ID

41897

Beschrijving

This Case Report Form (CRF) is to be used together with the Core CRF or the RAPID CRF, to collect additional data to characterise COVID-19 infection in pregnancy. The form can be completed prospectively or retrospectively. The main or rapid COVID-19 CRF needs to be completed as well, using the same patient ID. Inclusion criteria: Pregnant woman with suspected or confirmed COVID-19. More information can be found at https://isaric.org/research/covid-19-clinical-research-resources/optional-crf-modules/

Link

https://isaric.org/research/covid-19-clinical-research-resources/optional-crf-modules/

Trefwoorden

Versies (1)
  1. 10-02-21 10-02-21 -
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ISARIC on behalf of Oxford University

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10 februari 2021

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Licentie

Creative Commons BY-SA 4.0
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ISARIC/WHO Novel Coronavirus (nCoV) / COVID-19 Case Report Form

Engels

COVID-19 Case Report Form – Pregnancy Module

1 Formulieren  
Participant Identification
Beschrijving

Participant Identification

Alias
UMLS CUI-1
C3165543
Participant Identification Numbers
Beschrijving

Participant Identification Numbers consist of a 3 digit site code and a 4 digit participant number. You can obtain a site code and registering on the data management system by contacting ncov@isaric.org. Participant numbers should be assigned sequentially for each site beginning with 0001. In the case of a single site recruiting participants on different wards, or where it is otherwise difficult to assign sequential numbers, it is acceptable to assign numbers in blocks or incorporating alpha characters. E.g. Ward X will assign numbers from 0001 or A001 onwards and Ward Y will assign numbers from 5001 or B001 onwards. Enter the Participant Identification Number at the top of every page.

Datatype

text

Alias
UMLS CUI [1]
C3165543
Q1. Status on admission
Beschrijving

Q1. Status on admission

Alias
UMLS CUI-1
C0586002
Expected estimated date of delivery date:
Beschrijving

Expected estimated date of delivery date

Datatype

date

Alias
UMLS CUI [1]
C1287845
Number of fetuses
Beschrijving

Pregnancy: number of fetuses

Datatype

integer

Alias
UMLS CUI [1]
C0422809
If ticked "Other" - please specify:
Beschrijving

Pregnancy: number of fetuses

Datatype

integer

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0422809
Pregnancy related complications during this pregnancy?
Beschrijving

If yes, specify all:

Datatype

integer

Alias
UMLS CUI [1,1]
C0032962
UMLS CUI [1,2]
C0747843
Gestational diabetes
Beschrijving

Pregnancy related complications: Gestational diabetes

Datatype

boolean

Alias
UMLS CUI [1]
C0085207
Gestational hypertension
Beschrijving

Pregnancy related complications: Gestational hypertension

Datatype

boolean

Alias
UMLS CUI [1]
C0852036
Anemia (Hb < 11 g/dL)
Beschrijving

Pregnancy related complications: Anemia

Datatype

boolean

Alias
UMLS CUI [1]
C0032962
UMLS CUI [2]
C0002871
Hyperemesis requiring admission
Beschrijving

Pregnancy related complications: Hyperemesis requiring admission

Datatype

boolean

Alias
UMLS CUI [1,1]
C0544566
UMLS CUI [1,2]
C0686904
UMLS CUI [1,3]
C0019993
Intrauterine growth restriction
Beschrijving

Pregnancy related complications: Intrauterine growth restriction

Datatype

boolean

Alias
UMLS CUI [1]
C0015934
Dehydration requiring admission
Beschrijving

Pregnancy related complications: Dehydration requiring admission

Datatype

boolean

Alias
UMLS CUI [1]
C0032962
UMLS CUI [2,1]
C0011175
UMLS CUI [2,2]
C0686904
UMLS CUI [2,3]
C0019993
Severe infection
Beschrijving

Pregnancy related complications: Severe infection

Datatype

boolean

Alias
UMLS CUI [1]
C0032962
UMLS CUI [2,1]
C3714514
UMLS CUI [2,2]
C0205082
Pre-eclampsia
Beschrijving

Pregnancy related complications: Pre-eclampsia

Datatype

boolean

Alias
UMLS CUI [1]
C0032914
Eclampsia
Beschrijving

Pregnancy related complications: Eclampsia

Datatype

boolean

Alias
UMLS CUI [1]
C0013537
Placenta previa
Beschrijving

Pregnancy related complications: Placenta previa

Datatype

boolean

Alias
UMLS CUI [1]
C0032046
Placental abruption
Beschrijving

Pregnancy related complications: Placental abruption

Datatype

boolean

Alias
UMLS CUI [1]
C0000832
Thrombotic event
Beschrijving

Pregnancy related complications: Thrombotic event

Datatype

boolean

Alias
UMLS CUI [1,1]
C0040053
UMLS CUI [1,2]
C0032962
Amniotic fluid embolism
Beschrijving

Pregnancy related complications: Amniotic fluid embolism

Datatype

boolean

Alias
UMLS CUI [1]
C0013927
Other pregnancy related complications:
Beschrijving

Pregnancy related complications: Other

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0032962
If Yes, please specify:
Beschrijving

Other pregnancy related complications - specification

Datatype

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0032962
UMLS CUI [1,3]
C2348235
Any medication taken during this pregnancy prior to admission?
Beschrijving

Medication taken during pregnancy prior to admission

Datatype

integer

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C4696992
UMLS CUI [1,3]
C0332152
UMLS CUI [1,4]
C0184666
If yes, specify agent/s:
Beschrijving

Medication taken during pregnancy prior to admission - specification

Datatype

text

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C4696992
UMLS CUI [1,3]
C0332152
UMLS CUI [1,4]
C0184666
UMLS CUI [1,5]
C2348235
Q2. Previous obstetric history (if no previous pregnancy - skip to Q3)
Beschrijving

Q2. Previous obstetric history (if no previous pregnancy - skip to Q3)

