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ID
46011
Description
The German Center for Diabetes Research (DZD) has created a core data set for research on diabetes. It is published with permission by the DZD. The complete metadata and SOP are registered at DOI 10.5281/zenodo.7360000 For more information on the work of the DZD see: www.dzd-ev.de/en or contact: studien@dzd-ev.de German Center for Diabetes Research (DZD) Head Office at Helmholtz Zentrum München Ingolstädter Landstr. 1 85764 Neuherberg, Germany The German and English version of the Baecke Questionnaire in this core data set is based on the original paper by Baecke et al (https://doi.org/10.1093/ajcn/36.5.936), redistributed by ten Velde et al. (https://doi.org/10.1371/journal.pone.0256448), and the German translation and modification by Wagner & Singer (2003). The questionnaire was selectively modified by the German Diabetes Center (DDZ). Changes in this version 4 (15.07.2024) compared to version 3 (26.02.2024) include the addition of the parameters defined in the core data set of the German Centers for Health Research (DZG) (ID of MDM entry: 45851), the addition of laterality-specific blindness and an update of the terminology coding. The coding of the DZG parameters is currently under revision and not included in this current version. The coding of those DZG parameters that were already included in the DZD CDS will be provisionally retained.
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Versions (4)
- 11/29/22 11/29/22 - Renate Schick
- 6/28/23 6/28/23 - Renate Schick
- 2/26/24 2/26/24 - Renate Schick
- 7/15/24 7/15/24 - Renate Schick
Copyright Holder
German Center for Diabetes Research (DZD)
Uploaded on
July 15, 2024
DOI
10.21961/mdm:46011
License
Creative Commons BY-NC-SA 4.0
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German Center for Diabetes Research (DZD) - Core Data Set
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Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
basic_lab_neutrophils_absolute
Item
Neutrophils absolute
float
basic_lab_eosinophils_absolute
Item
Eosinophils absolute
float
basic_lab_basophils_absolute
Item
Basophils absolute
float
basic_lab_monocytes_absolute
Item
Monocytes absolute
float
basic_lab_calcium
Item
Calcium
float
basic_lab_phosphate
Item
Phosphate
float
opt_quest_1_36
Item
Quality of Life: SF-36 Score
text
770636004 (SNOMED CT [1])
C4749356 (UMLS CUI [1])
C4749356 (UMLS CUI [1])
Item
Depression and Anxiety: The Patient Health Questionnaire (PHQ) Over the last 2 weeks, how often have you been bothered by any of the following problems? Little interest or pleasure in doing things
integer
C1879301 (UMLS CUI [1,1])
C0679474 (UMLS CUI [1,2])
C0679474 (UMLS CUI [1,2])
Code List
Depression and Anxiety: The Patient Health Questionnaire (PHQ) Over the last 2 weeks, how often have you been bothered by any of the following problems? Little interest or pleasure in doing things
CL Item
Not at all (1)
C2984077 (UMLS CUI [1])
CL Item
Several days (2)
C3844034 (UMLS CUI [1])
CL Item
More than half the days (3)
C3828960 (UMLS CUI [1])
CL Item
Nearly every day (4)
C3845713 (UMLS CUI [1])
Item
Feeling down, depressed, or hopeless
integer
C1879301 (UMLS CUI [1,1])
C0150041 (UMLS CUI [1,2])
C0150041 (UMLS CUI [1,2])
CL Item
Not at all (1)
C2984077 (UMLS CUI [1])
CL Item
Several days (2)
C3844034 (UMLS CUI [1])
CL Item
More than half the days (3)
C3828960 (UMLS CUI [1])
CL Item
Nearly every day (4)
C3845713 (UMLS CUI [1])
Item
