ID

14706

Descripción

The Self Evaluation plus Medication Survey is a self-administered instrument which was developed from the questionnaires used in the Collaborative Association Study of Psoriasis (CASP), which is a Genetic Association Information Network (GAIN) genome-wide association study (GWAS). The Self Evaluation plus Medication Survey collects information on individuals with psoriasis and controls, and their family history of psoriasis and other autoimmune diseases. Additionally, for individuals with psoriasis the questionnaire collects information regarding their symptoms and medication use and its effectiveness. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

Link

https://cde.nlm.nih.gov

Palabras clave

Versiones (2)
  1. 26/4/16 26/4/16 -
  2. 26/4/16 26/4/16 -
Subido en

26 de abril de 2016

DOI

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Licencia

Creative Commons BY-NC 3.0
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Personal and Family History of Psoriasis Protocol PhenX Toolkit

Inglés

Personal and Family History of Psoriasis Protocol PhenX Toolkit

1 formularios  
PhenX - personal and family history of psoriasis protocol
Descripción

PhenX - personal and family history of psoriasis protocol

Alias
UMLS CUI-1
C3171906
Age of onset of symptoms
Descripción

Age of onset

Tipo de datos

integer

Alias
UMLS CUI [1]
C0206132
Age at diagnosis?
Descripción

age at diagnosis

Tipo de datos

integer

Alias
UMLS CUI [1]
C1828181
Is the physician who diagnosed you a dermatologist:
Descripción

psoriasis physician dermatologist

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0033860
UMLS CUI [1,2]
C0011900
UMLS CUI [1,3]
C0259831
Name of your current dermatologist
Descripción

dermatologist name

Tipo de datos

text

Alias
UMLS CUI [1]
C3260204
Have you been told by a rheumatologist that you have psoriatic arthritis?
Descripción

psoriatic arthritis told by rheumatologist

Tipo de datos

boolean

Alias
UMLS CUI [1]
C3258937
Have you been diagnosed with Crohn's disease or another inflammatory bowel disorder?
Descripción

Crohns disease

Tipo de datos

integer

Alias
UMLS CUI [1]
C0010346
UMLS CUI [2]
C0021390
Diagnosis
Descripción

diagnosis

Tipo de datos

text

Alias
UMLS CUI [1]
C0011900
Date of diagnosis?
Descripción

date of diagnosis

Tipo de datos

date

Alias
UMLS CUI [1]
C2316983
Have you been diagnosed with any type of autoimmune disease (lupus, scleroderma, etc.)?
Descripción

autoimmune disease

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0004364
Do you have any blood relatives affected with psoriasis?
Descripción

psoriasis family history

Tipo de datos

boolean

Alias
UMLS CUI [1]
C3258940
Do you have any blood relatives with inflammatory bowel disease?
Descripción

inflammatory bowel disease family history

Tipo de datos

boolean

Alias
UMLS CUI [1]
C3258941
Do you have any blood relatives with any type of autoimmune disease?
Descripción

autoimmune disease family history

Tipo de datos

integer

Alias
UMLS CUI [1]
C3258942
What color is an average spot of your psoriasis?
Descripción

psoriasis spot color

Tipo de datos

integer

Alias
UMLS CUI [1]
C3258943
How thick is an average spot of your psoriasis?
Descripción

psoriasis spot thickness

Tipo de datos

integer

Alias
UMLS CUI [1]
C3258944
How scaly is an average spot of your psoriasis?
Descripción

psoriasis spot scaly

Tipo de datos

integer

Alias
UMLS CUI [1]
C3258945
Has a dermatologist told you that you have pustular psoriasis?
Descripción

pustular psoriasis

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0152081
Do you have nail psoriasis?
Descripción

nail psoriasis

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0406322
On the drawings below, mark areas of your body affected with psoriasis NOW. Face
Descripción

body psoriasis now

Tipo de datos

text

Alias
UMLS CUI [1]
C3260208
Service comment
Descripción

service comment

Tipo de datos

text

Alias
UMLS CUI [1]
C0485795
On the drawings below, mark areas of your body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Face
Descripción

body psoriasis worst

Tipo de datos

text

Alias
UMLS CUI [1]
C3260210
Things to smoke [PhenX]
Descripción

things to smoke

Tipo de datos

integer

Alias
UMLS CUI [1]
C3258235
How many of the following do you smoke per day?
Descripción

