ID

44685

Descripción

Source: Swedish National Quality Registry for Leukaemia http://www.cancercentrum.se/samverkan/cancerdiagnoser/blod-lymfom-myelom/

Link

http://www.cancercentrum.se/samverkan/cancerdiagnoser/blod-lymfom-myelom/

Palabras clave

Versiones (7)
  1. 14/10/17 14/10/17 - Martin Dugas
  2. 14/10/17 14/10/17 - Martin Dugas
  3. 21/10/17 21/10/17 - Martin Dugas
  4. 22/10/17 22/10/17 - Martin Dugas
  5. 22/10/17 22/10/17 - Martin Dugas
  6. 22/10/17 22/10/17 - Martin Dugas
  7. 27/9/21 27/9/21 -
Titular de derechos de autor

Regionala cancercentrum i samverkan

Subido en

27 de septiembre de 2021

DOI

Para solicitar uno, por favor iniciar sesión.

Licencia

Creative Commons BY-NC 3.0
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Swedish MDS registry

Inglés Sueco

Myelodysplastic Syndrome - Registration

2 formularios  
Registration form and Cancer notification
Descripción

Registration form and Cancer notification

Alias
UMLS CUI-1
C1514821
Reporting hospital / clinic
Descripción

Reporting hospital

Tipo de datos

text

Alias
UMLS CUI [1]
C0019994
Reporting doctor
Descripción

Reporting doctor

Tipo de datos

text

Alias
UMLS CUI [1]
C0031831
Rapporteringsdatum
Descripción

reporting date

Tipo de datos

date

Alias
UMLS CUI [1]
C1302584
Personnummer
Descripción

patient number

Tipo de datos

text

Alias
UMLS CUI [1]
C1830427
Patient Name
Descripción

Name

Tipo de datos

text

Alias
UMLS CUI [1]
C1299487
Lead times
Descripción

Lead times

Referral written
Descripción

Referral written

Tipo de datos

date

Alias
UMLS CUI [1]
C2735614
Referral written
Descripción

Referral written

Tipo de datos

integer

Alias
UMLS CUI [1]
C2735614
Referral received
Descripción

Referral received

Tipo de datos

date

Alias
UMLS CUI [1]
C2735614
Referral received
Descripción

Referral received

Tipo de datos

integer

Alias
UMLS CUI [1]
C2735614
First patient visit to reporting unit
Descripción

First patient visit to reporting unit

Tipo de datos

date

Alias
UMLS CUI [1]
C4287881
Diagnosis
Descripción

Diagnosis

Alias
UMLS CUI-1
C0011900
Date of diagnosis
Descripción

If bone marrow tests provide a safe diagnosis, the date of diagnosis is the date on which the bone marrow test was taken. In other cases, the date when MDS was determined based on the inquiry / clinic

Tipo de datos

date

Alias
UMLS CUI [1]
C2316983
Diagnosis according to WHO classification
Descripción

Diagnosis WHO classification

Tipo de datos

integer

Alias
UMLS CUI [1]
C1301142
Diagnosis comment
Descripción

Diagnosis comment

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0011900
UMLS CUI [1,2]
C0947611
MDS category
Descripción

MDS category

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C3463824
UMLS CUI [1,2]
C0683312
Biobank
Descripción

Biobank

Alias
UMLS CUI-1
C2347027
Samples to national biobank sent
Descripción

Samples to national biobank sent

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C0370003
UMLS CUI [1,3]
C1515023
Samples are also sent to another biobank
Descripción

Samples are also sent to another biobank

Tipo de datos

integer

Which biobank
Descripción

Which biobank

Tipo de datos

text

Alias
UMLS CUI [1]
C2347027
PREVIOUS DISEASE
Descripción

PREVIOUS DISEASE

Alias
UMLS CUI-1
C0683519
History of cytostatics for malignant disease
Descripción

History of cytostatics for malignant disease

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0010858
UMLS CUI [1,2]
C0455471
History of cytostatics for non-malignant disease
Descripción

History of cytostatics for non-malignant disease

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0010858
UMLS CUI [1,2]
C0262926
UMLS CUI [1,3]
C1518371
undefined item
Descripción

undefined item

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C1522449
UMLS CUI [1,2]
C0262926
History of hematological disease
Descripción

