Description

infusion pump

Data type

boolean

Alias
UMLS CUI [1]
C0021436
ownership
Description

infusion pump ownership

Data type

integer

Alias
UMLS CUI [1,1]
C0021436
UMLS CUI [1,2]
C0029981
loan
Description

infusion pump loan

Data type

text

Alias
UMLS CUI [1,1]
C0021436
UMLS CUI [1,2]
C1555585
suction device
Description

suction device

Data type

boolean

Alias
UMLS CUI [1]
C0038638
ownership
Description

suction device ownership

Data type

integer

Alias
UMLS CUI [1,1]
C0038638
UMLS CUI [1,2]
C0029981
loan
Description

suction device loan

Data type

text

Alias
UMLS CUI [1,1]
C0038638
UMLS CUI [1,2]
C1555585
Pulse oximeter
Description

Pulse oximeter

Data type

boolean

Alias
UMLS CUI [1]
C0182109
ownership
Description

Pulse oximeter ownership

Data type

integer

Alias
UMLS CUI [1,1]
C0182109
UMLS CUI [1,2]
C0029981
loan
Description

Pulse oximeter loan

Data type

text

Alias
UMLS CUI [1,1]
C0182109
UMLS CUI [1,2]
C1555585
oxygen cylinder
Description

oxygen cylinder

Data type

boolean

Alias
UMLS CUI [1]
C0182124
ownership
Description

oxygen cylinder ownership

Data type

integer

Alias
UMLS CUI [1,1]
C0182124
UMLS CUI [1,2]
C0029981
loan
Description

oxygen cylinder loan

Data type

text

Alias
UMLS CUI [1,1]
C0182124
UMLS CUI [1,2]
C1555585
oxygen concentrator
Description

oxygen concentrator

Data type

boolean

Alias
UMLS CUI [1]
C0182123
ownership
Description

oxygen concentrator ownership

Data type

integer

Alias
UMLS CUI [1,1]
C0182123
UMLS CUI [1,2]
C0029981
loan
Description

oxygen concentrator loan

Data type

text

Alias
UMLS CUI [1,1]
C0182123
UMLS CUI [1,2]
C1555585
Ventilation assist device
Description

Ventilation assist device

Data type

boolean

Alias
UMLS CUI [1]
C0554804
ownership
Description

Ventilation assist device ownership

Data type

integer

Alias
UMLS CUI [1,1]
C0554804
UMLS CUI [1,2]
C0029981
loan
Description

Ventilation assist device loan

Data type

text

Alias
UMLS CUI [1,1]
C0554804
UMLS CUI [1,2]
C1555585
commode
Description

commode

Data type

boolean

Alias
UMLS CUI [1]
C1140607
ownership
Description

commode ownership

Data type

integer

Alias
UMLS CUI [1,1]
C1140607
UMLS CUI [1,2]
C0029981
loan
Description

commode loan

Data type

text

Alias
UMLS CUI [1,1]
C1140607
UMLS CUI [1,2]
C1555585
bathtub lifter
Description

bathtub lifter

Data type

boolean

Alias
UMLS CUI [1,1]
C3877143
UMLS CUI [1,2]
C0336751
ownership
Description

bathtub lifter ownership

Data type

integer

Alias
UMLS CUI [1,1]
C3877143
UMLS CUI [1,2]
C0336751
UMLS CUI [1,3]
C0029981
loan
Description

bathtub lifter loan

Data type

text

Alias
UMLS CUI [1,1]
C3877143
UMLS CUI [1,2]
C0336751
UMLS CUI [1,3]
C1555585
Personal aids
Description

Personal aids

glasses
Description

glasses

Data type

boolean

Alias
UMLS CUI [1]
C0015421
braces, lose
Description

braces, lose

Data type

boolean

Alias
UMLS CUI [1]
C0743050
dental splint
Description

dental splint

Data type

boolean

Alias
UMLS CUI [1]
C0441335
palatal plate
Description

palatal plate

Data type

boolean

Alias
UMLS CUI [1,1]
C1139930
UMLS CUI [1,2]
C0700374
contact lenses
Description

contact lenses

Data type

boolean

Alias
UMLS CUI [1]
C0009836
prosthesis
Description

prosthesis

Data type

boolean

Alias
UMLS CUI [1]
C0175649
walking aids
Description

walking aids

Data type

boolean

Alias
UMLS CUI [1]
C0557834
hearing aids
Description

hearing aids

Data type

boolean

Alias
UMLS CUI [1]
C0018768
braces, fixed
Description

braces, fixed

Data type

boolean

Alias
UMLS CUI [1]
C0743050
corset
Description

corset

Data type

boolean

Alias
UMLS CUI [1]
C3665309
seat
Description

seat

Data type

boolean

Alias
UMLS CUI [1]
C0438917
School, Kindergarten, workshop
Description

School, Kindergarten, workshop

Alias
UMLS CUI-1
C0876933
UMLS CUI-2
C0036375
UMLS CUI-3
C0677507
regular kindergarten
Description

