ID
43611
Description
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.
Link
https://www.commondataelements.ninds.nih.gov/
Keywords
Versions (2)
- 4/19/16 4/19/16 -
- 9/20/21 9/20/21 -
Uploaded on
September 20, 2021
DOI
To request one please log in.
License
Creative Commons BY-NC 3.0
Model comments :
You can comment on the data model here. Via the speech bubbles at the itemgroups and items you can add comments to those specificially.
Itemgroup comments for :
Item comments for :
In order to download data models you must be logged in. Please log in or register for free.
NINDS CDE Classification of Etiology,Seizures and syndromes by age of onset Epilepsy
Classification of Etiology,Seizures and syndromes by age of onset
Description
Specific Etiology
Description
Infections
Data type
integer
Alias
- UMLS CUI [1]
- C0009450
Description
Infections
Data type
integer
Alias
- UMLS CUI [1]
- C0009450
Description
Infections
Data type
text
Alias
- UMLS CUI [1]
- C0009450
Description
Traumatic brain injury
Data type
integer
Alias
- UMLS CUI [1]
- C0876926
Description
Traumatic brain injury
Data type
integer
Alias
- UMLS CUI [1]
- C0876926
Description
Traumatic brain injury
Data type
text
Alias
- UMLS CUI [1]
- C0876926
Description
Stroke
Data type
integer
Alias
- UMLS CUI [1]
- C0038454
Description
Stroke
Data type
integer
Alias
- UMLS CUI [1]
- C0038454
Description
Stroke
Data type
text
Alias
- UMLS CUI [1]
- C0038454
Description
Intraventricular hemorrhage
Data type
integer
Alias
- UMLS CUI [1]
- C0240059
Description
Intraventricular hemorrhage
Data type
integer
Alias
- UMLS CUI [1]
- C0240059
Description
Intraventricular hemorrhage
Data type
text
Alias
- UMLS CUI [1]
- C0240059
Description
Hypoxic-ischemic encephalopathy
Data type
integer
Alias
- UMLS CUI [1]
- C0149878
Description
Hypoxic-ischemic encephalopathy
Data type
integer
Alias
- UMLS CUI [1]
- C0149878
Description
Hypoxic-ischemic encephalopathy
Data type
text
Alias
- UMLS CUI [1]
- C0149878
Description
Other metabolic or toxic insults
Data type
integer
Alias
- UMLS CUI [1]
- C0600688
- UMLS CUI [2]
- C0006112
Description
Other metabolic or toxic insults
Data type
integer
Alias
- UMLS CUI [1]
- C0600688
- UMLS CUI [2]
- C0006112
Description
Other metabolic or toxic insults
Data type
text
Alias
- UMLS CUI [1]
- C0600688
- UMLS CUI [2]
- C0006112
Description
Neurocutaneous syndromes
Data type
integer
Alias
- UMLS CUI [1]
- C0265316
Description
Neurocutaneous syndromes
Data type
integer
Alias
- UMLS CUI [1]
- C0265316
Description
Neurocutaneous syndromes
Data type
text
Alias
- UMLS CUI [1]
- C0265316
Description
Inborn errors of metabolism
Data type
integer
Alias
- UMLS CUI [1]
- C0025521
Description
Inborn errors of metabolism
Data type
integer
Alias
- UMLS CUI [1]
- C0025521
Description
Inborn errors of metabolism
Data type
text
Alias
- UMLS CUI [1]
- C0025521
Description
Genetic and chromosomal development encephalopathies
Data type
integer
Alias
- UMLS CUI [1,1]
- C0085584
- UMLS CUI [1,2]
- C0008626
- UMLS CUI [1,3]
- C0314603
Description
Genetic and chromosomal development encephalopathies
Data type
integer
Alias
- UMLS CUI [1,1]
- C0085584
- UMLS CUI [1,2]
- C0008626
- UMLS CUI [1,3]
- C0314603
Description
Genetic and chromosomal development encephalopathies
Data type
text
Alias