History of hematological disease

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0262926
Previous hematological disease
Descripción

Previous hematological disease

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0205156
Other previous hematological disease
Descripción

Other previous hematological disease

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0205156
UMLS CUI [1,3]
C0205394
Diagnosis year and month of previous hematological disease
Descripción

Diagnosis year and month of previous hematological disease

Tipo de datos

partialDate

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C2316983
MDS perceived as
Descripción

MDS perceived as

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C3463824
UMLS CUI [1,2]
C0332307
TRANSFUSIONS RESERVED BY DIAGNOSIS
Descripción

TRANSFUSIONS RESERVED BY DIAGNOSIS

Alias
UMLS CUI-1
C1879316
Erythrocyte transfusion
Descripción

Erythrocyte transfusion

Tipo de datos

integer

Alias
UMLS CUI [1]
C0086252
Hemoglobin before first transfusion
Descripción

Hemoglobin before first transfusion

Tipo de datos

float

Unidades de medida
  • g/dl
Alias
UMLS CUI [1,1]
C0019046
UMLS CUI [1,2]
C1979588
g/dl
Thrombocyte transfusion
Descripción

Thrombocyte transfusion

Tipo de datos

integer

Alias
UMLS CUI [1]
C0086818
BLOOD SAMPLES at diagnosis
Descripción

BLOOD SAMPLES at diagnosis

Alias
UMLS CUI-1
C0018941
UMLS CUI-2
C0441942
Hb
Descripción

Hb

Tipo de datos

float

Unidades de medida
  • g/dl
Alias
UMLS CUI [1]
C0019046
g/dl
MCV
Descripción

MCV

Tipo de datos

text

Unidades de medida
  • fL
Alias
UMLS CUI [1]
C1948043
fL
White blood cells
Descripción

White blood cells

Tipo de datos

float

Unidades de medida
  • 10E9/L
Alias
UMLS CUI [1]
C0023508
10E9/L
Neutrophil granulocytes
Descripción

Neutrophil granulocytes

Tipo de datos

float

Unidades de medida
  • 10E9/L
Alias
UMLS CUI [1]
C0018183
10E9/L
Neutrophil granulocytes
Descripción

Neutrophil granulocytes

Tipo de datos

float

Unidades de medida
  • %
Alias
UMLS CUI [1]
C0018183
%
Monocytes
Descripción

Monocytes

Tipo de datos

float

Unidades de medida
  • 10E9/L
Alias
UMLS CUI [1]
C0026473
10E9/L
Monocytes
Descripción

Monocytes

Tipo de datos

float

Unidades de medida
  • %
Alias
UMLS CUI [1]
C0026473
%
Blasts in blood
Descripción

Blasts in blood

Tipo de datos

float

Unidades de medida
  • 10E9/L
Alias
UMLS CUI [1,1]
C0368761
UMLS CUI [1,2]
C0229664
10E9/L
Blasts in blood
Descripción

Blasts in blood

Tipo de datos

float

Unidades de medida
  • %
Alias
UMLS CUI [1,1]
C0368761
UMLS CUI [1,2]
C0229664
%
Platelets
Descripción

Platelets

Tipo de datos

float

Unidades de medida
  • 10E9/L
Alias
UMLS CUI [1]
C0005821
10E9/L
LDH
Descripción

LDH

Tipo de datos

float

Unidades de medida
  • µkat/l
Alias
UMLS CUI [1]
C0202113
µkat/l
Erythropoetin
Descripción

Erythropoetin

Tipo de datos

float

Unidades de medida
  • IE/L
Alias
UMLS CUI [1]
C0014822
IE/L
Ferritin
Descripción

Ferritin

Tipo de datos

float

Unidades de medida
  • µg/l
Alias
UMLS CUI [1]
C0015879
µg/l
JAK2/V617F
Descripción

JAK2/V617F

Tipo de datos

integer

Alias
UMLS CUI [1]
C2210829
BONE MARROW AT DIAGNOSIS
Descripción

BONE MARROW AT DIAGNOSIS

Alias
UMLS CUI-1
C0005953
UMLS CUI-2
C0441942
Bone marrow test performed
Descripción

Bone marrow test performed

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C0884358
Aspirate
Descripción

