last name
Item
Name
text
C1301584 (UMLS CUI [1])
first name
Item
Vorname
text
C1443235 (UMLS CUI [1])
Item
Gender
integer
C0079399 (UMLS CUI [1])
religion
Item
Religion
text
C0035039 (UMLS CUI [1])
Patient adress
Item
Patient adress
text
C0421449 (UMLS CUI [1])
characteristics
Item
Characteristics
text
C1521970 (UMLS CUI [1])
school/occupations
Item
School/Occupations
text
C0036375 (UMLS CUI [1])
C0028811 (UMLS CUI [2])
body weight
Item
Body Weight
integer
C0005910 (UMLS CUI [1])
Body Height
Item
Body Height
integer
C0005890 (UMLS CUI [1])
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
Nationality
Item
Nationality
text
C0027473 (UMLS CUI [1])
Health insurance
Item
Health insurance
text
C0021682 (UMLS CUI [1])
insurance id
Item
Insurance ID
text
C1547687 (UMLS CUI [1])
Patients insurance ID
Item
Patients insurance ID
text
C1269815 (UMLS CUI [1,1])
C0021672 (UMLS CUI [1,2])
Item
entitled to custody
integer
C0680610 (UMLS CUI [1])
Code List
entitled to custody
specify person entitled to custody
Item
specify person entitled to custody
text
C0680610 (UMLS CUI [1])
last name
Item
Last name
text
C1301584 (UMLS CUI [1])
first name
Item
First name
text
C1443235 (UMLS CUI [1])
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
confession
Item
Confession
text
C0681202 (UMLS CUI [1])
address
Item
Address
text
C1442065 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
telephone number
Item
Telephone number
text
C1515258 (UMLS CUI [1])
mobile phone number
Item
Mobile phone number
text
C3273868 (UMLS CUI [1])
email address/fax
Item
Email address/Fax
text
C1705961 (UMLS CUI [1])
C1549619 (UMLS CUI [2])
occupation
Item
Occupation
text
C0028811 (UMLS CUI [1])
Item
Occupation details
integer
C0682295 (UMLS CUI [1])
Code List
Occupation details
CL Item
full-time job (1)
CL Item
part time job (2)
Item
Nationality
integer
C0027473 (UMLS CUI [1])
if other nationality, please specify
Item
if other nationality, please specify
text
C0027473 (UMLS CUI [1])
last name
Item
Last name
text
C1301584 (UMLS CUI [1])
first name
Item
First name
text
C1443235 (UMLS CUI [1])
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
confession
Item
Confession
text
C0681202 (UMLS CUI [1])
address
Item
Address
text
C1442065 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
telephone number
Item
Telephone number
text
C1515258 (UMLS CUI [1])
mobile phone number
Item
Mobile phone number
text
C3273868 (UMLS CUI [1])
email address/fax
Item
Email address/Fax
text
C1705961 (UMLS CUI [1])
C1549619 (UMLS CUI [2])
occupation
Item
Occupation
text
C0028811 (UMLS CUI [1])
Item
Occupation details
integer
C0682295 (UMLS CUI [1])
Code List
Occupation details
CL Item
full-time job (1)
CL Item
part time job (2)
Item
Nationality
integer
C0027473 (UMLS CUI [1])
if other nationality, please specify
Item
if other nationality, please specify
text
C0027473 (UMLS CUI [1])
Item
Language spoken at home
integer
C0442519 (UMLS CUI [1,1])
C0023008 (UMLS CUI [1,2])
Code List
Language spoken at home
CL Item
other languages (2)
specify language spoken at home
Item
specify language spoken at home
text
C0442519 (UMLS CUI [1,1])
C0023008 (UMLS CUI [1,2])
Translator
Item
Translator needed
boolean
C0402036 (UMLS CUI [1])
Item
Parents
integer
C0030551 (UMLS CUI [1,1])
C0024819 (UMLS CUI [1,2])
CL Item
living together (1)
CL Item
living apart/divorced since: (2)
CL Item
widowed since: (3)
CL Item
never lived together (4)
divorced, widowed since
Item
divorced, widowed since
date
C0012828 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0206275 (UMLS CUI [2,1])
C0011008 (UMLS CUI [2,2])
Item
childs living at
integer
C0023913 (UMLS CUI [1,1])
C0008059 (UMLS CUI [1,2])
Code List
childs living at
CL Item
biological parents (1)
CL Item
biological mother (2)
CL Item
biological father (3)
CL Item
biological mother and her partner (4)
CL Item
biological father and his partner (5)
CL Item
adoptive parents (6)