- UMLS CUI [1,1]
- C0085584
- UMLS CUI [1,2]
- C0008626
- UMLS CUI [1,3]
- C0314603
Description
Developmental encephalopathy of unknown cause
Data type
integer
Alias
- UMLS CUI [1,1]
- C0085584
- UMLS CUI [1,2]
- C0458003
- UMLS CUI [1,3]
- C1385132
Description
Developmental encephalopathy of unknown cause
Data type
integer
Alias
- UMLS CUI [1,1]
- C0085584
- UMLS CUI [1,2]
- C0458003
- UMLS CUI [1,3]
- C1385132
Description
Developmental encephalopathy of unknown cause
Data type
text
Alias
- UMLS CUI [1,1]
- C0085584
- UMLS CUI [1,2]
- C0458003
- UMLS CUI [1,3]
- C1385132
Description
Malformations of cortical or other brain development
Data type
integer
Alias
- UMLS CUI [1]
- C1955869
- UMLS CUI [2]
- C0266449
Description
Malformations of cortical or other brain development
Data type
integer
Alias
- UMLS CUI [1]
- C1955869
- UMLS CUI [2]
- C0266449
Description
Malformations of cortical or other brain development
Data type
text
Alias
- UMLS CUI [1]
- C1955869
- UMLS CUI [2]
- C0266449
Description
Neoplasia
Data type
integer
Alias
- UMLS CUI [1]
- C1882062
Description
Neoplasia
Data type
integer
Alias
- UMLS CUI [1]
- C1882062
Description
Neoplasia
Data type
text
Alias
- UMLS CUI [1]
- C1882062
Description
Mesial temporal sclerosis
Data type
integer
Alias
- UMLS CUI [1]
- C2062593
Description
Mesial temporal sclerosis
Data type
integer
Alias
- UMLS CUI [1]
- C2062593
Description
Mesial temporal sclerosis
Data type
text
Alias
- UMLS CUI [1]
- C2062593
Description
Dementia
Data type
integer
Alias
- UMLS CUI [1]
- C0497327
Description
Dementia
Data type
integer
Alias
- UMLS CUI [1]
- C0497327
Description
Dementia
Data type
text
Alias
- UMLS CUI [1]
- C0497327
Description
Degenerative neurologic diseases
Data type
integer
Alias
- UMLS CUI [1]
- C0524851
Description
Degenerative neurologic diseases
Data type
integer
Alias
- UMLS CUI [1]
- C0524851
Description
Genetic or presumed genetic
Data type
text
Alias
- UMLS CUI [1]
- C0017399
Description
Genetic or presumed genetic
Data type
integer
Alias
- UMLS CUI [1]
- C0017399
Description
Genetic or presumed genetic
Data type
integer
Alias
- UMLS CUI [1]
- C0017399
Description
Genetic or presumed genetic,
Data type
text
Alias
- UMLS CUI [1]
- C0017399
Description
Epilepsy of unknown cause
Data type
integer
Alias
- UMLS CUI [1]
- C0086237
Description
Epilepsy of unknown cause
Data type
integer
Alias
- UMLS CUI [1]
- C0086237
Description
Epilepsy of unknown cause
Data type
text
Alias
- UMLS CUI [1]
- C0086237
Description
Other Etiology
Data type
text
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0015127
Description
Other etiology
Data type
integer
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0015127
Description
Other etiology
Data type
integer
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0015127
Description
Other etiology
Data type
text
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0015127
Description
Classification of Seizures
Description
Please complete table of Generalized seizure subtypes
Data type
boolean
Alias
- UMLS CUI [1]
- C0234533
Description
Generalized Seizure Tonic clonic
Data type
integer
Alias
- UMLS CUI [1]
- C0748577
Description
Generalized Seizure Absence
Data type
integer
Alias
- UMLS CUI [1]
- C0014553
Description
Generalized Seizure Typical
Data type
integer