Alias
UMLS CUI-1
C0425963
Previous completed pregnancies:
Beschrijving

Previous completed pregnancies

Datatype

integer

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0205197
Number of completed pregnancies > 24 weeks gestation
Beschrijving

Number of completed pregnancies > 24 weeks gestation

Datatype

integer

Alias
UMLS CUI [1,1]
C0422807
UMLS CUI [1,2]
C0205197
UMLS CUI [1,3]
C0730523
Number of completed pregnancies < 24 weeks gestation
Beschrijving

Number of completed pregnancies < 24 weeks gestation

Datatype

integer

Alias
UMLS CUI [1,1]
C0422807
UMLS CUI [1,2]
C0205197
UMLS CUI [1,3]
C0730521
Did the woman have any pregnancy problems identified during any previous pregnancy?
Beschrijving

If yes, specify all:

Datatype

integer

Alias
UMLS CUI [1,1]
C0032962
UMLS CUI [1,2]
C0205156
UMLS CUI [1,3]
C0032961
Gestational diabetes
Beschrijving

Pregnancy problems in previous pregnancy: Gestational diabetes

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0085207
Gestational hypertension
Beschrijving

Pregnancy problems in previous pregnancy: Gestational hypertension

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0852036
Intrauterine growth restriction
Beschrijving

Pregnancy problems in previous pregnancy: Intrauterine growth restriction

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0015934
Preeclampsia
Beschrijving

Pregnancy problems in previous pregnancy: Preeclampsia

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0032914
Eclampsia
Beschrijving

Pregnancy problems in previous pregnancy: Eclampsia

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0013537
Thrombotic event
Beschrijving

Pregnancy problems in previous pregnancy: Thrombotic event

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0040053
Amniotic fluid embolism
Beschrijving

Pregnancy problems in previous pregnancy: Amniotic fluid embolism

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0013927
3 or more miscarriages
Beschrijving

Pregnancy problems in previous pregnancy: 3 or more miscarriages

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C3841310
UMLS CUI [1,4]
C4552766
Preterm birth or mid-trimester loss
Beschrijving

Pregnancy problems in previous pregnancy: Preterm birth or mid-trimester loss

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C3841290
UMLS CUI [2,1]
C0205156
UMLS CUI [2,2]
C0032961
UMLS CUI [2,3]
C0743948
Neonatal death
Beschrijving

Pregnancy problems in previous pregnancy: Neonatal death

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0410916
Stillbirth
Beschrijving

Pregnancy problems in previous pregnancy: Stillbirth

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0595939
Baby with major congenital anomaly
Beschrijving

Pregnancy problems in previous pregnancy: Baby with major congenital anomaly

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C4288779
Small for gestational age infant (<2.5kg)
Beschrijving

Pregnancy problems in previous pregnancy: Small for gestational age infant (<2.5kg)

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0021296
Large for gestational age infant (>4.5kg)
Beschrijving

Pregnancy problems in previous pregnancy: Large for gestational age infant (>4.5kg)

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C1848395
Infant requiring intensive care surgical procedure in pregnancy
Beschrijving

Pregnancy problems in previous pregnancy: Infant requiring intensive care surgical procedure in pregnancy

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0021711
UMLS CUI [1,4]
C1883301
Post-partum hemorrhage requiring transfusion
Beschrijving

Pregnancy problems in previous pregnancy: Post-partum hemorrhage requiring transfusion

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0744803
Other pregnancy problems in previous pregnancies
Beschrijving

Pregnancy problems in previous pregnancy: Other

Datatype

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0205394
UMLS CUI [1,4]
C0566639
If other pregnancy problems in previous pregnancies, please specify:
Beschrijving

Other pregnancy problems in previous pregnancy - Specification

Datatype

text

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0032961
UMLS CUI [1,3]
C0205394
UMLS CUI [1,4]
C0566639
UMLS CUI [1,5]
C2348235
Q3. Delivery
Beschrijving

Q3. Delivery

Alias
UMLS CUI-1
C1148523
Delivery during admission?
Beschrijving

Delivery during admission

Datatype

integer

Alias
UMLS CUI [1,1]
C1148523
UMLS CUI [1,2]
C0585045
If yes, date:
Beschrijving

Delivery during admission - specification

Datatype

date

Alias
UMLS CUI [1,1]
C2053594
UMLS CUI [1,2]
C0585045
Was labour induced?
Beschrijving

Labour induced

Datatype

integer

Alias
UMLS CUI [1]
C0022875
If yes, state indication:
Beschrijving

Labour induced

Datatype

text

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C0022875
Was delivery via caesarian section?
Beschrijving

Cesarian section

Datatype

integer

Alias
UMLS CUI [1]
C0007876
Cesarian section: method of anesthetic
Beschrijving

Cesarian section: method of anesthetic

Datatype

integer

Alias
UMLS CUI [1,1]
C0002903
UMLS CUI [1,2]
C0007876
Did the woman have a miscarriage?
Beschrijving

Miscarriage

Datatype

integer

Alias
UMLS CUI [1]
C4552766
If yes, date:
Beschrijving

Miscarriage date

Datatype

date

Alias
UMLS CUI [1,1]
C4552766
UMLS CUI [1,2]
C0011008
Did the woman have a termination of pregnancy?
Beschrijving

Termination of pregnancy

Datatype

integer

Alias
UMLS CUI [1]
C0392535
If yes, date:
Beschrijving

Termination of pregnancy - date

Datatype

date

Alias
UMLS CUI [1,1]
C0392535
UMLS CUI [1,2]
C0011008
If yes, was the termination due to a congenital malformation?
Beschrijving

Termination of pregnancy due to congenital malformation

Datatype

integer

Alias
UMLS CUI [1,1]
C0392535
UMLS CUI [1,2]
C0678226
UMLS CUI [1,3]
C0000768
If yes, please specify:
Beschrijving

