ID

26271

Description

Ελληνικό Αρχείο Καταγραφής Μυελοδυσπλαστικών και Υποπλαστικών Συνδρόμων (ΕΑΚΜΥΣ) Hellenic National Registry of Myelodysplastic and Hypoplastic Syndromes Source: Prof. Argiris Symeonidis University of Patras Greece

Keywords

Versions (10)
  1. 10/14/17 10/14/17 - Martin Dugas
  2. 10/14/17 10/14/17 - Martin Dugas
  3. 10/14/17 10/14/17 - Martin Dugas
  4. 10/14/17 10/14/17 - Martin Dugas
  5. 10/16/17 10/16/17 - Martin Dugas
  6. 10/17/17 10/17/17 - Martin Dugas
  7. 10/18/17 10/18/17 - Martin Dugas
  8. 10/18/17 10/18/17 - Martin Dugas
  9. 10/20/17 10/20/17 - Martin Dugas
  10. 9/27/21 9/27/21 -
Copyright Holder

Argiris Symeonidis

Uploaded on

October 14, 2017

DOI

To request one please log in.

License

Creative Commons BY-NC 3.0
Model comments :

You can comment on the data model here. Via the speech bubbles at the itemgroups and items you can add comments to those specificially.

Back to model comments
Itemgroup comments for :

Item comments for :

In order to download data models you must be logged in. Please log in or register for free.

Greek MDS registry

Greek, Modern English

Baseline

1 forms  
  1. StudyEvent: ODM
    1. Baseline
Demographic data
Description

Demographic data

Alias
UMLS CUI-1
C0011298
Last name
Description

Last name

Data type

text

Alias
UMLS CUI [1]
C1301584
First name
Description

First name

Data type

text

Alias
UMLS CUI [1]
C1443235
Father's name
Description

Father's name

Data type

text

Alias
UMLS CUI [1,1]
C0015671
UMLS CUI [1,2]
C0027365
Initials
Description

Initials

Data type

text

Alias
UMLS CUI [1]
C2986440
Hematology Clinic Code
Description

Hematology Clinic Code

Data type

text

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C0805701
Hospital registration number
Description

Hospital registration number

Data type

text

Alias
UMLS CUI [1]
C0421459
Date of birth
Description

Date of birth

Data type

date

Alias
UMLS CUI [1]
C0421451
Place of birth
Description

Place of birth

Data type

text

Alias
UMLS CUI [1]
C0032040
Place of residence
Description

Place of residence

Data type

text

Alias
UMLS CUI [1]
C0682130
Gender
Description

Gender

Data type

text

Alias
UMLS CUI [1]
C0079399
Age at diagnosis
Description

Age at diagnosis

Data type

integer

Alias
UMLS CUI [1]
C1828181
Occupation
Description

Occupation

Data type

integer

Alias
UMLS CUI [1]
C0028811
Date of diagnosis
Description

Date of diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
Previous exposure to myeloid toxic agents
Description

Previous exposure to myeloid toxic agents

Data type

integer

Alias
UMLS CUI [1]
C0522757
Active clinical problems
Description

Active clinical problems

Data type

text

Alias
UMLS CUI [1,1]
C1254481
UMLS CUI [1,2]
C0205177
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
Description

Family history of clonal haematological disorder

Data type

integer

Alias
UMLS CUI [1,1]
C0241889
UMLS CUI [1,2]
C0376545
Classification
Description

Classification

Alias
UMLS CUI-1
C0008902
FAB classification
Description

FAB classification

Data type

text

Alias
UMLS CUI [1]
C2984084
FAB classification
Description

WHO classification

Data type

text

Alias
UMLS CUI [1,1]
C1301142
UMLS CUI [1,2]
C3463824
Hybrid MDS - Myeloproliferative syndromes
Description