regular kindergarten

Data type

boolean

Alias
UMLS CUI [1]
C0876933
integrative kindergarten
Description

integrative kindergarten

Data type

boolean

therapeutic-educational kindergarten
Description

therapeutic-educational kindergarten

Data type

boolean

regular school
Description

regular school

Data type

boolean

Alias
UMLS CUI [1]
C0557305
integration class
Description

integration class

Data type

boolean

Alias
UMLS CUI [1,1]
C0036375
UMLS CUI [1,2]
C0597478
school for children with learning difficulties
Description

school for children with learning difficulties

Data type

boolean

Alias
UMLS CUI [1,1]
C0418934
UMLS CUI [1,2]
C0424939
school for mentally disabled children
Description

school for mentally disabled children

Data type

boolean

Alias
UMLS CUI [1,1]
C0418934
UMLS CUI [1,2]
C0079822
school for physically disabled children
Description

school for physically disabled children

Data type

boolean

Alias
UMLS CUI [1,1]
C0418934
UMLS CUI [1,2]
C0086807
school for physically and mentally disabled children
Description

school for physically and mentally disabled children

Data type

boolean

Alias
UMLS CUI [1,1]
C0418934
UMLS CUI [1,2]
C0086807
UMLS CUI [1,3]
C0079822
home schooling
Description

home schooling

Data type

boolean

Alias
UMLS CUI [1]
C0870657
sheltered workshop
Description

sheltered workshop

Data type

boolean

Alias
UMLS CUI [1]
C0036951
driving service from and to facility
Description

driving service from and to facility

Data type

boolean

Alias
UMLS CUI [1]
C1556026
need for escort to facility
Description

need for escort to facility

Data type

boolean

Alias
UMLS CUI [1]
C1547632
escort person or institution
Description

escort person or institution

Data type

text

Alias
UMLS CUI [1]
C0030689
aids in facility and if yes, which:
Description

aids in facility

Data type

text

Alias
UMLS CUI [1]
C1547538
issues in education
Description

issues in education

Data type

text

Alias
UMLS CUI [1,1]
C0013622
UMLS CUI [1,2]
C0033213
Therapies in school, kindergarten, workshop
Description

Therapies in school, kindergarten, workshop

Alias
UMLS CUI-1
C0087111
physical therapy
Description

physical therapy

Data type

boolean

Alias
UMLS CUI [1]
C0949766
special education
Description

special education

Data type

boolean

Alias
UMLS CUI [1]
C0013649
ergotherapy
Description

ergotherapy

Data type

boolean

Alias
UMLS CUI [1]
C1141969
motion therapy
Description

motion therapy

Data type

boolean

Alias
UMLS CUI [1]
C0026604
speech therapy
Description

speech therapy

Data type

boolean

Alias
UMLS CUI [1]
C0037831
music therapy
Description

music therapy

Data type

boolean

Alias
UMLS CUI [1]
C0026868
Which medications does your child use?
Description

Which medications does your child use?

Alias
UMLS CUI-1
C0013227
pharmaceutical preparation
Description

pharmaceutical preparation

Data type

text

Alias
UMLS CUI [1]
C0013227
medication dose
Description

medication dose

Data type

text

Alias
UMLS CUI [1]
C3174092
administration form
Description

administration form

Data type

integer

Alias
UMLS CUI [1]
C0013153
How often a day? As required?
Description

medication frequency

Data type

text

Alias
UMLS CUI [1]
C2826654
indication
Description

indication

Data type

text

Alias
UMLS CUI [1]
C3146298
UMLS CUI [2,1]
C0013216
UMLS CUI [2,2]
C1948053
How effective?
Description

treatment effectiveness

Data type

integer

Alias
UMLS CUI [1]
C0087113
Which medications did your child use in the past?
Description

Which medications did your child use in the past?