Termination due to congenital malformation - specification

Datatype

text

Alias
UMLS CUI [1,1]
C0392535
UMLS CUI [1,2]
C0678226
UMLS CUI [1,3]
C0000768
UMLS CUI [1,4]
C2348235
Were any of the following samples tested? (tick all that apply)
Beschrijving

Were any of the following samples tested? (tick all that apply)

Alias
UMLS CUI-1
C2347029
UMLS CUI-2
C0039593
Amniotic fluid tested
Beschrijving

Amniotic fluid tested

Datatype

boolean

Alias
UMLS CUI [1,1]
C0002638
UMLS CUI [1,2]
C2826677
Amniotic fluid - test description:
Beschrijving

Amniotic fluid - test description

Datatype

text

Alias
UMLS CUI [1,1]
C0002638
UMLS CUI [1,2]
C0022885
UMLS CUI [1,3]
C0678257
Placenta tested
Beschrijving

Placenta tested

Datatype

boolean

Alias
UMLS CUI [1,1]
C0032043
UMLS CUI [1,2]
C2826677
Placenta sample - test description:
Beschrijving

Placenta sample - test description

Datatype

text

Alias
UMLS CUI [1,1]
C0032043
UMLS CUI [1,2]
C0022885
UMLS CUI [1,3]
C0678257
Cord blood tested
Beschrijving

Cord blood tested

Datatype

boolean

Alias
UMLS CUI [1,1]
C0162371
UMLS CUI [1,2]
C2826677
Cord blood - test description
Beschrijving

Cord blood - test description

Datatype

text

Alias
UMLS CUI [1,1]
C0162371
UMLS CUI [1,2]
C0022885
UMLS CUI [1,3]
C0678257
Vaginal swab tested
Beschrijving

Vaginal swab tested

Datatype

boolean

Alias
UMLS CUI [1,1]
C0444207
UMLS CUI [1,2]
C2826677
Vaginal swab - test description
Beschrijving

Vaginal swab - test description

Datatype

text

Alias
UMLS CUI [1,1]
C0444207
UMLS CUI [1,2]
C0022885
UMLS CUI [1,3]
C0678257
Faecal/rectal swab tested
Beschrijving

Faecal/rectal swab tested

Datatype

boolean

Alias
UMLS CUI [1,1]
C3687476
UMLS CUI [1,2]
C2826677
UMLS CUI [2,1]
C0444215
UMLS CUI [2,2]
C2826677
Faecal/rectal swab - test description
Beschrijving

Faecal/rectal swab - test description

Datatype

text

Alias
UMLS CUI [1,1]
C0444215
UMLS CUI [1,2]
C0022885
UMLS CUI [1,3]
C0678257
UMLS CUI [2,1]
C3687476
UMLS CUI [2,2]
C0022885
UMLS CUI [2,3]
C0678257
Pregnancy tissue tested
Beschrijving

Pregnancy tissue tested

Datatype

boolean

Alias
UMLS CUI [1,1]
C0032961
UMLS CUI [1,2]
C0040300
UMLS CUI [1,3]
C2826677
Pregnancy tissue test description
Beschrijving

Pregnancy tissue test description

Datatype

text

Alias
UMLS CUI [1,1]
C0032961
UMLS CUI [1,2]
C0022885
UMLS CUI [1,3]
C0678257
Q4. Neonate Details (If multiple pregnancy complete Q4 for each baby)
Beschrijving

Q4. Neonate Details (If multiple pregnancy complete Q4 for each baby)

Alias
UMLS CUI-1
C4036023
UMLS CUI-2
C1522508
Date of birth [DD/MM/YYYY]
Beschrijving

Date of birth

Datatype

date

Alias
UMLS CUI [1]
C0421451
Participant ID of the mother:
Beschrijving

Participant ID of the mother:

Datatype

integer

Alias
UMLS CUI [1,1]
C2348585
UMLS CUI [1,2]
C0026591
COVID-19 lab test of foetus /neonate
Beschrijving

COVID-19 lab test of foetus /neonate

Datatype

integer

Alias
UMLS CUI [1,1]
C5203670
UMLS CUI [1,2]
C2826677
UMLS CUI [1,3]
C0015965
UMLS CUI [2,1]
C5203670
UMLS CUI [2,2]
C2826677
UMLS CUI [2,3]
C0021289
If positive, was sample taken
Beschrijving

COVID-19 lab test of foetus /neonate

Datatype

integer

Alias
UMLS CUI [1,1]
C5203670
UMLS CUI [1,2]
C2826760
UMLS CUI [1,3]
C0015965
UMLS CUI [2,1]
C5203670
UMLS CUI [2,2]
C2826760
UMLS CUI [2,3]
C0021289
Mode of delivery
Beschrijving

Mode of delivery

Datatype

integer

Alias
UMLS CUI [1]
C2825496
Apgar score at 5 minutes
Beschrijving

Apgar score at 5 minutes

Datatype

integer

Alias
UMLS CUI [1]
C1286416
Gestational age - weeks:
Beschrijving

Gestational age - weeks

Datatype

integer

Maateenheden
  • Weeks
Alias
UMLS CUI [1]
C1135241
Weeks
Gestational age - days:
Beschrijving

Gestational age - days

Datatype

integer

Maateenheden
  • Days
Alias
UMLS CUI [1,1]
C0017504
UMLS CUI [1,2]
C0439228
Days
Sex of infant:
Beschrijving

Sex of infant

Datatype

integer

Alias
UMLS CUI [1,1]
C0079399
UMLS CUI [1,2]
C0021289
Birth weight
Beschrijving

Birth weight

Datatype

integer

Maateenheden
  • Grams
Alias
UMLS CUI [1]
C0005612
Grams
Was the infant stillborn?
Beschrijving

If yes skip to the question "Neonatal outcome"

