ID

44659

Beschrijving

Ελληνικό Αρχείο Καταγραφής Μυελοδυσπλαστικών και Υποπλαστικών Συνδρόμων (ΕΑΚΜΥΣ) Hellenic National Registry of Myelodysplastic and Hypoplastic Syndromes Source: Prof. Dr. Argiris Symeonidis University of Patras Greece

Trefwoorden

Versies (10)
  1. 14-10-17 14-10-17 - Martin Dugas
  2. 14-10-17 14-10-17 - Martin Dugas
  3. 14-10-17 14-10-17 - Martin Dugas
  4. 14-10-17 14-10-17 - Martin Dugas
  5. 16-10-17 16-10-17 - Martin Dugas
  6. 17-10-17 17-10-17 - Martin Dugas
  7. 18-10-17 18-10-17 - Martin Dugas
  8. 18-10-17 18-10-17 - Martin Dugas
  9. 20-10-17 20-10-17 - Martin Dugas
  10. 27-09-21 27-09-21 -
Houder van rechten

Prof. Dr. Argiris Symeonidis

Geüploaded op

27 september 2021

DOI

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Licentie

Creative Commons BY-NC 3.0
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Greek MDS Registry

Greek, Modern Engels

Registry Data

1 Formulieren  
  1. StudyEvent: ODM
    1. Registry Data
Demographic data
Beschrijving

Demographic data

Alias
UMLS CUI-1
C0011298
Last name
Beschrijving

Last name

Datatype

text

Alias
UMLS CUI [1]
C1301584
First name
Beschrijving

First name

Datatype

text

Alias
UMLS CUI [1]
C1443235
Father's name
Beschrijving

Father's name

Datatype

text

Alias
UMLS CUI [1,1]
C0015671
UMLS CUI [1,2]
C0027365
Initials
Beschrijving

Initials

Datatype

text

Alias
UMLS CUI [1]
C2986440
Hematology Clinic Code
Beschrijving

Hematology Clinic Code

Datatype

text

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C0805701
Hospital registration number
Beschrijving

Hospital registration number

Datatype

text

Alias
UMLS CUI [1]
C0421459
Date of birth
Beschrijving

Date of birth

Datatype

date

Alias
UMLS CUI [1]
C0421451
Place of birth
Beschrijving

Place of birth

Datatype

text

Alias
UMLS CUI [1]
C0032040
Place of residence
Beschrijving

Place of residence

Datatype

text

Alias
UMLS CUI [1]
C0682130
Gender
Beschrijving

Gender

Datatype

text

Alias
UMLS CUI [1]
C0079399
Age at diagnosis
Beschrijving

Age at diagnosis

Datatype

integer

Alias
UMLS CUI [1]
C1828181
Occupation
Beschrijving

Occupation

Datatype

integer

Alias
UMLS CUI [1]
C0028811
Date of diagnosis
Beschrijving

Date of diagnosis

Datatype

date

Alias
UMLS CUI [1]
C2316983
Previous exposure to myeloid toxic agents
Beschrijving

Previous exposure to myeloid toxic agents

Datatype

integer

Alias
UMLS CUI [1]
C0522757
Active clinical problems
Beschrijving

Active clinical problems

Datatype

text

Alias
UMLS CUI [1,1]
C1254481
UMLS CUI [1,2]
C0205177
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
Beschrijving

Family history of clonal haematological disorder

Datatype

integer

Alias
UMLS CUI [1,1]
C0241889
UMLS CUI [1,2]
C0376545
Classification
Beschrijving

Classification

Alias
UMLS CUI-1
C0008902
FAB classification
Beschrijving

FAB classification

Datatype

text

Alias
UMLS CUI [1]
C2984084
FAB classification
Beschrijving

WHO classification

Datatype

text

Alias
UMLS CUI [1,1]
C1301142
UMLS CUI [1,2]
C3463824
Hybrid MDS - Myeloproliferative syndromes
Beschrijving

Hybrid MDS - Myeloproliferative syndromes

Datatype

text

Alias
UMLS CUI [1]
C1443043
Additional features
Beschrijving

Additional features

Datatype

integer

Alias
UMLS CUI [1]
C1853192
hypoplastic
Beschrijving

hypoplastic

Datatype

integer

Alias
UMLS CUI [1]
C0543481
connected
Beschrijving

connected

Datatype

integer

Alias
UMLS CUI [1]
C2986575
Splenomegaly
Beschrijving

Splenomegaly

Datatype

integer

Alias
UMLS CUI [1]
C0038002
Spleen Size
Beschrijving

Spleen Size

Datatype

float

Maateenheden
  • cm
Alias
UMLS CUI [1,1]
C0037993
UMLS CUI [1,2]
C0456389
cm
WHO performance status
Beschrijving