Aspirate

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0398523
Diagnostic lab / Clinic
Descripción

Diagnostic lab / Clinic

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0022877
UMLS CUI [1,2]
C0442592
Sample ID
Descripción

Sample ID

Tipo de datos

text

Alias
UMLS CUI [1]
C1299222
Sample year
Descripción

Sample year

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C0439234
Biopsy
Descripción

Biopsy

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0005558
Diagnostic lab / Clinic
Descripción

Diagnostic lab / Clinic

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0022877
UMLS CUI [1,2]
C0442592
Sample ID
Descripción

Sample ID

Tipo de datos

text

Alias
UMLS CUI [1]
C1299222
Sample year
Descripción

Sample year

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C0439234
Cell contents
Descripción

Cell contents

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0007634
UMLS CUI [1,2]
C0456205
Percentage of blasts in bone marrow
Descripción

Percentage of blasts in bone marrow

Tipo de datos

float

Unidades de medida
  • %
Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C0439165
%
Exact blast fraction bone marrow not indicated; no blast increase
Descripción

no blast increase

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C1518422
UMLS CUI [1,3]
C0442805
Proportion of blasts missing / cannot be assessed
Descripción

Proportion of blasts missing

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0587348
UMLS CUI [1,2]
C1705492
Ring sideroblasts >=15% of erythropoietic cells
Descripción

Ring sideroblasts >=15% of erythropoietic cells

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0432608
UMLS CUI [1,2]
C0205217
Fibrosis grade 2-3
Descripción

Fibrosis

Tipo de datos

integer

Alias
UMLS CUI [1]
C0016059
Cytogenetics at diagnosis (+/- 6 months from diagnosis)
Descripción

Cytogenetics at diagnosis (+/- 6 months from diagnosis)

Alias
UMLS CUI-1
C0010802
UMLS CUI-2
C4071762
Cytogenetik utförd
Descripción

Cytogenetics performed

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C0884358
Diagnostic lab / Clinic
Descripción

Diagnostic lab / Clinic

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0022877
UMLS CUI [1,2]
C0442592
Sample ID
Descripción

Sample ID

Tipo de datos

text

Alias
UMLS CUI [1]
C1299222
Sample year
Descripción

Sample year

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C0439234
Result of cytogenetics
Descripción

Result of cytogenetics

Tipo de datos

integer

Alias
UMLS CUI [1]
C0010802
Karyotype text
Descripción

Karyotype text

Tipo de datos

text

Alias
UMLS CUI [1]
C1261273
IPSS
Descripción

IPSS

Alias
UMLS CUI-1
C2827405
IPSS
Descripción

IPSS

Tipo de datos

integer

Alias
UMLS CUI [1]
C2827405
IPSS-R
Descripción

IPSS-R

Tipo de datos

integer

Alias
UMLS CUI [1]
C2827405
IPSS-R could not be calculated because one of the following was missing: Hb, neutrophils, platelets, bone marrow blast fraction or cytogenetics. Please check the entered data.
Descripción

IPSS-R could not be calculated

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0686905
Diagnosis reason
Descripción

Diagnosis reason

Alias
UMLS CUI-1
C0011900
UMLS CUI-2
C0566251
Bone marrow tests provided safe diagnosis
Descripción

Bone marrow tests provided safe diagnosis

Tipo de datos

integer

Alias
UMLS CUI [1]
C0005957
WHO performance status
Descripción

WHO performance status

Tipo de datos

text

Alias
UMLS CUI [1]
C1298650
Treatment
Descripción

Treatment

Alias
UMLS CUI-1
C0087111
Treatment decision after diagnosis
Descripción

Treatment decision after diagnosis

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0679006
Treatment start date
Descripción

Treatment start date

Tipo de datos

date

Alias
UMLS CUI [1]
C3173309
Not yet started treatment
Descripción

Not yet started treatment

Tipo de datos

boolean

Alias
UMLS CUI [1]
C1444646
Treatment according to
Descripción

Treatment according to

Tipo de datos

integer

Alias
UMLS CUI [1]
C0162791
Study name
Descripción

Study name

Tipo de datos

text

Alias
UMLS CUI [1]
C2348560
Allogeneic stem cell transplantation
Descripción

Allogeneic stem cell transplantation

Tipo de datos

integer

Alias
UMLS CUI [1]
C2242529
Follow-Up
Descripción

Follow-Up

Alias
UMLS CUI-1
C1522577
Hospital
Descripción

Hospital

Tipo de datos

text

Alias
UMLS CUI [1]
C0019994
Clinic
Descripción

Clinic

Tipo de datos

text

Alias
UMLS CUI [1]
C0442592
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Similar models