CL Item
foster parents (7)
CL Item
grandparents or other relatives (8)
any characterics of pregnancy, birth or child development connected to present illness
Item
any characterics of pregnancy, birth or child development connected to present illness
text
C1521970 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C1521970 (UMLS CUI [1,3])
C0005615 (UMLS CUI [1,4])
C1521970 (UMLS CUI [2,1])
C0008071 (UMLS CUI [2,2])
Primary disease
Item
Primary disease
text
C0277554 (UMLS CUI [1])
Date of first diagnosis
Item
Date of first diagnosis
date
C2316983 (UMLS CUI [1])
other illness
Item
Further Illnesses
text
C3843746 (UMLS CUI [1])
progressive disease
Item
Progressive disease
boolean
C1335499 (UMLS CUI [1])
Complications or surgery
Item
Complications or surgery
text
C0009566 (UMLS CUI [1])
C0543467 (UMLS CUI [2])
Hypersensitivities
Item
Hypersensitivities
text
C0020517 (UMLS CUI [1])
Item
Patient transfered by
integer
C0030704 (UMLS CUI [1])
Code List
Patient transfered by
CL Item
pediatric clinic (1)
CL Item
outpatient care service (2)
CL Item
pediatric doctor (3)
CL Item
family doctor (4)
CL Item
self-admittance (5)
Date of consent discussion
Item
When?
date
C0515995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
consent discussion investigator
Item
Who did the interview?
text
C0515995 (UMLS CUI [1,1])
C0021821 (UMLS CUI [1,2])
consent discussion topic
Item
What was the interview's topic?
text
C0515995 (UMLS CUI [1,1])
C1706203 (UMLS CUI [1,2])
childrens symptoms
Item
Which symptoms of the child should be eased?
text
C3824891 (UMLS CUI [1])
support for parents
Item
Whereby do you as parents need help by the palliative team?
text
C0150232 (UMLS CUI [1])
Item
Nursing insurance
integer
C0021690 (UMLS CUI [1])
Code List
Nursing insurance
CL Item
Level of care 1, applied (2)
CL Item
Level of care 1, granted (3)
CL Item
Level of care 2, applied (4)
CL Item
Level of care 2, granted (5)
CL Item
Level of care 3, applied (6)
CL Item
Level of care 3, granted (7)
CL Item
hardship case (8)
severe disability identity card
Item
Severe disability identity card
boolean
C0424990 (UMLS CUI [1])
Disability evaluation
Item
Disability evaluation
integer
C0012605 (UMLS CUI [1])
Outpatient children care
Item
Outpatient children care
boolean
C3826748 (UMLS CUI [1])
Outpatient children care hours per week
Item
hours per week
integer
C3826748 (UMLS CUI [1,1])
C0556976 (UMLS CUI [1,2])
treatment care
Item
treatment care
boolean
C0011017 (UMLS CUI [1])
basic care
Item
basic care
boolean
C0509072 (UMLS CUI [1])
integration support
Item
integration support
boolean
C0344211 (UMLS CUI [1,1])
C0597478 (UMLS CUI [1,2])
family support
Item
family support
boolean
C0150232 (UMLS CUI [1])
outpatient children hospice
Item
outpatient children hospice
boolean
C3826577 (UMLS CUI [1,1])
C0557533 (UMLS CUI [1,2])
outpatient children hospice hours per week
Item
hours per week
integer
C3826577 (UMLS CUI [1,1])
C0557533 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,3])
other support
Item
other support
boolean
C0150232 (UMLS CUI [1])
C0557464 (UMLS CUI [2])
other support hours per week
Item
hours per week
integer
C0150232 (UMLS CUI [1,1])
C0556976 (UMLS CUI [1,2])
C0557464 (UMLS CUI [2,1])
C0556976 (UMLS CUI [2,2])
nursing bed
Item
nursing bed
boolean
C0336603 (UMLS CUI [1])
Item
ownership
integer
C0336603 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
nursing bed loan
Item
loan from
text
C0336603 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
wheelchair
Item
wheelchair
boolean
C0043143 (UMLS CUI [1])
Item
ownership
integer
C0043143 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Item
loan
text
C0043143 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
walker
Item
walker
boolean
C0043016 (UMLS CUI [1])
Item
ownership
integer
C0043016 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
walker loan
Item
loan
text