WHO performance status

Datatype

text

Alias
UMLS CUI [1]
C1298650
Hematological findings
Beschrijving

Hematological findings

Alias
UMLS CUI-1
C0279810
UMLS CUI-2
C0243095
Hemoglobin
Beschrijving

Hemoglobin

Datatype

float

Alias
UMLS CUI [1]
C0019046
MCV
Beschrijving

MCV

Datatype

float

Alias
UMLS CUI [1]
C0524587
MCH
Beschrijving

MCH

Datatype

float

Alias
UMLS CUI [1]
C1261502
Leukocytes
Beschrijving

Leukocytes

Datatype

float

Maateenheden
  • 10E3/mm3
Alias
UMLS CUI [1]
C0023516
10E3/mm3
Polymorphonuclear leucocytes
Beschrijving

Polymorphonuclear leucocytes

Datatype

float

Alias
UMLS CUI [1]
C1321301
Lymphocytes
Beschrijving

Lymphocytes

Datatype

float

Alias
UMLS CUI [1]
C0024264
Monocytes
Beschrijving

Monocytes

Datatype

float

Alias
UMLS CUI [1]
C0026473
Eosinophils
Beschrijving

Eosinophils

Datatype

float

Alias
UMLS CUI [1]
C0857996
Blasts
Beschrijving

Blasts

Datatype

float

Alias
UMLS CUI [1]
C0368761
Leukocytes, other
Beschrijving

Leukocytes, other

Datatype

float

Alias
UMLS CUI [1,1]
C0023516
UMLS CUI [1,2]
C0205394
Absolute neutrophil count
Beschrijving

Absolute neutrophil count

Datatype

float

Alias
UMLS CUI [1]
C0948762
Absolute monocyte count
Beschrijving

Absolute monocyte count

Datatype

float

Alias
UMLS CUI [1]
C0200637
Absolute blast count
Beschrijving

Absolute blast count

Datatype

float

Alias
UMLS CUI [1]
C0523113
Pelger polymorphonuclear type
Beschrijving

Pelger polymorphonuclear type

Datatype

integer

Alias
UMLS CUI [1]
C2698755
Auer Rods
Beschrijving

Auer Rods

Datatype

integer

Alias
UMLS CUI [1]
C0333828
Platelets
Beschrijving

Platelets

Datatype

float

Maateenheden
  • 10E3/mm3
Alias
UMLS CUI [1]
C0005821
10E3/mm3
Erythroblast
Beschrijving

Erythroblast

Datatype

integer

Alias
UMLS CUI [1]
C0014762
Notable morphological findings
Beschrijving

Notable morphological findings

Datatype

text

Alias
UMLS CUI [1]
C1260954
Uric Acid
Beschrijving

Uric Acid

Datatype

float

Alias
UMLS CUI [1]
C0041980
LDH
Beschrijving

LDH

Datatype

float

Alias
UMLS CUI [1]
C0202113
Higher normal value
Beschrijving

Higher normal value

Datatype

float

Alias
UMLS CUI [1]
C3163633
β2-Microglobulin
Beschrijving

β2-Microglobulin

Datatype

float

Maateenheden
  • µgr/lt
Alias
UMLS CUI [1]
C0005149
µgr/lt
Ferritin
Beschrijving

Ferritin

Datatype

float

Alias
UMLS CUI [1]
C0015879
Erythropoietin level
Beschrijving

Erythropoietin level

Datatype

float

Alias
UMLS CUI [1]
C0014822
Corresponding Hb
Beschrijving

Corresponding Hb

Datatype

float

Alias
UMLS CUI [1]
C0019046
Bone marrow smear
Beschrijving

Bone marrow smear

Alias
UMLS CUI-1
C0005953
UMLS CUI-2
C0444186
Cytotoxicity
Beschrijving

Cytotoxicity

Datatype

integer

Alias
UMLS CUI [1]
C0596402
Erythroid ratio
Beschrijving

Erythroid ratio

Datatype

float

Maateenheden
  • %
Alias
UMLS CUI [1]
C2984931
%
Granulocyte ratio
Beschrijving

Granulocyte ratio

Datatype

float

Maateenheden
  • %
Alias
UMLS CUI [1,1]
C0018183
UMLS CUI [1,2]
C0456603
%
Percentage of blasts
Beschrijving