Myelodysplastic Syndrome - Registration

2 formularios
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de datos
Alias
Item Group
Registration form and Cancer notification
C1514821 (UMLS CUI-1)
Reporting hospital
Item
Reporting hospital / clinic
text
C0019994 (UMLS CUI [1])
Reporting doctor
Item
Reporting doctor
text
C0031831 (UMLS CUI [1])
reporting date
Item
Rapporteringsdatum
date
C1302584 (UMLS CUI [1])
patient number
Item
Personnummer
text
C1830427 (UMLS CUI [1])
Name
Item
Patient Name
text
C1299487 (UMLS CUI [1])
Item Group
Lead times
Referral written
Item
Referral written
date
C2735614 (UMLS CUI [1])
Item
Referral written
integer
C2735614 (UMLS CUI [1])
undefined item
Code List
Referral written
CL Item
Not applicable (1)
C1272460 (UMLS CUI-1)
(Comment:en)
CL Item
Data not available (2)
C1883066 (UMLS CUI-1)
(Comment:en)
Referral received
Item
Referral received
date
C2735614 (UMLS CUI [1])
Item
Referral received
integer
C2735614 (UMLS CUI [1])
undefined item
Code List
Referral received
CL Item
Not applicable (1)
C1272460 (UMLS CUI-1)
(Comment:en)
CL Item
Data not available (2)
C1883066 (UMLS CUI-1)
(Comment:en)
First patient visit to reporting unit
Item
First patient visit to reporting unit
date
C4287881 (UMLS CUI [1])
Item Group
Diagnosis
C0011900 (UMLS CUI-1)
Date of diagnosis
Item
Date of diagnosis
date
C2316983 (UMLS CUI [1])
Item
Diagnosis according to WHO classification
integer
C1301142 (UMLS CUI [1])
undefined item
Code List
Diagnosis according to WHO classification
CL Item
RA (1)
C0002893 (UMLS CUI-1)
SNOMED - 99803 (Comment:sv)
CL Item
RN (2)
C2826320 (UMLS CUI-1)
SNOMED - 99803 (Comment:sv)
CL Item
RT (3)
C2826321 (UMLS CUI-1)
SNOMED - 99823 (Comment:sv)
CL Item
RCMD (4)
C0796466 (UMLS CUI-1)
SNOMED - 99853 (Comment:sv)
CL Item
RARS (5)
C1264195 (UMLS CUI-1)
SNOMED - 99823 (Comment:sv)
CL Item
RAEB-1 (6)
C1318550 (UMLS CUI-1)
SNOMED - 99833 (Comment:sv)
CL Item
RAEB-2 (7)
C1318551 (UMLS CUI-1)
SNOMED - 99833 (Comment:sv)
CL Item
5q-syndrom (8)
C0740302 (UMLS CUI-1)
SNOMED - 99863 (Comment:sv)
CL Item
MDS,UNS (9)
C3463824 (UMLS CUI-1)
C0205370 (UMLS CUI-2)
SNOMED - 99893 (Comment:sv)
CL Item
CMML (10)
C0023480 (UMLS CUI-1)
SNOMED - 99453 (Comment:sv)
CL Item
Atypisk kronisk myeloid leukemi (11)
C1292772 (UMLS CUI-1)
SNOMED - 98763 (Comment:sv)
CL Item
Juvenil myelomonocytisk leukemi (12)
C0349639 (UMLS CUI-1)
SNOMED - 99463 (Comment:sv)
CL Item
Myelodysplastisk/myeloproliferativ neoplasi,oklassificerbar (13)
C1301355 (UMLS CUI-1)
C0205426 (UMLS CUI-2)
SNOMED - 99753 (Comment:sv)
CL Item
RARS-T (14)
C2826330 (UMLS CUI-1)
SNOMED - 99823 (Comment:sv)
Diagnosis comment
Item
Diagnosis comment
text
C0011900 (UMLS CUI [1,1])
C0947611 (UMLS CUI [1,2])
Item
MDS category
integer
C3463824 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
MDS category
Code List
MDS category
CL Item
Therapy-related (1)
(Comment:sv)
C0877578 (UMLS CUI-1)
(Comment:en)
CL Item
De novo (2)
(Comment:sv)
C1515568 (UMLS CUI-1)
(Comment:en)
Item Group
Biobank
C2347027 (UMLS CUI-1)
Item
integer
C2347027 (UMLS CUI [1,1])
C0370003 (UMLS CUI [1,2])
C1515023 (UMLS CUI [1,3])
Samples to national biobank sent
Code List
Samples to national biobank sent
CL Item
No (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Scheduled but not yet completed (2)