Hybrid MDS - Myeloproliferative syndromes

Data type

text

Alias
UMLS CUI [1]
C1443043
Additional features
Description

Additional features

Data type

integer

Alias
UMLS CUI [1]
C1853192
hypoplastic
Description

hypoplastic

Data type

integer

Alias
UMLS CUI [1]
C0543481
connected
Description

connected

Data type

integer

Alias
UMLS CUI [1]
C2986575
Splenomegaly
Description

Splenomegaly

Data type

integer

Alias
UMLS CUI [1]
C0038002
Spleen Size
Description

Spleen Size

Data type

float

Measurement units
  • cm
Alias
UMLS CUI [1,1]
C0037993
UMLS CUI [1,2]
C0456389
cm
WHO performance status
Description

WHO performance status

Data type

text

Alias
UMLS CUI [1]
C1298650
Hematological findings
Description

Hematological findings

Alias
UMLS CUI-1
C0279810
UMLS CUI-2
C0243095
Hemoglobin
Description

Hemoglobin

Data type

float

Alias
UMLS CUI [1]
C0019046
MCV
Description

MCV

Data type

float

Alias
UMLS CUI [1]
C0524587
MCH
Description

MCH

Data type

float

Alias
UMLS CUI [1]
C1261502
Leukocytes
Description

Leukocytes

Data type

float

Measurement units
  • 10E3/mm3
Alias
UMLS CUI [1]
C0023516
10E3/mm3
Leukocytes subtype
Description

Leukocytes subtype

Data type

float

Leukocytes subtype
Description

Leukocytes subtype

Data type

float

Leukocytes subtype
Description

Leukocytes subtype

Data type

float

Leukocytes subtype
Description

Leukocytes subtype

Data type

float

Leukocytes subtype
Description

Leukocytes subtype

Data type

float

Leukocytes subtype
Description

Leukocytes subtype

Data type

float

Absolute neutrophil count
Description

Absolute neutrophil count

Data type

float

Alias
UMLS CUI [1]
C0948762
Absolute monocyte count
Description

Absolute monocyte count

Data type

float

Alias
UMLS CUI [1]
C0200637
Absolute blast count
Description

Absolute blast count

Data type

float

Alias
UMLS CUI [1]
C0523113
Pelger polymorphonuclear type
Description

Pelger polymorphonuclear type

Data type

integer

Alias
UMLS CUI [1]
C2698755
Auer Rods
Description

Auer Rods

Data type

integer

Alias
UMLS CUI [1]
C0333828
Platelets
Description

Platelets

Data type

float

Measurement units
  • 10E3/mm3
Alias
UMLS CUI [1]
C0005821
10E3/mm3
Erythroblast
Description

Erythroblast

Data type

integer

Alias
UMLS CUI [1]
C0014762
Notable morphological findings
Description

Notable morphological findings

Data type

text

Alias
UMLS CUI [1]
C1260954
Uric Acid
Description

Uric Acid

Data type

float

Alias
UMLS CUI [1]
C0041980
LDH
Description

LDH

Data type

float

Alias
UMLS CUI [1]
C0202113
Higher normal value
Description

Higher normal value

Data type

float

Alias
UMLS CUI [1]
C3163633
β2-Microglobulin
Description

β2-Microglobulin

Data type

float

Measurement units
  • µgr/lt
Alias
UMLS CUI [1]
C0005149
µgr/lt
Ferritin
Description