Trouble falling or staying asleep, or sleeping too much
integer
C1879301 (UMLS CUI [1,1])
C0851578 (UMLS CUI [1,2])
C0851578 (UMLS CUI [1,2])
CL Item
Not at all (1)
C2984077 (UMLS CUI [1])
CL Item
Several days (2)
C3844034 (UMLS CUI [1])
CL Item
More than half the days (3)
C3828960 (UMLS CUI [1])
CL Item
Nearly every day (4)
C3845713 (UMLS CUI [1])
Item
Feeling tired or having little energy
integer
C1879301 (UMLS CUI [1,1])
C3176501 (UMLS CUI [1,2])
C3176501 (UMLS CUI [1,2])
CL Item
Not at all (1)
C2984077 (UMLS CUI [1])
CL Item
Several days (2)
C3844034 (UMLS CUI [1])
CL Item
More than half the days (3)
C3828960 (UMLS CUI [1])
CL Item
Nearly every day (4)
C3845713 (UMLS CUI [1])
Item
Poor appetite or overeating
integer
C1879301 (UMLS CUI [1,1])
C1971624 (UMLS CUI [1,2])
C0020505 (UMLS CUI [1,3])
C1971624 (UMLS CUI [1,2])
C0020505 (UMLS CUI [1,3])
CL Item
Not at all (1)
C2984077 (UMLS CUI [1])
CL Item
Several days (2)
C3844034 (UMLS CUI [1])
CL Item
More than half the days (3)
C3828960 (UMLS CUI [1])
CL Item
Nearly every day (4)
C3845713 (UMLS CUI [1])
Item
Feeling bad about yourself, or that you are a failure, or have let yourself or your family down
integer
C1879301 (UMLS CUI [1,1])
C0854366 (UMLS CUI [1,2])
C0854366 (UMLS CUI [1,2])
Code List
Feeling bad about yourself, or that you are a failure, or have let yourself or your family down
CL Item
Not at all (1)
C2984077 (UMLS CUI [1])
CL Item
Several days (2)
C3844034 (UMLS CUI [1])
CL Item
More than half the days (3)
C3828960 (UMLS CUI [1])
CL Item
Nearly every day (4)
C3845713 (UMLS CUI [1])
Item
Trouble concentrating on things, such as reading the newspaper or watching television
integer
C1879301 (UMLS CUI [1,1])
C0424099 (UMLS CUI [1,2])
C0424099 (UMLS CUI [1,2])
Code List
Trouble concentrating on things, such as reading the newspaper or watching television
CL Item
Not at all (1)
C2984077 (UMLS CUI [1])
CL Item
Several days (2)
C3844034 (UMLS CUI [1])
CL Item
More than half the days (3)
C3828960 (UMLS CUI [1])
CL Item
Nearly every day (4)
C3845713 (UMLS CUI [1])
Item
Moving or speaking so slowly that other people could have noticed. Or the opposite—being so fidgety or restless that you have been moving around a lot more than usual
integer
C1879301 (UMLS CUI [1,1])
C0424114 (UMLS CUI [1,2])
C0237280 (UMLS CUI [1,3])
C0424114 (UMLS CUI [1,2])
C0237280 (UMLS CUI [1,3])
Code List
Moving or speaking so slowly that other people could have noticed. Or the opposite—being so fidgety or restless that you have been moving around a lot more than usual
CL Item
Not at all (1)
C2984077 (UMLS CUI [1])
CL Item
Several days (2)
C3844034 (UMLS CUI [1])
CL Item
More than half the days (3)
C3828960 (UMLS CUI [1])
CL Item
Nearly every day (4)
C3845713 (UMLS CUI [1])
Item
Thoughts that you would be better off dead, or of hurting yourself in some way
integer
C1879301 (UMLS CUI [1,1])
C0178360 (UMLS CUI [1,2])
C0178360 (UMLS CUI [1,2])
Code List
Thoughts that you would be better off dead, or of hurting yourself in some way
CL Item
Not at all (1)
C2984077 (UMLS CUI [1])
CL Item
Several days (2)
C3844034 (UMLS CUI [1])
CL Item
More than half the days (3)
C3828960 (UMLS CUI [1])
CL Item
Nearly every day (4)
C3845713 (UMLS CUI [1])
Item
In the last 4 weeks, have you had an anxiety attack— suddenly feeling fear or panic?
integer
C1879301 (UMLS CUI [1,1])
C0086769 (UMLS CUI [1,2])
C0332185 (UMLS CUI [1,3])
C0086769 (UMLS CUI [1,2])
C0332185 (UMLS CUI [1,3])
Code List
In the last 4 weeks, have you had an anxiety attack— suddenly feeling fear or panic?