(Comment:sv)
C0424237 (UMLS CUI-1)
(Comment:en)
CL Item
Patient rejects the biobank / cannot ask (3)
(Comment:sv)
C0420590 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (4)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
Samples are also sent to another biobank
Code List
Samples are also sent to another biobank
CL Item
Ja (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Do not know (2)
C1880386 (UMLS CUI-1)
(Comment:en)
Which biobank
Item
text
C2347027 (UMLS CUI [1])
Item Group
PREVIOUS DISEASE
C0683519 (UMLS CUI-1)
Item
integer
C0010858 (UMLS CUI [1,1])
C0455471 (UMLS CUI [1,2])
history of cytostatics for malignant disease
Code List
History of cytostatics for malignant disease
CL Item
No (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Missing Data (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
integer
C0010858 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C1518371 (UMLS CUI [1,3])
history of cytostatics for malignant disease
Code List
History of cytostatics for non-malignant disease
CL Item
No (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Missing Data (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
integer
C1522449 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
history of cytostatics for malignant disease
Code List
undefined item
CL Item
No (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Missing Data (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
integer
C0018939 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
history of cytostatics for malignant disease
Code List
History of hematological disease
CL Item
No (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Missing Data (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
integer
C0018939 (UMLS CUI [1,1])
C0205156 (UMLS CUI [1,2])
Previous hematological disease
Code List
Previous hematological disease
CL Item
ALL (1)
(Comment:sv)
C0023449 (UMLS CUI-1)
(Comment:en)
CL Item
AML (2)
(Comment:sv)
C0023467 (UMLS CUI-1)
(Comment:en)
CL Item
CML (3)
(Comment:sv)
C0023473 (UMLS CUI-1)
(Comment:en)
CL Item
Myeloma (4)
(Comment:sv)
C0026764 (UMLS CUI-1)
(Comment:en)
CL Item
MPN (5)
(Comment:sv)
C0027022 (UMLS CUI-1)
(Comment:en)
CL Item
Lymphoma (6)
(Comment:sv)
C0024299 (UMLS CUI-1)
(Comment:en)
CL Item
CLL (7)
(Comment:sv)
C0023434 (UMLS CUI-1)
(Comment:en)
CL Item
MGUS (8)
(Comment:sv)
C0026470 (UMLS CUI-1)
(Comment:en)
CL Item
Other (9)
(Comment:sv)
C0205394 (UMLS CUI-1)
(Comment:en)
Other previous hematological disease
Item
text
C0018939 (UMLS CUI [1,1])
C0205156 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Diagnosis year and month of previous hematological disease
Item
partialDate
C0018939 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
integer
C3463824 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
MDS perceived as
Code List
MDS perceived as
CL Item
therapy-related (1)
C2924519 (UMLS CUI-1)
(Comment:en)
CL Item
De novo (2)
C1515568 (UMLS CUI-1)
(Comment:en)
Item Group
TRANSFUSIONS RESERVED BY DIAGNOSIS
C1879316 (UMLS CUI-1)
Item
integer
C0086252 (UMLS CUI [1])
Erythrocyte transfusion
Code List
Erythrocyte transfusion
CL Item
Yes (1)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
C0010802 (UMLS CUI-3)
(Comment:en)
CL Item