Alias
UMLS CUI-1
C0262926
UMLS CUI-2
C0013227
pharmaceutical preparation
Description

pharmaceutical preparation

Data type

text

Alias
UMLS CUI [1]
C0013227
medication dose
Description

medication dose

Data type

text

Alias
UMLS CUI [1]
C3174092
administration form
Description

administration form

Data type

integer

Alias
UMLS CUI [1]
C0013153
How often a day? As required?
Description

medication frequency

Data type

text

Alias
UMLS CUI [1]
C2826654
indication
Description

indication

Data type

text

Alias
UMLS CUI [1]
C3146298
UMLS CUI [2,1]
C0013216
UMLS CUI [2,2]
C1948053
How effective?
Description

treatment effectiveness

Data type

integer

Alias
UMLS CUI [1]
C0087113
Therapy
Description

Therapy

Alias
UMLS CUI-1
C0087111
none
Description

no therapy

Data type

boolean

Alias
UMLS CUI [1]
C0746919
speech therapy
Description

speech therapy

Data type

boolean

Alias
UMLS CUI [1]
C0037831
natural therapy
Description

natural therapy

Data type

boolean

Alias
UMLS CUI [1]
C0751363
early intervention
Description

early intervention

Data type

boolean

Alias
UMLS CUI [1]
C0242687
physical therapy
Description

physical therapy

Data type

boolean

Alias
UMLS CUI [1]
C0949766
art therapy
Description

art therapy

Data type

boolean

Alias
UMLS CUI [1]
C0003827
psychotherapy
Description

psychotherapy

Data type

boolean

Alias
UMLS CUI [1]
C0033968
music therapy
Description

music therapy

Data type

boolean

Alias
UMLS CUI [1]
C0026868
Nutrition
Description

Nutrition

Alias
UMLS CUI-1
C0600072
oral nutrition
Description

oral nutrition

Data type

integer

Alias
UMLS CUI [1]
C2223915
normal diet
Description

normal diet

Data type

boolean

Alias
UMLS CUI [1]
C0184625
enteral feeding
Description

enteral feeding

Data type

boolean

Alias
UMLS CUI [1]
C0086225
strained foods
Description

strained foods

Data type

boolean

Alias
UMLS CUI [1]
C3714301
special diet
Description

special diet

Data type

boolean

Alias
UMLS CUI [1]
C3164710
parenteral feeding
Description

parenteral feeding

Data type

boolean

Alias
UMLS CUI [1]
C0030547
nutrition trade name
Description

nutrition trade name

Data type

text

Alias
UMLS CUI [1,1]
C0016452
UMLS CUI [1,2]
C0592503
drinking and eating characteristics
Description

drinking and eating characteristics

Data type

text

Alias
UMLS CUI [1,1]
C1521970
UMLS CUI [1,2]
C0559899
Is your child able to control Urine/Stool?
Description

Is your child able to control Urine/Stool?

Alias
UMLS CUI-1
C0449307
Urine
Description

Urine

Data type

integer

Alias
UMLS CUI [1]
C0542565
Stool
Description

bowel control

Data type

integer

Alias
UMLS CUI [1]
C1290944
Catheters and drainages
Description

Catheters and drainages

Alias
UMLS CUI-1
C0085590
gastric tube
Description

gastric tube

Data type

boolean

Alias
UMLS CUI [1]
C1546658
tracheal tube
Description

tracheal tube

Data type

boolean

Alias
UMLS CUI [1]
C1260970
peg
Description

peg

Data type

boolean

Alias
UMLS CUI [1]
C0176751
Shunt/Ommaya
Description

Shunt/Ommaya

Data type

boolean

Alias
UMLS CUI [1]
C0542331
UMLS CUI [2]
C1289878
pej
Description

pej

Data type

boolean

Alias
UMLS CUI [1]
C0176813
urinary catheter
Description

urinary catheter

Data type

boolean

Alias
UMLS CUI [1]
C0179802
cvc
Description

cvc

Data type

boolean

Alias
UMLS CUI [1]
C1145640
anus praeter
Description

anus praeter

Data type

boolean

Alias
UMLS CUI [1]
C1611169
pacemaker
Description

pacemaker

Data type

boolean

Alias
UMLS CUI [1]
C0030163
Other
Description

Other

Which motor skills does your child have? (e.g. free walking)
Description

motor skills

Data type

text

Alias
UMLS CUI [1]
C0026612
Is your child able to see, hear and talk? How do you communicate? Does your child use communication aids?
Description

communication skills

Data type

text

Alias
UMLS CUI [1]
C0870313
Do you receive therapeutic or mental-spiritual support at the moment?
Description