Ferritin

Data type

float

Alias
UMLS CUI [1]
C0015879
Erythropoietin level
Description

Erythropoietin level

Data type

float

Alias
UMLS CUI [1]
C0014822
Corresponding Hb
Description

Corresponding Hb

Data type

float

Alias
UMLS CUI [1]
C0019046
Back to the top of the page

Similar models

Baseline

1 forms
  1. StudyEvent: ODM
    1. Baseline
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
C0011298 (UMLS CUI-1)
Last name
Item
text
C1301584 (UMLS CUI [1])
First name
Item
text
C1443235 (UMLS CUI [1])
Father's name
Item
text
C0015671 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
Initials
Item
text
C2986440 (UMLS CUI [1])
Hematology Clinic Code
Item
text
C0019994 (UMLS CUI [1,1])
C0805701 (UMLS CUI [1,2])
Hospital registration number
Item
text
C0421459 (UMLS CUI [1])
Date of birth
Item
date
C0421451 (UMLS CUI [1])
Place of birth
Item
text
C0032040 (UMLS CUI [1])
Place of residence
Item
text
C0682130 (UMLS CUI [1])
Item
text
C0079399 (UMLS CUI [1])
Gender
Code List
Gender
CL Item
male (m)
(Comment:el)
C0086582 (UMLS CUI-1)
(Comment:en)
CL Item
female (f)
(Comment:el)
C0015780 (UMLS CUI-1)
(Comment:en)
Age at diagnosis
Item
integer
C1828181 (UMLS CUI [1])
Item
integer
C0028811 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Occupation
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Date of diagnosis
Item
date
C2316983 (UMLS CUI [1])
Item
integer
C0522757 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Previous exposure to myeloid toxic agents
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Active clinical problems
Item
text
C1254481 (UMLS CUI [1,1])
C0205177 (UMLS CUI [1,2])
Item
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
integer
C0241889 (UMLS CUI [1,1])
C0376545 (UMLS CUI [1,2])
Family history of clonal haematological disorder
Code List
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item Group
C0008902 (UMLS CUI-1)
FAB classification
Item
FAB classification
text
C2984084 (UMLS CUI [1])
WHO classification
Item
FAB classification
text
C1301142 (UMLS CUI [1,1])
C3463824 (UMLS CUI [1,2])
Hybrid MDS - Myeloproliferative syndromes
Item
text
C1443043 (UMLS CUI [1])
Item
integer
C1853192 (UMLS CUI [1])
Additional features
Code List
Additional features
CL Item
primary (1)
(Comment:en)
C0205225 (UMLS CUI-1)
(Comment:el)
CL Item
secondary (2)
(Comment:en)
C0175668 (UMLS CUI-1)
(Comment:el)
Item
integer
C0543481 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
hypoplastic
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item
integer
C2986575 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
connected
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item
integer
C0038002 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Splenomegaly
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Spleen Size
Item
float
C0037993 (UMLS CUI [1,1])
C0456389 (UMLS CUI [1,2])
Item
text
C1298650 (UMLS CUI [1])
WHO performance status
Code List
WHO performance status
CL Item
 (100)
CL Item
 (90)
CL Item
 (80)
CL Item
 (70)
CL Item
 (60)
CL Item
 (50)
CL Item
 (40)
CL Item
 (30)
CL Item
 (20)
CL Item
 (10)
CL Item
 (0)
Item Group
C0279810 (UMLS CUI-1)
C0243095 (UMLS CUI-2)
Hemoglobin
Item
float
C0019046 (UMLS CUI [1])
MCV
Item
float
C0524587 (UMLS CUI [1])
MCH
Item
float
C1261502 (UMLS CUI [1])
Leukocytes
Item
float
C0023516 (UMLS CUI [1])
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Absolute neutrophil count
Item
float
C0948762 (UMLS CUI [1])
Absolute monocyte count
Item
float
C0200637 (UMLS CUI [1])
Absolute blast count
Item
float
C0523113 (UMLS CUI [1])
Item
integer
C2698755 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Pelger polymorphonuclear type
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item
integer
C0333828 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Auer Rods
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Platelets
Item
float
C0005821 (UMLS CUI [1])
Item
integer
C0014762 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Erythroblast
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Notable morphological findings
Item
text
C1260954 (UMLS CUI [1])
Uric Acid
Item
float
C0041980 (UMLS CUI [1])
LDH
Item
float
C0202113 (UMLS CUI [1])
Higher normal value
Item
float
C3163633 (UMLS CUI [1])
β2-Microglobulin
Item
float
C0005149 (UMLS CUI [1])
Ferritin
Item
float
C0015879 (UMLS CUI [1])
Erythropoietin level
Item
float
C0014822 (UMLS CUI [1])
Corresponding Hb
Item
float
C0019046 (UMLS CUI [1])
Back to the top of the page 

Contact

Please use this form for feedback, questions and suggestions for improvements.

Fields marked with * are required.

Help

Do you need help on how to use the search function? Please watch the corresponding tutorial video for more details and learn how to use the search function most efficiently.

Watch Tutorial