Datatype

integer

Alias
UMLS CUI [1]
C0595939
If yes, date stillborn:
Beschrijving

Date stillbirth

Datatype

date

Alias
UMLS CUI [1,1]
C0595939
UMLS CUI [1,2]
C0011008
Was the infant admitted to neonatal unit?
Beschrijving

Admission to neonatal unit

Datatype

integer

Alias
UMLS CUI [1]
C2148604
If yes, duration of stay:
Beschrijving

Or use "Still in neonatal care"

Datatype

integer

Maateenheden
  • days
Alias
UMLS CUI [1,1]
C2148604
UMLS CUI [1,2]
C4019086
days
Still in neonatal unit
Beschrijving

Still in neonatal unit

Datatype

boolean

Alias
UMLS CUI [1,1]
C2148604
UMLS CUI [1,2]
C4035866
Did any infant complications occur?
Beschrijving

If yes, specify all

Datatype

integer

Alias
UMLS CUI [1,1]
C0021270
UMLS CUI [1,2]
C0009566
Respiratory distress syndrome
Beschrijving

Infant complications: Respiratory distress syndrome

Datatype

boolean

Alias
UMLS CUI [1]
C0035220
Intraventricular haemorrhage
Beschrijving

Infant complications: Intraventricular haemorrhage

Datatype

boolean

Alias
UMLS CUI [1]
C0495415
Necrotising enterocolitis
Beschrijving

Infant complications: Necrotising enterocolitis

Datatype

boolean

Alias
UMLS CUI [1]
C1442826
Neonatal encephalopathy
Beschrijving

Infant complications: Neonatal encephalopathy

Datatype

boolean

Alias
UMLS CUI [1]
C0235820
Chronic lung disease
Beschrijving

Infant complications: Chronic lung disease

Datatype

boolean

Alias
UMLS CUI [1,1]
C0021270
UMLS CUI [1,2]
C0746102
Severe jaundice requiring phototherapy
Beschrijving

Infant complications: Severe jaundice requiring phototherapy

Datatype

boolean

Alias
UMLS CUI [1,1]
C1566050
UMLS CUI [1,2]
C1514873
UMLS CUI [1,3]
C0031765
Major congenital anomaly
Beschrijving

Infant complications: Major congenital anomaly

Datatype

boolean

Alias
UMLS CUI [1,1]
C0021270
UMLS CUI [1,2]
C4288779
Severe infection/sepsis
Beschrijving

Infant complications: Severe infection/sepsis

Datatype

boolean

Alias
UMLS CUI [1,1]
C0021270
UMLS CUI [1,2]
C5139167
UMLS CUI [2,1]
C0021270
UMLS CUI [2,2]
C1719672
Meningitis
Beschrijving

Infant complications: Meningitis

Datatype

boolean

Alias
UMLS CUI [1,1]
C0021270
UMLS CUI [1,2]
C0025289
Exchange transfusion
Beschrijving

Infant complications: Exchange transfusion

Datatype

boolean

Alias
UMLS CUI [1]
C0371803
Other:
Beschrijving

Other Infant complications

Datatype

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0021270
UMLS CUI [1,3]
C0009566
Did the infant have a congenital anomality?
Beschrijving

If yes, specify all

Datatype

integer

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C0021270
Neural tube defects
Beschrijving

Congenital anomaly: Neural tube defects

Datatype

boolean

Alias
UMLS CUI [1,1]
C0021270
UMLS CUI [1,2]
C0027794
Microcephaly
Beschrijving

Congenital anomaly: Microcephaly

Datatype

boolean

Alias
UMLS CUI [1,1]
C0021270
UMLS CUI [1,2]
C0025958
Malformations of ear
Beschrijving

Congenital anomaly: Malformations of ear

Datatype

boolean

Alias
UMLS CUI [1,1]
C0021270
UMLS CUI [1,2]
C0266589
Congenital heart defects
Beschrijving

Congenital anomaly: Congenital heart defects

Datatype

boolean

Alias
UMLS CUI [1,1]
C0021270
UMLS CUI [1,2]
C0018798
Orofacial clefts
Beschrijving

Congenital anomaly: Orofacial clefts

Datatype

boolean

Alias
UMLS CUI [1,1]
C0021270
UMLS CUI [1,2]
C3266076
Malformations of digestive system
Beschrijving

Congenital anomaly: Malformations of digestive system

Datatype

boolean

Alias
UMLS CUI [1,1]
C0266015
UMLS CUI [1,2]
C0021270
Malformations of genital organs
Beschrijving

Congenital anomaly: Malformations of genital organs

Datatype

boolean

Alias
UMLS CUI [1,1]
C0158687
UMLS CUI [1,2]
C0021270
Abdominal wall defects
Beschrijving

Congenital anomaly: Abdominal wall defects

Datatype

boolean

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C0238577
UMLS CUI [1,3]
C0021270
Chromosomal abnormalities
Beschrijving

Congenital anomaly:Chromosomal abnormalities

Datatype

boolean

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C0008625
UMLS CUI [1,3]
C0021270
Reduction defects of upper and lower limb
Beschrijving

Congenital anomaly: Reduction defects of upper and lower limb

Datatype

boolean

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C0265566
UMLS CUI [1,3]
C0021270
UMLS CUI [2,1]
C0000768
UMLS CUI [2,2]
C0265618
UMLS CUI [2,3]
C0021270
Talipes equinovarus/clubfoot
Beschrijving

Congenital anomaly: Talipes equinovarus/clubfoot

Datatype

boolean

Alias
UMLS CUI [1,1]
C0009081
UMLS CUI [1,2]
C0021270
Other congenital anomaly:
Beschrijving

Other congenital anomaly

Datatype

text

Alias
UMLS CUI [1,1]
C0021270
UMLS CUI [1,2]
C0000768
UMLS CUI [1,3]
C0205394
Neonatal outcome
Beschrijving