therapeutic support

Data type

text

Alias
UMLS CUI [1]
C0344211
Is there anything you want to tell us?
Description

comment

Data type

text

Alias
UMLS CUI [1]
C0947611

Similar models

Patient Admision Pediatric Hematology and Oncology UK Muenster

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Patient
C0030705 (UMLS CUI-1)
last name
Item
Name
text
C1301584 (UMLS CUI [1])
first name
Item
Vorname
text
C1443235 (UMLS CUI [1])
Item
Gender
integer
C0079399 (UMLS CUI [1])
Code List
Gender
CL Item
female (1)
CL Item
male (2)
religion
Item
Religion
text
C0035039 (UMLS CUI [1])
Patient adress
Item
Patient adress
text
C0421449 (UMLS CUI [1])
characteristics
Item
Characteristics
text
C1521970 (UMLS CUI [1])
school/occupations
Item
School/Occupations
text
C0036375 (UMLS CUI [1])
C0028811 (UMLS CUI [2])
body weight
Item
Body Weight
integer
C0005910 (UMLS CUI [1])
Body Height
Item
Body Height
integer
C0005890 (UMLS CUI [1])
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
Nationality
Item
Nationality
text
C0027473 (UMLS CUI [1])
Health insurance
Item
Health insurance
text
C0021682 (UMLS CUI [1])
insurance id
Item
Insurance ID
text
C1547687 (UMLS CUI [1])
Patients insurance ID
Item
Patients insurance ID
text
C1269815 (UMLS CUI [1,1])
C0021672 (UMLS CUI [1,2])
Item
Insured by
integer
Code List
Insured by
CL Item
self-insured (1)
CL Item
Father (2)
CL Item
Mother (3)
Item
entitled to custody
integer
C0680610 (UMLS CUI [1])
Code List
entitled to custody
CL Item
both parents (1)
CL Item
Father (2)
CL Item
Mother (3)
CL Item
other person (4)
specify person entitled to custody
Item
specify person entitled to custody
text
C0680610 (UMLS CUI [1])
Item Group
Father
C0015671 (UMLS CUI-1)
last name
Item
Last name
text
C1301584 (UMLS CUI [1])
first name
Item
First name
text
C1443235 (UMLS CUI [1])
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
confession
Item
Confession
text
C0681202 (UMLS CUI [1])
address
Item
Address
text
C1442065 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
telephone number
Item
Telephone number
text
C1515258 (UMLS CUI [1])
mobile phone number
Item
Mobile phone number
text
C3273868 (UMLS CUI [1])
email address/fax
Item
Email address/Fax
text
C1705961 (UMLS CUI [1])
C1549619 (UMLS CUI [2])
occupation
Item
Occupation
text
C0028811 (UMLS CUI [1])
Item
Occupation details
integer
C0682295 (UMLS CUI [1])
Code List
Occupation details
CL Item
full-time job (1)
CL Item
part time job (2)
CL Item
unemployed (3)
Item
Nationality
integer
C0027473 (UMLS CUI [1])
Code List
Nationality
CL Item
german (1)
CL Item
other (2)
if other nationality, please specify
Item
if other nationality, please specify
text
C0027473 (UMLS CUI [1])
Item Group
Mother
C0026591 (UMLS CUI-1)
last name
Item
Last name
text
C1301584 (UMLS CUI [1])
first name
Item
First name
text
C1443235 (UMLS CUI [1])
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
confession
Item
Confession
text
C0681202 (UMLS CUI [1])
address
Item
Address
text
C1442065 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
telephone number
Item
Telephone number
text
C1515258 (UMLS CUI [1])
mobile phone number
Item
Mobile phone number
text
C3273868 (UMLS CUI [1])
email address/fax
Item
Email address/Fax
text
C1705961 (UMLS CUI [1])
C1549619 (UMLS CUI [2])
occupation
Item
Occupation
text
C0028811 (UMLS CUI [1])
Item
Occupation details
integer
C0682295 (UMLS CUI [1])
Code List
Occupation details
CL Item
full-time job (1)
CL Item
part time job (2)
CL Item
unemployed (3)
Item
Nationality
integer
C0027473 (UMLS CUI [1])
Code List
Nationality
CL Item
german (1)
CL Item
other (2)
if other nationality, please specify
Item
if other nationality, please specify
text
C0027473 (UMLS CUI [1])
Item Group
Living arrangement
C1563343 (UMLS CUI-1)
Item
Language spoken at home
integer
C0442519 (UMLS CUI [1,1])
C0023008 (UMLS CUI [1,2])
Code List
Language spoken at home
CL Item