Diagnosis mainly based on blood samples only (3)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
(Comment:en)
Hemoglobin before first transfusion
Item
float
C0019046 (UMLS CUI [1,1])
C1979588 (UMLS CUI [1,2])
Item
integer
C0086818 (UMLS CUI [1])
Erythrocyte transfusion
Code List
Thrombocyte transfusion
CL Item
Yes (1)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
C0010802 (UMLS CUI-3)
(Comment:en)
CL Item
Diagnosis mainly based on blood samples only (3)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
(Comment:en)
Item Group
BLOOD SAMPLES at diagnosis
C0018941 (UMLS CUI-1)
C0441942 (UMLS CUI-2)
Hb
Item
float
C0019046 (UMLS CUI [1])
MCV
Item
text
C1948043 (UMLS CUI [1])
White blood cells
Item
float
C0023508 (UMLS CUI [1])
Neutrophil granulocytes
Item
float
C0018183 (UMLS CUI [1])
Neutrophil granulocytes
Item
float
C0018183 (UMLS CUI [1])
Monocytes
Item
float
C0026473 (UMLS CUI [1])
Monocytes
Item
float
C0026473 (UMLS CUI [1])
Blasts in blood
Item
float
C0368761 (UMLS CUI [1,1])
C0229664 (UMLS CUI [1,2])
Blasts in blood
Item
float
C0368761 (UMLS CUI [1,1])
C0229664 (UMLS CUI [1,2])
Platelets
Item
float
C0005821 (UMLS CUI [1])
LDH
Item
float
C0202113 (UMLS CUI [1])
Erythropoetin
Item
float
C0014822 (UMLS CUI [1])
Ferritin
Item
float
C0015879 (UMLS CUI [1])
Item
integer
C2210829 (UMLS CUI [1])
JAK2/V617F
Code List
JAK2/V617F
CL Item
Not mutated (1)
C1883559 (UMLS CUI-1)
(Comment:en)
CL Item
Mutated (2)
C0026882 (UMLS CUI-1)
(Comment:en)
CL Item
Not performed (3)
C0445106 (UMLS CUI-1)
(Comment:en)
Item Group
BONE MARROW AT DIAGNOSIS
C0005953 (UMLS CUI-1)
C0441942 (UMLS CUI-2)
Item
integer
C0005957 (UMLS CUI [1,1])
C0884358 (UMLS CUI [1,2])
Erythrocyte transfusion
Code List
Bone marrow test performed
CL Item
Yes (1)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
C0010802 (UMLS CUI-3)
(Comment:en)
CL Item
Diagnosis mainly based on blood samples only (3)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
(Comment:en)
Aspirate
Item
boolean
C0398523 (UMLS CUI [1])
Diagnostic lab / Clinic
Item
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
text
C1299222 (UMLS CUI [1])
Sample year
Item
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Biopsy
Item
boolean
C0005558 (UMLS CUI [1])
Diagnostic lab / Clinic
Item
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
text
C1299222 (UMLS CUI [1])
Sample year
Item
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Item
integer
C0007634 (UMLS CUI [1,1])
C0456205 (UMLS CUI [1,2])
Cell contents
Code List
Cell contents
CL Item
100% (1)
C3817553 (UMLS CUI-1)
(Comment:en)
CL Item
90% (2)
(Comment:en)
CL Item
80% (3)
(Comment:en)
CL Item
70% (4)
(Comment:en)
CL Item
60% (5)
(Comment:en)
CL Item
50% (6)
C3842586 (UMLS CUI-1)
(Comment:en)
CL Item
40% (7)
(Comment:en)
CL Item
30% (8)
(Comment:en)
CL Item
20% (9)
(Comment:en)
CL Item
10% (10)
(Comment:en)
CL Item
Cell content missing (11)
(Comment:en)
CL Item
Exact cell content not specified (12)
(Comment:en)
CL Item
Lower cell contents than normal (13)
(Comment:en)
CL Item
Normal cell contents (14)
(Comment:en)
CL Item
Higher cell contents than normal (15)
(Comment:en)
Percentage of blasts in bone marrow
Item
float
C1982687 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
no blast increase
Item
Exact blast fraction bone marrow not indicated; no blast increase