Neonatal outcome

Datatype

integer

Alias
UMLS CUI [1,1]
C2939425
UMLS CUI [1,2]
C1547647
If discharged with complications/sequelae, details:
Beschrijving

Discharged with complications/sequelae - details

Datatype

text

Alias
UMLS CUI [1,1]
C0030685
UMLS CUI [1,2]
C1709862
UMLS CUI [2,1]
C0030685
UMLS CUI [2,2]
C0009566
UMLS CUI [2,3]
C1709277
If Death: date of death
Beschrijving

Neonatal outcome - death date

Datatype

date

Alias
UMLS CUI [1,1]
C2939425
UMLS CUI [1,2]
C1148348
If neonate died, what was the primary cause of death?
Beschrijving

Primary cause of death

Datatype

integer

Alias
UMLS CUI [1,1]
C2939425
UMLS CUI [1,2]
C3262229
If infection: specify pathogen:
Beschrijving

If infection: specify pathogen

Datatype

text

Alias
UMLS CUI [1,1]
C2939425
UMLS CUI [1,2]
C3262229
UMLS CUI [1,3]
C0450254
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Similar models

COVID-19 Case Report Form – Pregnancy Module

1 Formulieren
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Participant Identification
C3165543 (UMLS CUI-1)
Participant Identification Numbers
Item
Participant Identification Numbers
text
C3165543 (UMLS CUI [1])
Item Group
Q1. Status on admission
C0586002 (UMLS CUI-1)
Expected estimated date of delivery date
Item
Expected estimated date of delivery date:
date
C1287845 (UMLS CUI [1])
Item
Number of fetuses
integer
C0422809 (UMLS CUI [1])
Pregnancy: number of fetuses
Code List
Number of fetuses
CL Item
Singleton (1)
CL Item
Twin (2)
CL Item
Triplet (3)
CL Item
Other (4)
CL Item
Unknown (5)
Pregnancy: number of fetuses
Item
If ticked "Other" - please specify:
integer
C0205394 (UMLS CUI [1,1])
C0422809 (UMLS CUI [1,2])
Item
Pregnancy related complications during this pregnancy?
integer
C0032962 (UMLS CUI [1,1])
C0747843 (UMLS CUI [1,2])
Pregnancy related complications
Code List
Pregnancy related complications during this pregnancy?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Pregnancy related complications: Gestational diabetes
Item
Gestational diabetes
boolean
C0085207 (UMLS CUI [1])
Pregnancy related complications: Gestational hypertension
Item
Gestational hypertension
boolean
C0852036 (UMLS CUI [1])
Pregnancy related complications: Anemia
Item
Anemia (Hb < 11 g/dL)
boolean
C0032962 (UMLS CUI [1])
C0002871 (UMLS CUI [2])
Pregnancy related complications: Hyperemesis requiring admission
Item
Hyperemesis requiring admission
boolean
C0544566 (UMLS CUI [1,1])
C0686904 (UMLS CUI [1,2])
C0019993 (UMLS CUI [1,3])
Pregnancy related complications: Intrauterine growth restriction
Item
Intrauterine growth restriction
boolean
C0015934 (UMLS CUI [1])
Pregnancy related complications: Dehydration requiring admission
Item
Dehydration requiring admission
boolean
C0032962 (UMLS CUI [1])
C0011175 (UMLS CUI [2,1])
C0686904 (UMLS CUI [2,2])
C0019993 (UMLS CUI [2,3])
Pregnancy related complications: Severe infection
Item
Severe infection
boolean
C0032962 (UMLS CUI [1])
C3714514 (UMLS CUI [2,1])
C0205082 (UMLS CUI [2,2])
Pregnancy related complications: Pre-eclampsia
Item
Pre-eclampsia
boolean
C0032914 (UMLS CUI [1])
Pregnancy related complications: Eclampsia
Item
Eclampsia
boolean
C0013537 (UMLS CUI [1])
Pregnancy related complications: Placenta previa
Item
Placenta previa
boolean
C0032046 (UMLS CUI [1])
Pregnancy related complications: Placental abruption
Item
Placental abruption
boolean
C0000832 (UMLS CUI [1])
Pregnancy related complications: Thrombotic event
Item
Thrombotic event
boolean
C0040053 (UMLS CUI [1,1])
C0032962 (UMLS CUI [1,2])
Pregnancy related complications: Amniotic fluid embolism
Item
Amniotic fluid embolism
boolean
C0013927 (UMLS CUI [1])
Pregnancy related complications: Other
Item
Other pregnancy related complications:
boolean
C0205394 (UMLS CUI [1,1])
C0032962 (UMLS CUI [1,2])
Other pregnancy related complications - specification
Item
If Yes, please specify:
text
C0205394 (UMLS CUI [1,1])
C0032962 (UMLS CUI [1,2])
C2348235 (UMLS CUI [1,3])
Item
Any medication taken during this pregnancy prior to admission?
integer
C0013227 (UMLS CUI [1,1])
C4696992 (UMLS CUI [1,2])
C0332152 (UMLS CUI [1,3])
C0184666 (UMLS CUI [1,4])
Medication taken during pregnancy prior to admission
Code List
Any medication taken during this pregnancy prior to admission?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Medication taken during pregnancy prior to admission - specification
Item
If yes, specify agent/s:
text
C0013227 (UMLS CUI [1,1])
C4696992 (UMLS CUI [1,2])
C0332152 (UMLS CUI [1,3])
C0184666 (UMLS CUI [1,4])
C2348235 (UMLS CUI [1,5])
Item Group
Q2. Previous obstetric history (if no previous pregnancy - skip to Q3)
C0425963 (UMLS CUI-1)
Item
Previous completed pregnancies:
integer
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0205197 (UMLS CUI [1,3])
Previous completed pregnancies
Code List
Previous completed pregnancies:
CL Item
Yes > 24 weeks gestation (1)
CL Item
Yes < 24 weeks gestation (2)
CL Item
No (3)
CL Item
Unknown (4)
Number of completed pregnancies > 24 weeks gestation
Item
Number of completed pregnancies > 24 weeks gestation
integer
C0422807 (UMLS CUI [1,1])
C0205197 (UMLS CUI [1,2])
C0730523 (UMLS CUI [1,3])
Number of completed pregnancies < 24 weeks gestation
Item