Percentage of blasts

Datatype

float

Maateenheden
  • %
Alias
UMLS CUI [1]
C0587348
%
Auer rods
Beschrijving

Auer rods

Datatype

integer

Alias
UMLS CUI [1]
C0333828
Ring sideroblasts
Beschrijving

Ring sideroblasts

Datatype

integer

Alias
UMLS CUI [1]
C0432608
Percentage (ring sideroblasts)
Beschrijving

Percentage (ring sideroblasts)

Datatype

float

Maateenheden
  • %
Alias
UMLS CUI [1,1]
C0432608
UMLS CUI [1,2]
C0439165
%
Red series morphology
Beschrijving

Red series morphology

Datatype

text

Alias
UMLS CUI [1]
C0200655
Granulocyte morphology
Beschrijving

Granulocyte morphology

Datatype

text

Alias
UMLS CUI [1,1]
C0018183
UMLS CUI [1,2]
C0332437
Lymphocyte morphology
Beschrijving

Lymphocyte morphology

Datatype

text

Alias
UMLS CUI [1,1]
C0024264
UMLS CUI [1,2]
C0332437
Other cells, morphology
Beschrijving

Other cells, morphology

Datatype

text

Alias
UMLS CUI [1,1]
C1979779
UMLS CUI [1,2]
C0332437
Bone marrow biopsy
Beschrijving

Bone marrow biopsy

Alias
UMLS CUI-1
C0005954
Cytotoxicity
Beschrijving

Cytotoxicity

Datatype

float

Maateenheden
  • %
Alias
UMLS CUI [1]
C0596402
%
Blast percentage
Beschrijving

Blast percentage

Datatype

float

Maateenheden
  • %
Alias
UMLS CUI [1]
C0587348
%
ALIP (abnormal cell fixation)
Beschrijving

ALIP (abnormal cell fixation)

Datatype

integer

Alias
UMLS CUI [1,1]
C0920431
UMLS CUI [1,2]
C0205161
Fibrosis degree
Beschrijving

Fibrosis degree

Datatype

integer

Alias
UMLS CUI [1,1]
C0016059
UMLS CUI [1,2]
C0439792
Lymphocyte percentage
Beschrijving

Lymphocyte percentage

Datatype

float

Maateenheden
  • %
Alias
UMLS CUI [1]
C1171404
%
Other findings
Beschrijving

Other findings

Datatype

text

Alias
UMLS CUI [1]
C1335151
Karyotypic analysis and prognostic categorization
Beschrijving

Karyotypic analysis and prognostic categorization

Alias
UMLS CUI-1
C1261273
UMLS CUI-2
C1514474
Date of karyotypic analysis
Beschrijving

Date of karyotypic analysis

Datatype

date

Alias
UMLS CUI [1,1]
C1261273
UMLS CUI [1,2]
C0011008
Karyotype description
Beschrijving

Karyotype description

Datatype

text

Alias
UMLS CUI [1,1]
C1261273
UMLS CUI [1,2]
C0678257
Karyotypic abnormality
Beschrijving

Karyotypic abnormality

Datatype

integer

Alias
UMLS CUI [1,1]
C1261273
UMLS CUI [1,2]
C1704258
Another simple chromosomal anomaly
Beschrijving

Another simple chromosomal anomaly

Datatype

text

Alias
UMLS CUI [1,1]
C0008625
UMLS CUI [1,2]
C0205352
Double chromosomal abnormality
Beschrijving

Double chromosomal abnormality

Datatype

text

Alias
UMLS CUI [1,1]
C0008625
UMLS CUI [1,2]
C0205173
Complex chromosomal abnormality
Beschrijving

Complex chromosomal abnormality

Datatype

text

Alias
UMLS CUI [1,1]
C0008625
UMLS CUI [1,2]
C0439855
Number of analyzed metaphases
Beschrijving

Number of analyzed metaphases

Datatype

integer

Alias
UMLS CUI [1,1]
C1621812
UMLS CUI [1,2]
C0237753
Physiological metaphases
Beschrijving

Physiological metaphases

Datatype

integer

Alias
UMLS CUI [1,1]
C1621812
UMLS CUI [1,2]
C0205307
Predictive group of karyotypes
Beschrijving