boolean
C1982687 (UMLS CUI [1,1])
C1518422 (UMLS CUI [1,2])
C0442805 (UMLS CUI [1,3])
Proportion of blasts missing
Item
Proportion of blasts missing / cannot be assessed
boolean
C0587348 (UMLS CUI [1,1])
C1705492 (UMLS CUI [1,2])
Item
integer
C0432608 (UMLS CUI [1,1])
C0205217 (UMLS CUI [1,2])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Ring sideroblasts >=15% of erythropoietic cells
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Not assessed / missing (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
Fibrosis grade 2-3
integer
C0016059 (UMLS CUI [1])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Fibrosis grade 2-3
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Not assessed / missing (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item Group
Cytogenetics at diagnosis (+/- 6 months from diagnosis)
C0010802 (UMLS CUI-1)
C4071762 (UMLS CUI-2)
Item
Cytogenetik utförd
integer
C0010802 (UMLS CUI [1,1])
C0884358 (UMLS CUI [1,2])
Cytogenetics performed
Code List
Cytogenetik utförd
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ja men ej bedömbar (3)
C1707258 (UMLS CUI-1)
(Comment:en)
Diagnostic lab / Clinic
Item
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
text
C1299222 (UMLS CUI [1])
Sample year
Item
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Item
Result of cytogenetics
integer
C0010802 (UMLS CUI [1])
Result of cytogenetics
Code List
Result of cytogenetics
CL Item
Normal (1)
C0205307 (UMLS CUI-1)
(Comment:en)
CL Item
-Y (2)
(Comment:en)
CL Item
Inv(3),t(3q),del(3q) (3)
(Comment:en)
CL Item
del(5q) (4)
C1521461 (UMLS CUI-1)
(Comment:en)
CL Item
Del(7q) (5)
C1517990 (UMLS CUI-1)
(Comment:en)
CL Item
-7 (6)
(Comment:en)
CL Item
+8 (7)
(Comment:en)
CL Item
Del(11q) (8)
(Comment:en)
CL Item
del(12p) (9)
(Comment:en)
CL Item
i(17q) (10)
(Comment:en)
CL Item
+19 (11)
(Comment:sv)
(Comment:en)
CL Item
del(20q) (12)
(Comment:sv)
(Comment:en)
CL Item
1 deviation (not listed above) (13)
(Comment:sv)
(Comment:en)
CL Item
2 deviations including del(5q) (14)
(Comment:sv)
(Comment:en)
CL Item
2 deviations including -7 or del(7q) (15)
(Comment:sv)
(Comment:en)
CL Item
2 other deviations (16)
(Comment:sv)
(Comment:en)
CL Item
Complex with 3 deviations (17)
(Comment:sv)
(Comment:en)
CL Item
Complex with >3 deviations (18)
(Comment:sv)
(Comment:en)
Karyotype text
Item
text
C1261273 (UMLS CUI [1])
Item Group
C2827405 (UMLS CUI-1)
Item
integer
C2827405 (UMLS CUI [1])
IPSS
Code List
IPSS
CL Item
Low (1)
C0205251 (UMLS CUI-1)
(Comment:en)
CL Item
Intermediate 1 (2)
C3640764 (UMLS CUI-1)
C0205447 (UMLS CUI-2)
(Comment:en)
CL Item
Intermediate 2 (3)
C3640764 (UMLS CUI-1)
C0205448 (UMLS CUI-2)
(Comment:en)
CL Item
High (4)
C0205250 (UMLS CUI-1)
(Comment:en)
Item
integer
C2827405 (UMLS CUI [1])
IPSS-R
Code List
IPSS-R
CL Item
Very low (1)
C0442811 (UMLS CUI-1)
(Comment:en)
CL Item
Low (2)
C0205251 (UMLS CUI-1)
(Comment:en)
CL Item
Intermediate (3)
C0205103 (UMLS CUI-1)
(Comment:en)
CL Item
High (4)
C0205250 (UMLS CUI-1)
(Comment:en)
CL Item
Very high (5)
C0442804 (UMLS CUI-1)
(Comment:en)
IPSS-R could not be calculated
Item
IPSS-R could not be calculated because one of the following was missing: Hb, neutrophils, platelets, bone marrow blast fraction or cytogenetics. Please check the entered data.