German (1)
CL Item
other languages (2)
specify language spoken at home
Item
specify language spoken at home
text
C0442519 (UMLS CUI [1,1])
C0023008 (UMLS CUI [1,2])
Translator
Item
Translator needed
boolean
C0402036 (UMLS CUI [1])
Item
Parents
integer
C0030551 (UMLS CUI [1,1])
C0024819 (UMLS CUI [1,2])
CL Item
living together (1)
CL Item
living apart/divorced since: (2)
CL Item
widowed since: (3)
CL Item
never lived together (4)
divorced, widowed since
Item
divorced, widowed since
date
C0012828 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0206275 (UMLS CUI [2,1])
C0011008 (UMLS CUI [2,2])
Item
childs living at
integer
C0023913 (UMLS CUI [1,1])
C0008059 (UMLS CUI [1,2])
Code List
childs living at
CL Item
biological parents (1)
CL Item
biological mother (2)
CL Item
biological father (3)
CL Item
biological mother and her partner (4)
CL Item
biological father and his partner (5)
CL Item
adoptive parents (6)
CL Item
foster parents (7)
CL Item
grandparents or other relatives (8)
CL Item
foster home (9)
Item Group
Sibling
C0037047 (UMLS CUI-1)
sibling name
Item
Last name
text
C1301584 (UMLS CUI [1])
sibling first name
Item
First name
text
C1443235 (UMLS CUI [1])
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
Characteristics
Item
Characteristics
text
C1521970 (UMLS CUI [1])
Item Group
Medical history
C0262926 (UMLS CUI-1)
any characterics of pregnancy, birth or child development connected to present illness
Item
any characterics of pregnancy, birth or child development connected to present illness
text
C1521970 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C1521970 (UMLS CUI [1,3])
C0005615 (UMLS CUI [1,4])
C1521970 (UMLS CUI [2,1])
C0008071 (UMLS CUI [2,2])
Primary disease
Item
Primary disease
text
C0277554 (UMLS CUI [1])
Date of first diagnosis
Item
Date of first diagnosis
date
C2316983 (UMLS CUI [1])
other illness
Item
Further Illnesses
text
C3843746 (UMLS CUI [1])
progressive disease
Item
Progressive disease
boolean
C1335499 (UMLS CUI [1])
Complications or surgery
Item
Complications or surgery
text
C0009566 (UMLS CUI [1])
C0543467 (UMLS CUI [2])
Hypersensitivities
Item
Hypersensitivities
text
C0020517 (UMLS CUI [1])
Item
Patient transfered by
integer
C0030704 (UMLS CUI [1])
Code List
Patient transfered by
CL Item
pediatric clinic (1)
CL Item
outpatient care service (2)
CL Item
pediatric doctor (3)
CL Item
family doctor (4)
CL Item
self-admittance (5)
CL Item
hospice (6)
Date of consent discussion
Item
When?
date
C0515995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
consent discussion investigator
Item
Who did the interview?
text
C0515995 (UMLS CUI [1,1])
C0021821 (UMLS CUI [1,2])
consent discussion topic
Item
What was the interview's topic?
text
C0515995 (UMLS CUI [1,1])
C1706203 (UMLS CUI [1,2])
childrens symptoms
Item
Which symptoms of the child should be eased?
text
C3824891 (UMLS CUI [1])
support for parents
Item
Whereby do you as parents need help by the palliative team?
text
C0150232 (UMLS CUI [1])
Item Group
Nursing support
C0344211 (UMLS CUI-1)
Item
Nursing insurance
integer
C0021690 (UMLS CUI [1])
Code List
Nursing insurance
CL Item
none (1)
CL Item
Level of care 1, applied (2)
CL Item
Level of care 1, granted (3)
CL Item
Level of care 2, applied (4)
CL Item
Level of care 2, granted (5)
CL Item
Level of care 3, applied (6)
CL Item
Level of care 3, granted (7)
CL Item
hardship case (8)
severe disability identity card
Item
Severe disability identity card
boolean
C0424990 (UMLS CUI [1])
Disability evaluation
Item
Disability evaluation
integer
C0012605 (UMLS CUI [1])
Outpatient children care
Item
Outpatient children care
boolean
C3826748 (UMLS CUI [1])
Outpatient children care hours per week
Item
hours per week
integer
C3826748 (UMLS CUI [1,1])
C0556976 (UMLS CUI [1,2])
treatment care
Item
treatment care
boolean
C0011017 (UMLS CUI [1])
basic care
Item
basic care
boolean
C0509072 (UMLS CUI [1])