Predictive group of karyotypes

Datatype

text

IPSS
Beschrijving

IPSS

Datatype

text

Alias
UMLS CUI [1]
C2827405
IPSS prognostic category
Beschrijving

IPSS prognostic category

Datatype

text

WPSS Predictive System
Beschrijving

WPSS Predictive System

Datatype

text

Alias
UMLS CUI [1]
C0449821
Score
Beschrijving

Score

Datatype

text

Alias
UMLS CUI [1]
C0449820
Immunophenotyping
Beschrijving

Immunophenotyping

Datatype

text

Alias
UMLS CUI [1]
C0079611
Molecular analysis
Beschrijving

Molecular analysis

Datatype

text

Alias
UMLS CUI [1]
C1513380
Treatment
Beschrijving

Treatment

Alias
UMLS CUI-1
C0087111
Red blood cell transfusions
Beschrijving

Red blood cell transfusions

Datatype

integer

Alias
UMLS CUI [1]
C0086252
Dependence on transfusions
Beschrijving

Dependence on transfusions

Datatype

integer

Platelet transfusions
Beschrijving

Platelet transfusions

Datatype

integer

Alias
UMLS CUI [1]
C0086818
Total number of erythrocyte transfusions in year 1
Beschrijving

Total number of erythrocyte transfusions in year 1

Datatype

integer

Alias
UMLS CUI [1,1]
C0086252
UMLS CUI [1,2]
C0750480
Total number of platelets transfusions the 1st year
Beschrijving

Total number of platelets transfusions the 1st year

Datatype

integer

Alias
UMLS CUI [1,1]
C0086818
UMLS CUI [1,2]
C0750480
Support only
Beschrijving

Type of therapeutic strategies that have been implemented

Datatype

boolean

Alias
UMLS CUI [1]
C0344211
Hematopoietic growth factors
Beschrijving

Hematopoietic growth factors

Datatype

integer

Alias
UMLS CUI [1]
C0079490
Anabolic and immunomodulatory agents
Beschrijving

Anabolic and immunomodulatory agents

Datatype

integer

Alias
UMLS CUI [1,1]
C3653709
UMLS CUI [1,2]
C1963758
Other non-chemotherapeutic agents
Beschrijving

Other non-chemotherapeutic agents

Datatype

integer

Follow-Up – Progress
Beschrijving

Follow-Up – Progress

Alias
UMLS CUI-1
C1522577
UMLS CUI-2
C1280477
Evolution to leukemia or other aggressive MDS
Beschrijving

Leukemia or aggressive MDS

Datatype

integer

Alias
UMLS CUI [1,1]
C1332153
UMLS CUI [1,2]
C3463824
UMLS CUI [1,3]
C0001807
Duration of dysplastic phase
Beschrijving

Duration of dysplastic phase

Datatype

text

Alias
UMLS CUI [1,1]
C0334044
UMLS CUI [1,2]
C0449238
FAB Type AML
Beschrijving

FAB Type AML

Datatype

text

Alias
UMLS CUI [1,1]
C2984084
UMLS CUI [1,2]
C0023467
Aberrant hematological findings
Beschrijving

Aberrant hematological findings

Datatype

text

Alias
UMLS CUI [1,1]
C0474523
UMLS CUI [1,2]
C0443127
Aberrant Immunophenotype
Beschrijving

Aberrant Immunophenotype

Datatype

text

Alias
UMLS CUI [1,1]
C0079611
UMLS CUI [1,2]
C0443127
Karyotype aberration
Beschrijving

Karyotype aberration

Datatype

text

Alias
UMLS CUI [1]
C0008625
Molecular aberrations
Beschrijving

Molecular aberrations

Datatype

text

Alias
UMLS CUI [1,1]
C1513380
UMLS CUI [1,2]
C0443127
Treatment applied to aberrations
Beschrijving

Treatment applied to aberrations

Datatype

text

Alias
UMLS CUI [1,1]
C0008625
UMLS CUI [1,2]
C0087111
Epicrisis
Beschrijving

Epicrisis

Datatype

integer

Alias
UMLS CUI [1,1]
C0743221
UMLS CUI [1,2]
C3853528
Developed another neoplastic disease
Beschrijving

Developed another neoplastic disease

Datatype

integer

Alias
UMLS CUI [1]
C2939419
Date of last examination / contact
Beschrijving

Date of last examination / contact

Datatype

date

Alias
UMLS CUI [1]
C0805839
Date of death
Beschrijving

Date of death

Datatype

date

Alias
UMLS CUI [1]
C1148348
Cause of death
Beschrijving

Cause of death

Datatype

text

Alias
UMLS CUI [1]
C0007465
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Registry Data