C0043016 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
positioning aids
Item
Positioning aids
boolean
C0182347 (UMLS CUI [1])
Item
ownership
integer
C0182347 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
positioning aids loan
Item
loan
text
C0182347 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
Feeding pump
Item
Feeding pump
boolean
C2317149 (UMLS CUI [1])
Item
ownership
integer
C2317149 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Feeding pump loan
Item
loan
text
C2317149 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
pca
Item
PCA pump
boolean
C0078944 (UMLS CUI [1])
Item
ownership
integer
C0078944 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
pca loan
Item
loan
text
C0078944 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
infusion pump
Item
C0021436
boolean
C0021436 (UMLS CUI [1])
Item
ownership
integer
C0021436 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
infusion pump loan
Item
loan
text
C0021436 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
suction device
Item
suction device
boolean
C0038638 (UMLS CUI [1])
Item
ownership
integer
C0038638 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
suction device loan
Item
loan
text
C0038638 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
Pulse oximeter
Item
Pulse oximeter
boolean
C0182109 (UMLS CUI [1])
Item
ownership
integer
C0182109 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Pulse oximeter loan
Item
loan
text
C0182109 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
oxygen cylinder
Item
oxygen cylinder
boolean
C0182124 (UMLS CUI [1])
Item
ownership
integer
C0182124 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
oxygen cylinder loan
Item
loan
text
C0182124 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
oxygen concentrator
Item
oxygen concentrator
boolean
C0182123 (UMLS CUI [1])
Item
ownership
integer
C0182123 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
oxygen concentrator loan
Item
loan
text
C0182123 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
Ventilation assist device
Item
Ventilation assist device
boolean
C0554804 (UMLS CUI [1])
Item
ownership
integer
C0554804 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
Ventilation assist device loan
Item
loan
text
C0554804 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
commode
Item
commode
boolean
C1140607 (UMLS CUI [1])
Item
ownership
integer
C1140607 (UMLS CUI [1,1])
C0029981 (UMLS CUI [1,2])
commode loan
Item
loan
text
C1140607 (UMLS CUI [1,1])
C1555585 (UMLS CUI [1,2])
bathtub lifter
Item
bathtub lifter
boolean
C3877143 (UMLS CUI [1,1])
C0336751 (UMLS CUI [1,2])
Item
ownership
integer
C3877143 (UMLS CUI [1,1])
C0336751 (UMLS CUI [1,2])
C0029981 (UMLS CUI [1,3])
bathtub lifter loan
Item
loan
text
C3877143 (UMLS CUI [1,1])
C0336751 (UMLS CUI [1,2])
C1555585 (UMLS CUI [1,3])
glasses
Item
glasses
boolean
C0015421 (UMLS CUI [1])
braces, lose
Item
braces, lose
boolean
C0743050 (UMLS CUI [1])
dental splint
Item
dental splint
boolean
C0441335 (UMLS CUI [1])
palatal plate
Item
palatal plate
boolean
C1139930 (UMLS CUI [1,1])
C0700374 (UMLS CUI [1,2])
contact lenses
Item
contact lenses
boolean
C0009836 (UMLS CUI [1])
prosthesis
Item
prosthesis
boolean
C0175649 (UMLS CUI [1])
walking aids
Item
walking aids
boolean
C0557834 (UMLS CUI [1])
hearing aids
Item
hearing aids
boolean
C0018768 (UMLS CUI [1])
braces, fixed
Item
braces, fixed
boolean
C0743050 (UMLS CUI [1])
corset
Item
corset
boolean
C3665309 (UMLS CUI [1])
seat
Item
seat
boolean
C0438917 (UMLS CUI [1])
regular kindergarten
Item
regular kindergarten
boolean
C0876933 (UMLS CUI [1])
integrative kindergarten
Item
integrative kindergarten
boolean
therapeutic-educational kindergarten
Item
therapeutic-educational kindergarten
boolean
regular school
Item
regular school
boolean
C0557305 (UMLS CUI [1])
integration class
Item
integration class
boolean
C0036375 (UMLS CUI [1,1])
C0597478 (UMLS CUI [1,2])