integration support
Item
integration support
boolean
C0344211 (UMLS CUI [1,1])
C0597478 (UMLS CUI [1,2])
family support
Item
family support
boolean
C0150232 (UMLS CUI [1])
outpatient children hospice
Item
outpatient children hospice
boolean
C3826577 (UMLS CUI [1,1])
C0557533 (UMLS CUI [1,2])
outpatient children hospice hours per week
Item
hours per week
integer
C3826577 (UMLS CUI [1,1])
C0557533 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,3])
other support
Item
other support
boolean
C0150232 (UMLS CUI [1])
C0557464 (UMLS CUI [2])
other support hours per week
Item
hours per week
integer
C0150232 (UMLS CUI [1,1])
C0556976 (UMLS CUI [1,2])
C0557464 (UMLS CUI [2,1])
C0556976 (UMLS CUI [2,2])
Item Group
Support device
C0183683 (UMLS CUI-1)
nursing bed
Item
nursing bed
boolean
C0336603 (UMLS CUI [1])
Item
ownership
integer
C0336603 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
nursing bed loan
Item
loan from
text
C0336603 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
wheelchair
Item
wheelchair
boolean
C0043143 (UMLS CUI [1])
Item
ownership
integer
C0043143 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
Item
loan
text
C0043143 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
Code List
loan
CL Item
ownership (1)
CL Item
loan (2)
walker
Item
walker
boolean
C0043016 (UMLS CUI [1])
Item
ownership
integer
C0043016 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
walker loan
Item
loan
text
C0043016 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
positioning aids
Item
Positioning aids
boolean
C0182347 (UMLS CUI [1])
Item
ownership
integer
C0182347 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
positioning aids loan
Item
loan
text
C0182347 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
Feeding pump
Item
Feeding pump
boolean
C2317149 (UMLS CUI [1])
Item
ownership
integer
C2317149 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
Feeding pump loan
Item
loan
text
C2317149 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
pca
Item
PCA pump
boolean
C0078944 (UMLS CUI [1])
Item
ownership
integer
C0078944 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
pca loan
Item
loan
text
C0078944 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
infusion pump
Item
C0021436
boolean
C0021436 (UMLS CUI [1])
Item
ownership
integer
C0021436 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
infusion pump loan
Item
loan
text
C0021436 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
suction device
Item
suction device
boolean
C0038638 (UMLS CUI [1])
Item
ownership
integer
C0038638 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
suction device loan
Item
loan
text
C0038638 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
Pulse oximeter
Item
Pulse oximeter
boolean
C0182109 (UMLS CUI [1])
Item
ownership
integer
C0182109 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
Pulse oximeter loan
Item
loan
text
C0182109 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
oxygen cylinder
Item
oxygen cylinder
boolean
C0182124 (UMLS CUI [1])
Item
ownership
integer
C0182124 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
oxygen cylinder loan
Item
loan
text
C0182124 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
oxygen concentrator
Item
oxygen concentrator
boolean
C0182123 (UMLS CUI [1])
Item
ownership
integer
C0182123 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
CL Item
ownership (1)
CL Item
loan (2)
oxygen concentrator loan
Item
loan
text
C0182123 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
Ventilation assist device
Item
Ventilation assist device
boolean
C0554804 (UMLS CUI [1])
Item
ownership
integer
C0554804 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
CL Item
ownership (1)
CL Item
loan (2)
Ventilation assist device loan
Item
loan
text
C0554804 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
commode
Item
commode