boolean
C0686905 (UMLS CUI [1])
Item Group
C0011900 (UMLS CUI-1)
C0566251 (UMLS CUI-2)
Item
Bone marrow tests provided safe diagnosis
integer
C0005957 (UMLS CUI [1])
Erythrocyte transfusion
Code List
Bone marrow tests provided safe diagnosis
CL Item
Yes (1)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
C0010802 (UMLS CUI-3)
(Comment:en)
CL Item
Diagnosis mainly based on blood samples only (3)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
(Comment:en)
Item
text
C1298650 (UMLS CUI [1])
WHO performance status
Code List
WHO performance status
CL Item
Completes all normal activity without limitation (0)
(Comment:sv)
C1298651 (UMLS CUI-1)
C0919414 (UMLS CUI-2)
(Comment:en)
CL Item
Does easier work, but not physically demanding activity but is up and running for easier work. (1)
(Comment:sv)
C1298651 (UMLS CUI-1)
C0205447 (UMLS CUI-2)
(Comment:en)
CL Item
Unable to work, but up and running more than 50% of the day (2)
(Comment:sv)
C1298651 (UMLS CUI-1)
C0205448 (UMLS CUI-2)
(Comment:en)
CL Item
Can take care of himself/herself only in part. Is bound to bed or chair more than 50% of the day (3)
(Comment:sv)
C1298651 (UMLS CUI-1)
C0205449 (UMLS CUI-2)
(Comment:en)
CL Item
Cannot take care of himself/herself. Is bound to bed or chair (4)
(Comment:sv)
C1298651 (UMLS CUI-1)
C0205450 (UMLS CUI-2)
(Comment:en)
CL Item
unknown (NA)
C1880386 (UMLS CUI-1)
(Comment:en)
Item Group
C0087111 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI [1,1])
C0679006 (UMLS CUI [1,2])
Treatment decision after diagnosis
Code List
Treatment decision after diagnosis
CL Item
Induction therapy (1)
(Comment:en)
C3179010 (UMLS CUI-1)
(Comment:sv)
CL Item
Azacytidine (2)
(Comment:en)
C0004475 (UMLS CUI-1)
(Comment:sv)
CL Item
Hydroxyurea (3)
(Comment:en)
C0020402 (UMLS CUI-1)
(Comment:sv)
CL Item
Erythropoetin (4)
(Comment:en)
C0014822 (UMLS CUI-1)
(Comment:sv)
CL Item
Immunsuppressive therapy (5)
(Comment:en)
C0021081 (UMLS CUI-1)
(Comment:sv)
CL Item
Lenalidomide (6)
(Comment:en)
C1144149 (UMLS CUI-1)
(Comment:sv)
CL Item
Chelation therapy (7)
(Comment:en)
C0007975 (UMLS CUI-1)
(Comment:sv)
CL Item
Annat (8)
(Comment:en)
C0205394 (UMLS CUI-1)
(Comment:sv)
CL Item
Only supportive treatment (9)
(Comment:en)
C0344211 (UMLS CUI-1)
(Comment:sv)
CL Item
No treatment indication (10)
(Comment:en)
C0521090 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
(Comment:sv)
Treatment start date
Item
date
C3173309 (UMLS CUI [1])
Not yet started treatment
Item
boolean
C1444646 (UMLS CUI [1])
Item
integer
C0162791 (UMLS CUI [1])
Treatment according to
Code List
Treatment according to
CL Item
 (1)
C0162791 (UMLS CUI-1)
(Comment:sv)
CL Item
 (2)
C2348563 (UMLS CUI-1)
(Comment:sv)
Study name
Item
text
C2348560 (UMLS CUI [1])
Item
integer
C2242529 (UMLS CUI [1])
Allogeneic stem cell transplantation
Code List
Allogeneic stem cell transplantation
CL Item
planned (1)
C1301732 (UMLS CUI-1)
(Comment:en)
CL Item
May be relevant (2)
C3844350 (UMLS CUI-1)
C2347946 (UMLS CUI-2)
(Comment:en)
CL Item
Can not be applied (3)
C1272460 (UMLS CUI-1)
(Comment:en)
Item Group
C1522577 (UMLS CUI-1)
Hospital
Item
text
C0019994 (UMLS CUI [1])
Clinic
Item
text
C0442592 (UMLS CUI [1])
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