Number of completed pregnancies < 24 weeks gestation
integer
C0422807 (UMLS CUI [1,1])
C0205197 (UMLS CUI [1,2])
C0730521 (UMLS CUI [1,3])
Item
Did the woman have any pregnancy problems identified during any previous pregnancy?
integer
C0032962 (UMLS CUI [1,1])
C0205156 (UMLS CUI [1,2])
C0032961 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy
Code List
Did the woman have any pregnancy problems identified during any previous pregnancy?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Pregnancy problems in previous pregnancy: Gestational diabetes
Item
Gestational diabetes
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0085207 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Gestational hypertension
Item
Gestational hypertension
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0852036 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Intrauterine growth restriction
Item
Intrauterine growth restriction
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0015934 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Preeclampsia
Item
Preeclampsia
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0032914 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Eclampsia
Item
Eclampsia
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0013537 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Thrombotic event
Item
Thrombotic event
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0040053 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Amniotic fluid embolism
Item
Amniotic fluid embolism
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0013927 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: 3 or more miscarriages
Item
3 or more miscarriages
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C3841310 (UMLS CUI [1,3])
C4552766 (UMLS CUI [1,4])
Pregnancy problems in previous pregnancy: Preterm birth or mid-trimester loss
Item
Preterm birth or mid-trimester loss
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C3841290 (UMLS CUI [1,3])
C0205156 (UMLS CUI [2,1])
C0032961 (UMLS CUI [2,2])
C0743948 (UMLS CUI [2,3])
Pregnancy problems in previous pregnancy: Neonatal death
Item
Neonatal death
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0410916 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Stillbirth
Item
Stillbirth
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0595939 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Baby with major congenital anomaly
Item
Baby with major congenital anomaly
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C4288779 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Small for gestational age infant (<2.5kg)
Item
Small for gestational age infant (<2.5kg)
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0021296 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Large for gestational age infant (>4.5kg)
Item
Large for gestational age infant (>4.5kg)
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C1848395 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Infant requiring intensive care surgical procedure in pregnancy
Item
Infant requiring intensive care surgical procedure in pregnancy
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0021711 (UMLS CUI [1,3])
C1883301 (UMLS CUI [1,4])
Pregnancy problems in previous pregnancy: Post-partum hemorrhage requiring transfusion
Item
Post-partum hemorrhage requiring transfusion
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0744803 (UMLS CUI [1,3])
Pregnancy problems in previous pregnancy: Other
Item
Other pregnancy problems in previous pregnancies
boolean
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0566639 (UMLS CUI [1,4])
Other pregnancy problems in previous pregnancy - Specification
Item
If other pregnancy problems in previous pregnancies, please specify:
text
C0205156 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0566639 (UMLS CUI [1,4])
C2348235 (UMLS CUI [1,5])
Item Group
Q3. Delivery
C1148523 (UMLS CUI-1)
Item
Delivery during admission?
integer
C1148523 (UMLS CUI [1,1])
C0585045 (UMLS CUI [1,2])
Delivery during admission
Code List
Delivery during admission?
CL Item
Yes (1)
CL Item
No (2)
CL Item
N/A (3)
Delivery during admission - specification
Item
If yes, date:
date
C2053594 (UMLS CUI [1,1])
C0585045 (UMLS CUI [1,2])
Item
Was labour induced?
integer
C0022875 (UMLS CUI [1])
Labour induced
Code List
Was labour induced?
CL Item
Yes (1)
CL Item
No (2)
CL Item
N/A (3)
Labour induced
Item
If yes, state indication:
text
C0392360 (UMLS CUI [1,1])
C0022875 (UMLS CUI [1,2])
Item
Was delivery via caesarian section?
integer
C0007876 (UMLS CUI [1])
Cesarian section
Code List
Was delivery via caesarian section?
CL Item
Yes – emergency (1)
CL Item
Yes – elected (2)
CL Item
No (3)
CL Item
N/A (4)
CL Item
Unknown (5)
Item
Cesarian section: method of anesthetic
integer
C0002903 (UMLS CUI [1,1])
C0007876 (UMLS CUI [1,2])
Cesarian section
Code List
Cesarian section: method of anesthetic
CL Item
Regional (1)
CL Item
General anesthetic (2)
CL Item
Unknown (3)
Item
Did the woman have a miscarriage?
integer
C4552766 (UMLS CUI [1])
Cesarian section
Code List
Did the woman have a miscarriage?
CL Item
Yes (1)
CL Item
No (2)
CL Item
N/A (3)
Miscarriage date
Item
If yes, date:
date