1 Formulieren
  1. StudyEvent: ODM
    1. Registry Data
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Demographic data
C0011298 (UMLS CUI-1)
Last name
Item
text
C1301584 (UMLS CUI [1])
First name
Item
text
C1443235 (UMLS CUI [1])
Father's name
Item
text
C0015671 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
Initials
Item
text
C2986440 (UMLS CUI [1])
Hematology Clinic Code
Item
text
C0019994 (UMLS CUI [1,1])
C0805701 (UMLS CUI [1,2])
Hospital registration number
Item
text
C0421459 (UMLS CUI [1])
Date of birth
Item
date
C0421451 (UMLS CUI [1])
Place of birth
Item
text
C0032040 (UMLS CUI [1])
Place of residence
Item
text
C0682130 (UMLS CUI [1])
Item
text
C0079399 (UMLS CUI [1])
Gender
Code List
Gender
CL Item
male (m)
(Comment:el)
C0086582 (UMLS CUI-1)
(Comment:en)
CL Item
female (f)
(Comment:el)
C0086287 (UMLS CUI-1)
(Comment:en)
Age at diagnosis
Item
integer
C1828181 (UMLS CUI [1])
Item
integer
C0028811 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Occupation
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of diagnosis
Item
date
C2316983 (UMLS CUI [1])
Item
integer
C0522757 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Previous exposure to myeloid toxic agents
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Active clinical problems
Item
text
C1254481 (UMLS CUI [1,1])
C0205177 (UMLS CUI [1,2])
Item
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
integer
C0241889 (UMLS CUI [1,1])
C0376545 (UMLS CUI [1,2])
Family history of clonal haematological disorder
Code List
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Item Group
Classification
C0008902 (UMLS CUI-1)
FAB classification
Item
FAB classification
text
C2984084 (UMLS CUI [1])
WHO classification
Item
FAB classification
text
C1301142 (UMLS CUI [1,1])
C3463824 (UMLS CUI [1,2])
Hybrid MDS - Myeloproliferative syndromes
Item
text
C1443043 (UMLS CUI [1])
Item
integer
C1853192 (UMLS CUI [1])
Additional features
Code List
Additional features
CL Item
primary (1)
(Comment:en)
C0205225 (UMLS CUI-1)
(Comment:el)
CL Item
secondary (2)
(Comment:en)
C0175668 (UMLS CUI-1)
(Comment:el)
Item
integer
C0543481 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
hypoplastic
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
integer
C2986575 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
connected
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
integer
C0038002 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Splenomegaly
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Spleen Size
Item
float
C0037993 (UMLS CUI [1,1])
C0456389 (UMLS CUI [1,2])
Item
text
C1298650 (UMLS CUI [1])
WHO performance status
Code List
WHO performance status
CL Item
 (100)
CL Item
 (90)
CL Item
 (80)
CL Item
 (70)
CL Item
 (60)
CL Item
 (50)
CL Item
 (40)
CL Item
 (30)
CL Item
 (20)
CL Item
 (10)
CL Item
 (0)
Item Group
Hematological findings
C0279810 (UMLS CUI-1)
C0243095 (UMLS CUI-2)
Hemoglobin
Item
float
C0019046 (UMLS CUI [1])
MCV
Item
float
C0524587 (UMLS CUI [1])
MCH
Item
float
C1261502 (UMLS CUI [1])
Leukocytes
Item
float
C0023516 (UMLS CUI [1])
Polymorphonuclear leucocytes
Item
float
C1321301 (UMLS CUI [1])
Lymphocytes
Item
float
C0024264 (UMLS CUI [1])
Monocytes
Item
float
C0026473 (UMLS CUI [1])
Eosinophils
Item
float
C0857996 (UMLS CUI [1])
Blasts
Item
float
C0368761 (UMLS CUI [1])
Leukocytes, other
Item
float
C0023516 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Absolute neutrophil count
Item
float
C0948762 (UMLS CUI [1])
Absolute monocyte count
Item
float
C0200637 (UMLS CUI [1])
Absolute blast count
Item
float
C0523113 (UMLS CUI [1])
Item
integer
C2698755 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Pelger polymorphonuclear type