Alias
- UMLS CUI [1]
- C0311334
Description
Generalized Seizure Atypical
Data type
integer
Alias
- UMLS CUI [1]
- C0595948
Description
Generalized Seizure Myoclonic absence
Data type
integer
Alias
- UMLS CUI [1]
- C0393703
Description
Generalized Seizure Eyelid myoclonia
Data type
integer
Alias
- UMLS CUI [1]
- C4023513
Description
Generalized Seizure Myoclonic
Data type
integer
Alias
- UMLS CUI [1]
- C0014550
Description
Generalized Seizure Myoclonic atonic
Data type
integer
Alias
- UMLS CUI [1]
- C0393702
Description
Generalized Seizure Myoclonic tonic
Data type
integer
Alias
- UMLS CUI [1,1]
- C0014550
- UMLS CUI [1,2]
- C0270844
Description
Generalized Seizure Clonic
Data type
integer
Alias
- UMLS CUI [1]
- C0234535
Description
Generalized seizures tonic
Data type
integer
Alias
- UMLS CUI [1]
- C0270844
Description
Generalized seizures atonic
Data type
integer
Alias
- UMLS CUI [1]
- C2228222
Description
Please complete table of Focal seizure subtypes
Data type
boolean
Alias
- UMLS CUI [1]
- C0751495
Description
Focal Seizure Subtypes (according to degree of impairment)
Data type
integer
Alias
- UMLS CUI [1]
- C0751495
Description
Focal Seizure
Data type
integer
Alias
- UMLS CUI [1]
- C0016399
Description
Focal Seizure
Data type
integer
Alias
- UMLS CUI [1]
- C0752322
Description
Focal Seizure
Data type
integer
Alias
- UMLS CUI [1]
- C0270834
Description
Focal Seizure
Data type
integer
Alias
- UMLS CUI [1]
- C2875090
Description
Please complete table of Unclassified seizure type
Data type
boolean
Alias
- UMLS CUI [1]
- C0270826
Description
Unclassified Seizure
Data type
integer
Alias
- UMLS CUI [1]
- C0270826
Description
Unclassified Seizure
Data type
integer
Alias
- UMLS CUI [1]
- C0270826
Description
confidence level
Data type
integer
Alias
- UMLS CUI [1]
- C0518578
Description
Date of completion
Data type
date
Alias
- UMLS CUI [1]
- C0011008
Description
Information complete
Data type
date
Alias
- UMLS CUI [1,1]
- C0205197
- UMLS CUI [1,2]
- C0012972
Description
Syndromes by Age of Onset
Description
Neonatal Period BFNE
Data type
integer
Alias
- UMLS CUI [1]
- C0220669
Description
Neonatal Period EME
Data type
integer
Alias
- UMLS CUI [1]
- C0270855
Description
Neonatal Period Ohtahara syndrome
Data type
integer
Alias
- UMLS CUI [1]
- C0393706
Description
Epilepsy of infancy with migrating focal seizures
Data type
integer
Alias
- UMLS CUI [1,1]
- C1858477
- UMLS CUI [1,2]
- C0231330
Description
Infancy West syndrome
Data type
integer
Alias
- UMLS CUI [1]
- C0037769
Description
Infancy MEI
Data type
integer
Alias
- UMLS CUI [1]
- C0917800
Description
Benign infantile epilepsy
Data type
integer
Alias
- UMLS CUI [1]
- C0751120
Description
Benign familial infantile epilepsy
Data type
integer
Alias
- UMLS CUI [1,1]
- C0391958
- UMLS CUI [1,2]
- C0205183
- UMLS CUI [1,3]
- C0231330
Description
Infancy Dravet syndrome
Data type
integer
Alias
- UMLS CUI [1]
- C0751122
Description
Infancy Myoclonic encephalopathy in nonprogressive disorders
Data type
integer
Alias
- UMLS CUI [1]
- C0270855
Description
Childhood Febrile seizures plus
Data type
integer
Alias
- UMLS CUI [1]
- C0009952
Description
Benign childhood occipital epilepsy
Data type
integer
Alias
- UMLS CUI [1]
- C0393676
Description
Epilepsy with myoclonic atonic seizures
Data type
integer