smoke number per day

Tipo de datos

integer

Alias
UMLS CUI [1]
C3694146
Topical Medications (creams, lotions, etc.), Systemic medications (oral medications), Biologicals (injected), Phototherapy
Descripción

psoriasis treatment

Tipo de datos

integer

Alias
UMLS CUI [1]
C3258078
Psoriasis treatment duration [PhenX]
Descripción

psoriasis treatment duration

Tipo de datos

float

Alias
UMLS CUI [1]
C3258079
Psoriasis treatment effectiveness [PhenX]
Descripción

psoriasis treatment effectiveness

Tipo de datos

integer

Alias
UMLS CUI [1]
C3258080
Biologicals (injected) Other, please describe
Descripción

other biologicals

Tipo de datos

text

Alias
UMLS CUI [1]
C3259460
Other systemics [PhenX]
Descripción

other systemics

Tipo de datos

text

Alias
UMLS CUI [1]
C3259461
Other topicals [PhenX]
Descripción

other topicals

Tipo de datos

text

Alias
UMLS CUI [1]
C3259462
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Similar models

Personal and Family History of Psoriasis Protocol PhenX Toolkit

1 formularios
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de datos
Alias
Item Group
PhenX - personal and family history of psoriasis protocol
C3171906 (UMLS CUI-1)
Age of onset
Item
Age of onset of symptoms
integer
C0206132 (UMLS CUI [1])
age at diagnosis
Item
Age at diagnosis?
integer
C1828181 (UMLS CUI [1])
psoriasis physician dermatologist
Item
Is the physician who diagnosed you a dermatologist:
boolean
C0033860 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
C0259831 (UMLS CUI [1,3])
dermatologist name
Item
Name of your current dermatologist
text
C3260204 (UMLS CUI [1])
psoriatic arthritis told by rheumatologist
Item
Have you been told by a rheumatologist that you have psoriatic arthritis?
boolean
C3258937 (UMLS CUI [1])
Item
Have you been diagnosed with Crohn's disease or another inflammatory bowel disorder?
integer
C0010346 (UMLS CUI [1])
C0021390 (UMLS CUI [2])
Crohns disease
Code List
Have you been diagnosed with Crohn's disease or another inflammatory bowel disorder?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Explanation (3)
C0681841 (UMLS CUI-1)
diagnosis
Item
Diagnosis
text
C0011900 (UMLS CUI [1])
date of diagnosis
Item
Date of diagnosis?
date
C2316983 (UMLS CUI [1])
autoimmune disease
Item
Have you been diagnosed with any type of autoimmune disease (lupus, scleroderma, etc.)?
boolean
C0004364 (UMLS CUI [1])
psoriasis family history
Item
Do you have any blood relatives affected with psoriasis?
boolean
C3258940 (UMLS CUI [1])
inflammatory bowel disease family history
Item
Do you have any blood relatives with inflammatory bowel disease?
boolean
C3258941 (UMLS CUI [1])
Item
Do you have any blood relatives with any type of autoimmune disease?
integer
C3258942 (UMLS CUI [1])
Crohns disease
Code List
Do you have any blood relatives with any type of autoimmune disease?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Explanation (3)
C0681841 (UMLS CUI-1)
Item
What color is an average spot of your psoriasis?
integer
C3258943 (UMLS CUI [1])
psoriasis spot color
Code List
What color is an average spot of your psoriasis?
CL Item
0 - no redness  (0)
C3842502 (UMLS CUI-1)
CL Item
1 - slight pink  (1)
C3842501 (UMLS CUI-1)
CL Item
2 - pink  (2)
C3842500 (UMLS CUI-1)
CL Item
3 - red  (3)
C3842499 (UMLS CUI-1)
CL Item
4 - dark red (4)