CL Item
Yes (1)
C1705108 (UMLS [1])
CL Item
No (2)
C1298908 (UMLS [2])
Item
Has this ever happened before?
integer
C1879301 (UMLS CUI [1,1])
C0086769 (UMLS CUI [1,2])
C0205156 (UMLS CUI [1,3])
C0086769 (UMLS CUI [1,2])
C0205156 (UMLS CUI [1,3])
CL Item
Yes (1)
C1705108 (UMLS [1])
CL Item
No (2)
C1298908 (UMLS [2])
Item
Do some of these attacks come suddenly out of the blue—that is, in situations where you don't expect to be nervous or uncomfortable?
integer
C1879301 (UMLS CUI [1,1])
C0395002 (UMLS CUI [1,2])
C0395002 (UMLS CUI [1,2])
Code List
Do some of these attacks come suddenly out of the blue—that is, in situations where you don't expect to be nervous or uncomfortable?
CL Item
Yes (1)
C1705108 (UMLS [1])
CL Item
No (2)
C1298908 (UMLS [2])
Item
Do these attacks bother you a lot or are you worried about having another attack?
integer
C1879301 (UMLS CUI [1,1])
C0086769 (UMLS CUI [1,2])
C0015726 (UMLS CUI [1,3])
C0086769 (UMLS CUI [1,4])
C4036195 (UMLS CUI [1,5])
C0086769 (UMLS CUI [1,2])
C0015726 (UMLS CUI [1,3])
C0086769 (UMLS CUI [1,4])
C4036195 (UMLS CUI [1,5])
Code List
Do these attacks bother you a lot or are you worried about having another attack?
CL Item
Yes (1)
C1705108 (UMLS [1])
CL Item
No (2)
C1298908 (UMLS [2])
Item
During your last bad anxiety attack, did you have symptoms like shortness of breath, sweating, your heart racing or pounding, dizziness or faintness, tingling or numbness, or nausea or upset stomach?
integer
C1879301 (UMLS CUI [1,1])
C0086769 (UMLS CUI [1,2])
C1457887 (UMLS CUI [1,3])
C0086769 (UMLS CUI [1,2])
C1457887 (UMLS CUI [1,3])
Code List
During your last bad anxiety attack, did you have symptoms like shortness of breath, sweating, your heart racing or pounding, dizziness or faintness, tingling or numbness, or nausea or upset stomach?
CL Item
Yes (1)
C1705108 (UMLS [1])
CL Item
No (2)
C1298908 (UMLS [2])
Item
If you checked off any problems on this questionnaire so far, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
integer
C1879301 (UMLS CUI [1,1])
C1457887 (UMLS CUI [1,2])
C0392760 (UMLS CUI [1,3])
C0562507 (UMLS CUI [1,4])
C1457887 (UMLS CUI [1,2])
C0392760 (UMLS CUI [1,3])
C0562507 (UMLS CUI [1,4])
Code List
If you checked off any problems on this questionnaire so far, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
CL Item
Not difficult at all (1)
C2984077 (UMLS CUI [1,1])
C0332218 (UMLS CUI [1,2])
C0332218 (UMLS CUI [1,2])
CL Item
Somewhat difficult (2)
C3843068 (UMLS CUI [1])
CL Item
Very difficult (3)
C3843353 (UMLS CUI [1])
CL Item
Extremely difficult (4)
C3843354 (UMLS CUI [1])