boolean
C1140607 (UMLS CUI [1])
Item
ownership
integer
C1140607 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
commode loan
Item
loan
text
C1140607 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
bathtub lifter
Item
bathtub lifter
boolean
C3877143 (UMLS CUI [1,1])
C0336751 (UMLS CUI [1,2])
Item
ownership
integer
C3877143 (UMLS CUI [1,1])
C0336751 (UMLS CUI [1,2])
C0029981 (UMLS CUI [1,3])
Code List
ownership
CL Item
ownership (1)
CL Item
loan (2)
bathtub lifter loan
Item
loan
text
C3877143 (UMLS CUI [1,1])
C0336751 (UMLS CUI [1,2])
C1555585 (UMLS CUI [1,3])
Item Group
Personal aids
glasses
Item
glasses
boolean
C0015421 (UMLS CUI [1])
braces, lose
Item
braces, lose
boolean
C0743050 (UMLS CUI [1])
dental splint
Item
dental splint
boolean
C0441335 (UMLS CUI [1])
palatal plate
Item
palatal plate
boolean
C1139930 (UMLS CUI [1,1])
C0700374 (UMLS CUI [1,2])
contact lenses
Item
contact lenses
boolean
C0009836 (UMLS CUI [1])
prosthesis
Item
prosthesis
boolean
C0175649 (UMLS CUI [1])
walking aids
Item
walking aids
boolean
C0557834 (UMLS CUI [1])
hearing aids
Item
hearing aids
boolean
C0018768 (UMLS CUI [1])
braces, fixed
Item
braces, fixed
boolean
C0743050 (UMLS CUI [1])
corset
Item
corset
boolean
C3665309 (UMLS CUI [1])
seat
Item
seat
boolean
C0438917 (UMLS CUI [1])
Item Group
School, Kindergarten, workshop
C0876933 (UMLS CUI-1)
C0036375 (UMLS CUI-2)
C0677507 (UMLS CUI-3)
regular kindergarten
Item
regular kindergarten
boolean
C0876933 (UMLS CUI [1])
integrative kindergarten
Item
integrative kindergarten
boolean
therapeutic-educational kindergarten
Item
therapeutic-educational kindergarten
boolean
regular school
Item
regular school
boolean
C0557305 (UMLS CUI [1])
integration class
Item
integration class
boolean
C0036375 (UMLS CUI [1,1])
C0597478 (UMLS CUI [1,2])
school for children with learning difficulties
Item
school for children with learning difficulties
boolean
C0418934 (UMLS CUI [1,1])
C0424939 (UMLS CUI [1,2])
school for mentally disabled children
Item
school for mentally disabled children
boolean
C0418934 (UMLS CUI [1,1])
C0079822 (UMLS CUI [1,2])
school for physically disabled children
Item
school for physically disabled children
boolean
C0418934 (UMLS CUI [1,1])
C0086807 (UMLS CUI [1,2])
school for physically and mentally disabled children
Item
school for physically and mentally disabled children
boolean
C0418934 (UMLS CUI [1,1])
C0086807 (UMLS CUI [1,2])
C0079822 (UMLS CUI [1,3])
home schooling
Item
home schooling
boolean
C0870657 (UMLS CUI [1])
sheltered workshop
Item
sheltered workshop
boolean
C0036951 (UMLS CUI [1])
driving service from and to facility
Item
driving service from and to facility
boolean
C1556026 (UMLS CUI [1])
need for escort to facility
Item
need for escort to facility
boolean
C1547632 (UMLS CUI [1])
escort person or institution
Item
escort person or institution
text
C0030689 (UMLS CUI [1])
aids in facility
Item
aids in facility and if yes, which:
text
C1547538 (UMLS CUI [1])
issues in education
Item
issues in education
text
C0013622 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
Item Group
Therapies in school, kindergarten, workshop
C0087111 (UMLS CUI-1)
physical therapy
Item
physical therapy
boolean
C0949766 (UMLS CUI [1])
special education
Item
special education
boolean
C0013649 (UMLS CUI [1])
ergotherapy
Item
ergotherapy
boolean
C1141969 (UMLS CUI [1])
motion therapy
Item
motion therapy
boolean
C0026604 (UMLS CUI [1])
speech therapy
Item
speech therapy
boolean
C0037831 (UMLS CUI [1])
music therapy
Item
music therapy
boolean
C0026868 (UMLS CUI [1])
Item Group
Which medications does your child use?
C0013227 (UMLS CUI-1)
pharmaceutical preparation
Item
pharmaceutical preparation
text
C0013227 (UMLS CUI [1])
medication dose
Item
medication dose
text
C3174092 (UMLS CUI [1])
Item
administration form
integer
C0013153 (UMLS CUI [1])
Code List
administration form
CL Item
tablet (1)