C3840562 (UMLS CUI-1)
Item
How thick is an average spot of your psoriasis?
integer
C3258944 (UMLS CUI [1])
psoriasis spot thickness
Code List
How thick is an average spot of your psoriasis?
CL Item
0 - no thickness  (1)
C3842498 (UMLS CUI-1)
CL Item
1 - feels firm  (2)
C3842497 (UMLS CUI-1)
CL Item
2 - raised  (3)
C3842496 (UMLS CUI-1)
CL Item
3 - thick (4)
C3842495 (UMLS CUI-1)
CL Item
4 - very thick (5)
C3842494 (UMLS CUI-1)
Item
How scaly is an average spot of your psoriasis?
integer
C3258945 (UMLS CUI [1])
psoriasis spot scaly
Code List
How scaly is an average spot of your psoriasis?
CL Item
0 - no scale  (1)
C3842493 (UMLS CUI-1)
CL Item
1 - slight scale  (2)
C3842492 (UMLS CUI-1)
CL Item
2 - scaly  (3)
C3842491 (UMLS CUI-1)
CL Item
3 - flaky  (4)
C3842490 (UMLS CUI-1)
CL Item
4 - very flaky (5)
C3842489 (UMLS CUI-1)
pustular psoriasis
Item
Has a dermatologist told you that you have pustular psoriasis?
boolean
C0152081 (UMLS CUI [1])
nail psoriasis
Item
Do you have nail psoriasis?
boolean
C0406322 (UMLS CUI [1])
body psoriasis now
Item
On the drawings below, mark areas of your body affected with psoriasis NOW. Face
text
C3260208 (UMLS CUI [1])
service comment
Item
Service comment
text
C0485795 (UMLS CUI [1])
body psoriasis worst
Item
On the drawings below, mark areas of your body affected with psoriasis WHEN IT WAS THE WORST IT HAS EVER BEEN. Face
text
C3260210 (UMLS CUI [1])
Item
Things to smoke [PhenX]
integer
C3258235 (UMLS CUI [1])
things to smoke
Code List
Things to smoke [PhenX]
CL Item
Cigarettes  (1)
C0677453 (UMLS CUI-1)
CL Item
Pipe (2)
C0678447 (UMLS CUI-1)
CL Item
Cigar (3)
C0678446 (UMLS CUI-1)
smoke number per day
Item
How many of the following do you smoke per day?
integer
C3694146 (UMLS CUI [1])
Item
Topical Medications (creams, lotions, etc.), Systemic medications (oral medications), Biologicals (injected), Phototherapy
integer
C3258078 (UMLS CUI [1])
psoriasis treatment
Code List
Topical Medications (creams, lotions, etc.), Systemic medications (oral medications), Biologicals (injected), Phototherapy
CL Item
Dovonex  (1)
C0720029 (UMLS CUI-1)
CL Item
Methotrexate  (2)
C0025677 (UMLS CUI-1)
CL Item
Soriatane  (3)
C0678135 (UMLS CUI-1)
CL Item
Cyclosporine  (4)
C0010592 (UMLS CUI-1)
CL Item
Humira  (5)
C1171255 (UMLS CUI-1)
CL Item
Raptiva (6)
C1320125 (UMLS CUI-1)
CL Item
Amevive  (7)
C1170049 (UMLS CUI-1)
CL Item
Remicade (8)
C0723012 (UMLS CUI-1)
CL Item
PUVA  (9)
C0853073 (UMLS CUI-1)
CL Item
UVB  (10)
C0454530 (UMLS CUI-1)
CL Item
Other topicals  (11)
C3257985 (UMLS CUI-1)
CL Item
Other systemics (12)
C3257981 (UMLS CUI-1)
CL Item
Other biologicals (13)
C3842488 (UMLS CUI-1)
psoriasis treatment duration
Item
Psoriasis treatment duration [PhenX]
float
C3258079 (UMLS CUI [1])
Item
Psoriasis treatment effectiveness [PhenX]
integer
C3258080 (UMLS CUI [1])
psoriasis treatment effectiveness
Code List
Psoriasis treatment effectiveness [PhenX]
CL Item
0 - not effective  (1)
CL Item
1 (2)
CL Item
2 (3)
CL Item
3 (4)
CL Item
4 (5)
CL Item
5 - very effective (6)
other biologicals
Item
Biologicals (injected) Other, please describe
text
C3259460 (UMLS CUI [1])
other systemics
Item
Other systemics [PhenX]
text
C3259461 (UMLS CUI [1])
other topicals
Item
Other topicals [PhenX]
text
C3259462 (UMLS CUI [1])
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