school for children with learning difficulties
Item
school for children with learning difficulties
boolean
C0418934 (UMLS CUI [1,1])
C0424939 (UMLS CUI [1,2])
school for mentally disabled children
Item
school for mentally disabled children
boolean
C0418934 (UMLS CUI [1,1])
C0079822 (UMLS CUI [1,2])
school for physically disabled children
Item
school for physically disabled children
boolean
C0418934 (UMLS CUI [1,1])
C0086807 (UMLS CUI [1,2])
school for physically and mentally disabled children
Item
school for physically and mentally disabled children
boolean
C0418934 (UMLS CUI [1,1])
C0086807 (UMLS CUI [1,2])
C0079822 (UMLS CUI [1,3])
home schooling
Item
home schooling
boolean
C0870657 (UMLS CUI [1])
sheltered workshop
Item
sheltered workshop
boolean
C0036951 (UMLS CUI [1])
driving service from and to facility
Item
driving service from and to facility
boolean
C1556026 (UMLS CUI [1])
need for escort to facility
Item
need for escort to facility
boolean
C1547632 (UMLS CUI [1])
escort person or institution
Item
escort person or institution
text
C0030689 (UMLS CUI [1])
aids in facility
Item
aids in facility and if yes, which:
text
C1547538 (UMLS CUI [1])
issues in education
Item
issues in education
text
C0013622 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
pharmaceutical preparation
Item
pharmaceutical preparation
text
C0013227 (UMLS CUI [1])
medication dose
Item
medication dose
text
C3174092 (UMLS CUI [1])
Item
administration form
integer
C0013153 (UMLS CUI [1])
Code List
administration form
medication frequency
Item
How often a day? As required?
text
C2826654 (UMLS CUI [1])
indication
Item
indication
text
C3146298 (UMLS CUI [1])
C0013216 (UMLS CUI [2,1])
C1948053 (UMLS CUI [2,2])
Item
How effective?
integer
C0087113 (UMLS CUI [1])
pharmaceutical preparation
Item
pharmaceutical preparation
text
C0013227 (UMLS CUI [1])
medication dose
Item
medication dose
text
C3174092 (UMLS CUI [1])
Item
administration form
integer
C0013153 (UMLS CUI [1])
Code List
administration form
medication frequency
Item
How often a day? As required?
text
C2826654 (UMLS CUI [1])
indication
Item
indication
text
C3146298 (UMLS CUI [1])
C0013216 (UMLS CUI [2,1])
C1948053 (UMLS CUI [2,2])
Item
How effective?
integer
C0087113 (UMLS CUI [1])
Item
oral nutrition
integer
C2223915 (UMLS CUI [1])
normal diet
Item
normal diet
boolean
C0184625 (UMLS CUI [1])
enteral feeding
Item
enteral feeding
boolean
C0086225 (UMLS CUI [1])
strained foods
Item
strained foods
boolean
C3714301 (UMLS CUI [1])
special diet
Item
special diet
boolean
C3164710 (UMLS CUI [1])
parenteral feeding
Item
parenteral feeding
boolean
C0030547 (UMLS CUI [1])
nutrition trade name
Item
nutrition trade name
text
C0016452 (UMLS CUI [1,1])
C0592503 (UMLS CUI [1,2])
drinking and eating characteristics
Item
drinking and eating characteristics
text
C1521970 (UMLS CUI [1,1])
C0559899 (UMLS CUI [1,2])
gastric tube
Item
gastric tube
boolean
C1546658 (UMLS CUI [1])
tracheal tube
Item
tracheal tube
boolean
C1260970 (UMLS CUI [1])
peg
Item
peg
boolean
C0176751 (UMLS CUI [1])
Shunt/Ommaya
Item
Shunt/Ommaya
boolean
C0542331 (UMLS CUI [1])
C1289878 (UMLS CUI [2])
pej
Item
pej
boolean
C0176813 (UMLS CUI [1])
urinary catheter
Item
urinary catheter
boolean
C0179802 (UMLS CUI [1])
cvc
Item
cvc
boolean
C1145640 (UMLS CUI [1])
anus praeter
Item
anus praeter
boolean
C1611169 (UMLS CUI [1])
pacemaker
Item
pacemaker
boolean
C0030163 (UMLS CUI [1])
motor skills
Item
Which motor skills does your child have? (e.g. free walking)
text
C0026612 (UMLS CUI [1])
communication skills
Item
Is your child able to see, hear and talk? How do you communicate? Does your child use communication aids?
text
C0870313 (UMLS CUI [1])
therapeutic support
Item
Do you receive therapeutic or mental-spiritual support at the moment?
text
C0344211 (UMLS CUI [1])
comment
Item
Is there anything you want to tell us?
text
C0947611 (UMLS CUI [1])