Alias
- UMLS CUI [1]
- C0393702
Description
Benign childhood epilepsy BCECTS
Data type
integer
Alias
- UMLS CUI [1]
- C2363129
Description
Nocturnal frontal lobe epilepsy ADNFLE
Data type
integer
Alias
- UMLS CUI [1]
- C3696898
Description
Late onset childhood occipital epilepsy (Gastaut type)
Data type
integer
Alias
- UMLS CUI [1]
- C0393677
Description
Childhood Epilepsy with myoclonic absences
Data type
integer
Alias
- UMLS CUI [1]
- C0393703
Description
Lennox-Gastaut syndrome
Data type
integer
Alias
- UMLS CUI [1]
- C0238111
Description
Epileptic encephalopathy CSWS
Data type
integer
Alias
- UMLS CUI [1]
- C3806403
Description
Landau-Kleffner syndrome (LKS)
Data type
integer
Alias
- UMLS CUI [1]
- C0282512
Description
Childhood absence epilepsy (CAE)
Data type
integer
Alias
- UMLS CUI [1]
- C3263988
Description
Adolescence – Adult JAE
Data type
integer
Alias
- UMLS CUI [1]
- C1833495
Description
Other familial temporal lobe epilepsies
Data type
integer
Alias
- UMLS CUI [1]
- C1842564
Description
Juvenile myoclonic epilepsy
Data type
integer
Alias
- UMLS CUI [1]
- C0270853
Description
Progressive myoclonus epilepsies
Data type
integer
Alias
- UMLS CUI [1]
- C0751778
Description
Autosomal Dominant Epilepsy with Auditory Features (ADEAF)
Data type
integer
Alias
- UMLS CUI [1]
- C1838062
Description
Epilepsy with generalized tonic-clonic seizures alone
Data type
integer
Alias
- UMLS CUI [1]
- C1843234
Description
Familial focal epilepsy with variable foci (childhood to adult)
Data type
integer
Alias
- UMLS CUI [1]
- C1858477
Description
Reflex epilepsies
Data type
integer
Alias
- UMLS CUI [1]
- C0270857
Description
Mesial temporal lobe epilepsy
Data type
integer
Alias
- UMLS CUI [1]
- C1968848
Description
Rasmussen syndrome
Data type
integer
Alias
- UMLS CUI [1]
- C0393484
Description
Gelastic seizures with hypothalamic hamartoma
Data type
integer
Alias
- UMLS CUI [1,1]
- C0270820
- UMLS CUI [1,2]
- C0342418
Description
Temporal lobe epilepsy
Data type
integer
Alias
- UMLS CUI [1]
- C0014556
Description
Frontal lobe epilepsy
Data type
integer
Alias
- UMLS CUI [1]
- C0085541
Description
Occipital lobe epilepsy
Data type
integer
Alias
- UMLS CUI [1]
- C0393691
Description
Parietal lobe epilepsy
Data type
integer
Alias
- UMLS CUI [1]
- C0393690
Description
Focal epilepsy (specific localization unknown)
Data type
integer
Alias
- UMLS CUI [1]
- C0014547
Description
Unspecified epilepsy
Data type
integer
Alias
- UMLS CUI [1]
- C0154722
Description
Confidence level
Data type
integer
Alias
- UMLS CUI [1]
- C0518578
Similar models
Classification of Etiology,Seizures and syndromes by age of onset
C0006112 (UMLS CUI [2])
C0006112 (UMLS CUI [2])
C0006112 (UMLS CUI [2])
C0008626 (UMLS CUI [1,2])
C0314603 (UMLS CUI [1,3])
C0008626 (UMLS CUI [1,2])
C0314603 (UMLS CUI [1,3])
C0008626 (UMLS CUI [1,2])
C0314603 (UMLS CUI [1,3])
C0458003 (UMLS CUI [1,2])
C1385132 (UMLS CUI [1,3])
C0458003 (UMLS CUI [1,2])
C1385132 (UMLS CUI [1,3])
C0458003 (UMLS CUI [1,2])
C1385132 (UMLS CUI [1,3])
C0266449 (UMLS CUI [2])
C0266449 (UMLS CUI [2])
C0266449 (UMLS CUI [2])
C0015127 (UMLS CUI [1,2])
C0015127 (UMLS CUI [1,2])
C0270844 (UMLS CUI [1,2])
C0012972 (UMLS CUI [1,2])
C0231330 (UMLS CUI [1,2])
C0205183 (UMLS CUI [1,2])
C0231330 (UMLS CUI [1,3])
C0342418 (UMLS CUI [1,2])