C4552766 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Did the woman have a termination of pregnancy?
integer
C0392535 (UMLS CUI [1])
Termination of pregnancy
Code List
Did the woman have a termination of pregnancy?
CL Item
Yes (1)
CL Item
No (2)
CL Item
N/A (3)
Termination of pregnancy - date
Item
If yes, date:
date
C0392535 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
If yes, was the termination due to a congenital malformation?
integer
C0392535 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C0000768 (UMLS CUI [1,3])
Termination of pregnancy due to congenital malformation
Code List
If yes, was the termination due to a congenital malformation?
CL Item
Yes (1)
CL Item
No (2)
CL Item
N/A (3)
Termination due to congenital malformation - specification
Item
If yes, please specify:
text
C0392535 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C0000768 (UMLS CUI [1,3])
C2348235 (UMLS CUI [1,4])
Item Group
Were any of the following samples tested? (tick all that apply)
C2347029 (UMLS CUI-1)
C0039593 (UMLS CUI-2)
Amniotic fluid tested
Item
Amniotic fluid tested
boolean
C0002638 (UMLS CUI [1,1])
C2826677 (UMLS CUI [1,2])
Amniotic fluid - test description
Item
Amniotic fluid - test description:
text
C0002638 (UMLS CUI [1,1])
C0022885 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
Placenta tested
Item
Placenta tested
boolean
C0032043 (UMLS CUI [1,1])
C2826677 (UMLS CUI [1,2])
Placenta sample - test description
Item
Placenta sample - test description:
text
C0032043 (UMLS CUI [1,1])
C0022885 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
Cord blood tested
Item
Cord blood tested
boolean
C0162371 (UMLS CUI [1,1])
C2826677 (UMLS CUI [1,2])
Cord blood - test description
Item
Cord blood - test description
text
C0162371 (UMLS CUI [1,1])
C0022885 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
Vaginal swab tested
Item
Vaginal swab tested
boolean
C0444207 (UMLS CUI [1,1])
C2826677 (UMLS CUI [1,2])
Vaginal swab - test description
Item
Vaginal swab - test description
text
C0444207 (UMLS CUI [1,1])
C0022885 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
Faecal/rectal swab tested
Item
Faecal/rectal swab tested
boolean
C3687476 (UMLS CUI [1,1])
C2826677 (UMLS CUI [1,2])
C0444215 (UMLS CUI [2,1])
C2826677 (UMLS CUI [2,2])
Faecal/rectal swab - test description
Item
Faecal/rectal swab - test description
text
C0444215 (UMLS CUI [1,1])
C0022885 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
C3687476 (UMLS CUI [2,1])
C0022885 (UMLS CUI [2,2])
C0678257 (UMLS CUI [2,3])
Pregnancy tissue tested
Item
Pregnancy tissue tested
boolean
C0032961 (UMLS CUI [1,1])
C0040300 (UMLS CUI [1,2])
C2826677 (UMLS CUI [1,3])
Pregnancy tissue test description
Item
Pregnancy tissue test description
text
C0032961 (UMLS CUI [1,1])
C0022885 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
Item Group
Q4. Neonate Details (If multiple pregnancy complete Q4 for each baby)
C4036023 (UMLS CUI-1)
C1522508 (UMLS CUI-2)
Date of birth
Item
Date of birth [DD/MM/YYYY]
date
C0421451 (UMLS CUI [1])
Participant ID of the mother:
Item
Participant ID of the mother:
integer
C2348585 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
Item
COVID-19 lab test of foetus /neonate
integer
C5203670 (UMLS CUI [1,1])
C2826677 (UMLS CUI [1,2])
C0015965 (UMLS CUI [1,3])
C5203670 (UMLS CUI [2,1])
C2826677 (UMLS CUI [2,2])
C0021289 (UMLS CUI [2,3])
COVID-19 lab test of foetus /neonate
Code List
COVID-19 lab test of foetus /neonate
CL Item
Yes Positive (1)
CL Item
Yes Negative (2)
CL Item
Unknown (3)
Item
If positive, was sample taken
integer
C5203670 (UMLS CUI [1,1])
C2826760 (UMLS CUI [1,2])
C0015965 (UMLS CUI [1,3])
C5203670 (UMLS CUI [2,1])
C2826760 (UMLS CUI [2,2])
C0021289 (UMLS CUI [2,3])
COVID-19 lab test of foetus /neonate
Code List
If positive, was sample taken
CL Item
≤12 hours (1)
CL Item
>12 hours of delivery (2)
Item
Mode of delivery
integer
C2825496 (UMLS CUI [1])
COVID-19 lab test of foetus /neonate
Code List
Mode of delivery
CL Item
Spontaneous vaginal (1)
CL Item
Ventouse or forceps (2)
CL Item
Breech (3)
CL Item
Pre-labour caesarian (4)
CL Item
Caesarian after onset of labour (5)
CL Item
N/A (6)
Apgar score at 5 minutes
Item
Apgar score at 5 minutes
integer
C1286416 (UMLS CUI [1])
Gestational age - weeks
Item
Gestational age - weeks:
integer
C1135241 (UMLS CUI [1])
Gestational age - days
Item
Gestational age - days:
integer
C0017504 (UMLS CUI [1,1])
C0439228 (UMLS CUI [1,2])
Item
Sex of infant:
integer
C0079399 (UMLS CUI [1,1])
C0021289 (UMLS CUI [1,2])
Sex of infant
Code List
Sex of infant:
CL Item
Male (1)
CL Item
Female (2)
CL Item
Indeterminate (3)
CL Item
Unknown (4)
Birth weight
Item
Birth weight
integer
C0005612 (UMLS CUI [1])
Item
Was the infant stillborn?
integer
C0595939 (UMLS CUI [1])
Sex of infant
Code List
Was the infant stillborn?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Date stillbirth
Item
If yes, date stillborn:
date
C0595939 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Was the infant admitted to neonatal unit?
integer
C2148604 (UMLS CUI [1])
Admission to neonatal unit
Code List
Was the infant admitted to neonatal unit?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Duration of stay to neonatal unit