CL Item
suppository (2)
CL Item
drop (3)
CL Item
hub (4)
medication frequency
Item
How often a day? As required?
text
C2826654 (UMLS CUI [1])
indication
Item
indication
text
C3146298 (UMLS CUI [1])
C0013216 (UMLS CUI [2,1])
C1948053 (UMLS CUI [2,2])
Item
How effective?
integer
C0087113 (UMLS CUI [1])
Code List
How effective?
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Item Group
Which medications did your child use in the past?
C0262926 (UMLS CUI-1)
C0013227 (UMLS CUI-2)
pharmaceutical preparation
Item
pharmaceutical preparation
text
C0013227 (UMLS CUI [1])
medication dose
Item
medication dose
text
C3174092 (UMLS CUI [1])
Item
administration form
integer
C0013153 (UMLS CUI [1])
Code List
administration form
CL Item
tablet (1)
CL Item
suppository (2)
CL Item
drop (3)
CL Item
hub (4)
medication frequency
Item
How often a day? As required?
text
C2826654 (UMLS CUI [1])
indication
Item
indication
text
C3146298 (UMLS CUI [1])
C0013216 (UMLS CUI [2,1])
C1948053 (UMLS CUI [2,2])
Item
How effective?
integer
C0087113 (UMLS CUI [1])
Code List
How effective?
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Item Group
Therapy
C0087111 (UMLS CUI-1)
no therapy
Item
none
boolean
C0746919 (UMLS CUI [1])
speech therapy
Item
speech therapy
boolean
C0037831 (UMLS CUI [1])
natural therapy
Item
natural therapy
boolean
C0751363 (UMLS CUI [1])
early intervention
Item
early intervention
boolean
C0242687 (UMLS CUI [1])
physical therapy
Item
physical therapy
boolean
C0949766 (UMLS CUI [1])
art therapy
Item
art therapy
boolean
C0003827 (UMLS CUI [1])
psychotherapy
Item
psychotherapy
boolean
C0033968 (UMLS CUI [1])
music therapy
Item
music therapy
boolean
C0026868 (UMLS CUI [1])
Item Group
Nutrition
C0600072 (UMLS CUI-1)
Item
oral nutrition
integer
C2223915 (UMLS CUI [1])
Code List
oral nutrition
CL Item
yes (1)
CL Item
no (2)
CL Item
partially (3)
normal diet
Item
normal diet
boolean
C0184625 (UMLS CUI [1])
enteral feeding
Item
enteral feeding
boolean
C0086225 (UMLS CUI [1])
strained foods
Item
strained foods
boolean
C3714301 (UMLS CUI [1])
special diet
Item
special diet
boolean
C3164710 (UMLS CUI [1])
parenteral feeding
Item
parenteral feeding
boolean
C0030547 (UMLS CUI [1])
nutrition trade name
Item
nutrition trade name
text
C0016452 (UMLS CUI [1,1])
C0592503 (UMLS CUI [1,2])
drinking and eating characteristics
Item
drinking and eating characteristics
text
C1521970 (UMLS CUI [1,1])
C0559899 (UMLS CUI [1,2])
Item Group
Is your child able to control Urine/Stool?
C0449307 (UMLS CUI-1)
Item
Urine
integer
C0542565 (UMLS CUI [1])
Code List
Urine
CL Item
yes  (1)
CL Item
no (2)
CL Item
partially (3)
Item
Stool
integer
C1290944 (UMLS CUI [1])
Code List
Stool
CL Item
yes (1)
CL Item
no (2)
CL Item
partially (3)
Item Group
Catheters and drainages
C0085590 (UMLS CUI-1)
gastric tube
Item
gastric tube
boolean
C1546658 (UMLS CUI [1])
tracheal tube
Item
tracheal tube
boolean
C1260970 (UMLS CUI [1])
peg
Item
peg
boolean
C0176751 (UMLS CUI [1])
Shunt/Ommaya
Item
Shunt/Ommaya
boolean
C0542331 (UMLS CUI [1])
C1289878 (UMLS CUI [2])
pej
Item
pej
boolean
C0176813 (UMLS CUI [1])
urinary catheter
Item
urinary catheter
boolean
C0179802 (UMLS CUI [1])
cvc
Item
cvc
boolean
C1145640 (UMLS CUI [1])
anus praeter
Item
anus praeter
boolean
C1611169 (UMLS CUI [1])
pacemaker
Item
pacemaker
boolean
C0030163 (UMLS CUI [1])
Item Group
Other
motor skills
Item
Which motor skills does your child have? (e.g. free walking)
text
C0026612 (UMLS CUI [1])
communication skills
Item
Is your child able to see, hear and talk? How do you communicate? Does your child use communication aids?
text
C0870313 (UMLS CUI [1])
therapeutic support
Item
Do you receive therapeutic or mental-spiritual support at the moment?
text
C0344211 (UMLS CUI [1])
comment
Item
Is there anything you want to tell us?
text
C0947611 (UMLS CUI [1])

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