Age
Item
1. 18 years of age or older (patient and family caregiver only)
boolean
C0001779 (UMLS CUI [1])
Able to speak English Language | Able to read English Language
Item
2. ability to speak and read english (all participants)
boolean
C0564215 (UMLS CUI [1,1])
C0376245 (UMLS CUI [1,2])
C0586740 (UMLS CUI [2,1])
C0376245 (UMLS CUI [2,2])
Residence United States
Item
3. live in the united states (patient phase 3 only)
boolean
C0237096 (UMLS CUI [1,1])
C0041703 (UMLS CUI [1,2])
Philadelphia chromosome positive chronic myelogenous leukemia Cytogenetic Analysis
Item
4. diagnosis of philadelphia chromosome positive cml confirmed by pathological and cytogenetic analysis (patient only)
boolean
C0279543 (UMLS CUI [1,1])
C0752095 (UMLS CUI [1,2])
Follow-up Cancer Hospital
Item
5. being followed at m.d. anderson cancer center (patient only)
boolean
C3274571 (UMLS CUI [1,1])
C0019999 (UMLS CUI [1,2])
Informed Consent
Item
6. consent to participate (all participants)
boolean
C0021430 (UMLS CUI [1])
Therapeutic procedure CML
Item
7. treatment for cml for at least 1 year (patient phase 2 only)
boolean
C0087111 (UMLS CUI [1,1])
C0023473 (UMLS CUI [1,2])
Family Caregiver Participation Specified
Item
8. family caregiver also willing to receive packet for expert panel participation (patient phase 2 only)
boolean
C0086279 (UMLS CUI [1,1])
C0679823 (UMLS CUI [1,2])
C0205369 (UMLS CUI [1,3])
Specialist Physician CML | Nurse Specialist CML
Item
9. physician or nurse with at least 5 years experience caring for patients with cml (professional expert only)
boolean
C2348234 (UMLS CUI [1,1])
C0023473 (UMLS CUI [1,2])
C4277711 (UMLS CUI [2,1])
C0023473 (UMLS CUI [2,2])
Publications Quantity | Specialist Physician
Item
10. at least one publication in the last 5 years dealing with cml (physician professional expert only)
boolean
C0034036 (UMLS CUI [1,1])
C1265611 (UMLS CUI [1,2])
C2348234 (UMLS CUI [2])
Identification Family Caregiver | Patient CML
Item
11. identification as a family caregiver by a patient with cml (family caregiver only)
boolean
C0205396 (UMLS CUI [1,1])
C0086279 (UMLS CUI [1,2])
C0030705 (UMLS CUI [2,1])
C0023473 (UMLS CUI [2,2])
Patient Participation Specified
Item
12. patient also willing to receive packet for expert panel participation (family caregiver only)
boolean
C0030705 (UMLS CUI [1,1])
C0679823 (UMLS CUI [1,2])
C0205369 (UMLS CUI [1,3])
Medical condition Study Subject Participation Status Excluded | Performance status Impaired Study Subject Participation Status Excluded
Item
1. medical condition or impaired performance status that would preclude participation in the study (patient only)
boolean
C3843040 (UMLS CUI [1,1])
C2348568 (UMLS CUI [1,2])
C0332196 (UMLS CUI [1,3])
C1518965 (UMLS CUI [2,1])
C0221099 (UMLS CUI [2,2])
C2348568 (UMLS CUI [2,3])
C0332196 (UMLS CUI [2,4])
Psychotic Disorders | Impaired cognition Severe
Item
2. diagnosis of active psychosis or severe cognitive impairment as determined by primary physician (patient only)
boolean
C0033975 (UMLS CUI [1])
C0338656 (UMLS CUI [2,1])
C0205082 (UMLS CUI [2,2])