Item
If yes, duration of stay:
integer
C2148604 (UMLS CUI [1,1])
C4019086 (UMLS CUI [1,2])
Still in neonatal unit
Item
Still in neonatal unit
boolean
C2148604 (UMLS CUI [1,1])
C4035866 (UMLS CUI [1,2])
Item
Did any infant complications occur?
integer
C0021270 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
Admission to neonatal unit
Code List
Did any infant complications occur?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Infant complications: Respiratory distress syndrome
Item
Respiratory distress syndrome
boolean
C0035220 (UMLS CUI [1])
Infant complications: Intraventricular haemorrhage
Item
Intraventricular haemorrhage
boolean
C0495415 (UMLS CUI [1])
Infant complications: Necrotising enterocolitis
Item
Necrotising enterocolitis
boolean
C1442826 (UMLS CUI [1])
Infant complications: Neonatal encephalopathy
Item
Neonatal encephalopathy
boolean
C0235820 (UMLS CUI [1])
Infant complications: Chronic lung disease
Item
Chronic lung disease
boolean
C0021270 (UMLS CUI [1,1])
C0746102 (UMLS CUI [1,2])
Infant complications: Severe jaundice requiring phototherapy
Item
Severe jaundice requiring phototherapy
boolean
C1566050 (UMLS CUI [1,1])
C1514873 (UMLS CUI [1,2])
C0031765 (UMLS CUI [1,3])
Infant complications: Major congenital anomaly
Item
Major congenital anomaly
boolean
C0021270 (UMLS CUI [1,1])
C4288779 (UMLS CUI [1,2])
Infant complications: Severe infection/sepsis
Item
Severe infection/sepsis
boolean
C0021270 (UMLS CUI [1,1])
C5139167 (UMLS CUI [1,2])
C0021270 (UMLS CUI [2,1])
C1719672 (UMLS CUI [2,2])
Infant complications: Meningitis
Item
Meningitis
boolean
C0021270 (UMLS CUI [1,1])
C0025289 (UMLS CUI [1,2])
Infant complications: Exchange transfusion
Item
Exchange transfusion
boolean
C0371803 (UMLS CUI [1])
Other Infant complications
Item
Other:
text
C0205394 (UMLS CUI [1,1])
C0021270 (UMLS CUI [1,2])
C0009566 (UMLS CUI [1,3])
Item
Did the infant have a congenital anomality?
integer
C0000768 (UMLS CUI [1,1])
C0021270 (UMLS CUI [1,2])
Congenital anomaly
Code List
Did the infant have a congenital anomality?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Congenital anomaly: Neural tube defects
Item
Neural tube defects
boolean
C0021270 (UMLS CUI [1,1])
C0027794 (UMLS CUI [1,2])
Congenital anomaly: Microcephaly
Item
Microcephaly
boolean
C0021270 (UMLS CUI [1,1])
C0025958 (UMLS CUI [1,2])
Congenital anomaly: Malformations of ear
Item
Malformations of ear
boolean
C0021270 (UMLS CUI [1,1])
C0266589 (UMLS CUI [1,2])
Congenital anomaly: Congenital heart defects
Item
Congenital heart defects
boolean
C0021270 (UMLS CUI [1,1])
C0018798 (UMLS CUI [1,2])
Congenital anomaly: Orofacial clefts
Item
Orofacial clefts
boolean
C0021270 (UMLS CUI [1,1])
C3266076 (UMLS CUI [1,2])
Congenital anomaly: Malformations of digestive system
Item
Malformations of digestive system
boolean
C0266015 (UMLS CUI [1,1])
C0021270 (UMLS CUI [1,2])
Congenital anomaly: Malformations of genital organs
Item
Malformations of genital organs
boolean
C0158687 (UMLS CUI [1,1])
C0021270 (UMLS CUI [1,2])
Congenital anomaly: Abdominal wall defects
Item
Abdominal wall defects
boolean
C0000768 (UMLS CUI [1,1])
C0238577 (UMLS CUI [1,2])
C0021270 (UMLS CUI [1,3])
Congenital anomaly:Chromosomal abnormalities
Item
Chromosomal abnormalities
boolean
C0000768 (UMLS CUI [1,1])
C0008625 (UMLS CUI [1,2])
C0021270 (UMLS CUI [1,3])
Congenital anomaly: Reduction defects of upper and lower limb
Item
Reduction defects of upper and lower limb
boolean
C0000768 (UMLS CUI [1,1])
C0265566 (UMLS CUI [1,2])
C0021270 (UMLS CUI [1,3])
C0000768 (UMLS CUI [2,1])
C0265618 (UMLS CUI [2,2])
C0021270 (UMLS CUI [2,3])
Congenital anomaly: Talipes equinovarus/clubfoot
Item
Talipes equinovarus/clubfoot
boolean
C0009081 (UMLS CUI [1,1])
C0021270 (UMLS CUI [1,2])
Other congenital anomaly
Item
Other congenital anomaly:
text
C0021270 (UMLS CUI [1,1])
C0000768 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
Neonatal outcome
integer
C2939425 (UMLS CUI [1,1])
C1547647 (UMLS CUI [1,2])
Neonatal outcome
Code List
Neonatal outcome
CL Item
Discharged healthy (1)
CL Item
Discharged with complications/sequelae (2)
CL Item
Still in neonatal ward (3)
CL Item
Referred to other hospital (4)
CL Item
Death (5)
CL Item
Unknown (6)
CL Item
N/A (7)
Discharged with complications/sequelae - details
Item
If discharged with complications/sequelae, details:
text
C0030685 (UMLS CUI [1,1])
C1709862 (UMLS CUI [1,2])
C0030685 (UMLS CUI [2,1])
C0009566 (UMLS CUI [2,2])
C1709277 (UMLS CUI [2,3])
Neonatal outcome - death date
Item
If Death: date of death
date
C2939425 (UMLS CUI [1,1])
C1148348 (UMLS CUI [1,2])
Item
If neonate died, what was the primary cause of death?
integer
C2939425 (UMLS CUI [1,1])
C3262229 (UMLS CUI [1,2])
Primary cause of death
Code List
If neonate died, what was the primary cause of death?
CL Item
Preterm (1)
CL Item
Low birth weight (2)
CL Item
Birth asphyxia (3)
CL Item
Infection (4)
CL Item
Birth trauma (5)
CL Item
Congenital/birth defects (6)
CL Item
Other (7)
CL Item
Unknown (8)
If infection: specify pathogen
Item
If infection: specify pathogen:
text
C2939425 (UMLS CUI [1,1])
C3262229 (UMLS CUI [1,2])
C0450254 (UMLS CUI [1,3])
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