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
integer
C0333828 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Auer Rods
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Platelets
Item
float
C0005821 (UMLS CUI [1])
Item
integer
C0014762 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Erythroblast
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Notable morphological findings
Item
text
C1260954 (UMLS CUI [1])
Uric Acid
Item
float
C0041980 (UMLS CUI [1])
LDH
Item
float
C0202113 (UMLS CUI [1])
Higher normal value
Item
float
C3163633 (UMLS CUI [1])
β2-Microglobulin
Item
float
C0005149 (UMLS CUI [1])
Ferritin
Item
float
C0015879 (UMLS CUI [1])
Erythropoietin level
Item
float
C0014822 (UMLS CUI [1])
Corresponding Hb
Item
float
C0019046 (UMLS CUI [1])
Item Group
Bone marrow smear
C0005953 (UMLS CUI-1)
C0444186 (UMLS CUI-2)
Item
integer
C0596402 (UMLS CUI [1])
.
Code List
Cytotoxicity
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
Erythroid ratio
Item
float
C2984931 (UMLS CUI [1])
Granulocyte ratio
Item
float
C0018183 (UMLS CUI [1,1])
C0456603 (UMLS CUI [1,2])
Percentage of blasts
Item
float
C0587348 (UMLS CUI [1])
Item
integer
C0333828 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Auer rods
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
integer
C0432608 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Ring sideroblasts
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Percentage (ring sideroblasts)
Item
float
C0432608 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
Red series morphology
Item
text
C0200655 (UMLS CUI [1])
Granulocyte morphology
Item
text
C0018183 (UMLS CUI [1,1])
C0332437 (UMLS CUI [1,2])
Lymphocyte morphology
Item
text
C0024264 (UMLS CUI [1,1])
C0332437 (UMLS CUI [1,2])
Other cells, morphology
Item
text
C1979779 (UMLS CUI [1,1])
C0332437 (UMLS CUI [1,2])
Item Group
Bone marrow biopsy
C0005954 (UMLS CUI-1)
Cytotoxicity
Item
float
C0596402 (UMLS CUI [1])
Blast percentage
Item
float
C0587348 (UMLS CUI [1])
Item
integer
C0920431 (UMLS CUI [1,1])
C0205161 (UMLS CUI [1,2])
Family history of clonal haematological disorder
Code List
ALIP (abnormal cell fixation)
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Fibrosis degree
Item
integer
C0016059 (UMLS CUI [1,1])
C0439792 (UMLS CUI [1,2])
Lymphocyte percentage
Item
float
C1171404 (UMLS CUI [1])
Other findings
Item
text
C1335151 (UMLS CUI [1])
Item Group
Karyotypic analysis and prognostic categorization
C1261273 (UMLS CUI-1)
C1514474 (UMLS CUI-2)
Date of karyotypic analysis
Item
date
C1261273 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Karyotype description
Item
text
C1261273 (UMLS CUI [1,1])
C0678257 (UMLS CUI [1,2])
Item
integer
C1261273 (UMLS CUI [1,1])
C1704258 (UMLS CUI [1,2])
Karyotypic abnormality
Code List
Karyotypic abnormality
CL Item
46 XX / 46 XY (1)
(Comment:en)
(Comment:el)
CL Item
del(5q) (2)
(Comment:en)
C1521461 (UMLS CUI-1)
(Comment:el)
CL Item
Trisomy 8 (3)
(Comment:en)
C0432412 (UMLS CUI-1)
(Comment:el)
CL Item
Monosomy 7 or del(7q) (4)
(Comment:en)
C1513483 (UMLS CUI-1)
C1517990 (UMLS CUI-2)
(Comment:el)
CL Item
Loss of Y (5)
(Comment:en)
(Comment:el)
CL Item
 (6)
(Comment:el)
CL Item
 (7)
(Comment:el)
CL Item
 (8)
(Comment:el)
CL Item
 (9)
(Comment:el)
CL Item
 (10)
(Comment:el)
Another simple chromosomal anomaly
Item
text
C0008625 (UMLS CUI [1,1])
C0205352 (UMLS CUI [1,2])
Double chromosomal abnormality
Item
text
C0008625 (UMLS CUI [1,1])
C0205173 (UMLS CUI [1,2])
Complex chromosomal abnormality
Item
text
C0008625 (UMLS CUI [1,1])
C0439855 (UMLS CUI [1,2])
Number of analyzed metaphases
Item
integer
C1621812 (UMLS CUI [1,1])
C0237753 (UMLS CUI [1,2])
Physiological metaphases
Item
integer
C1621812 (UMLS CUI [1,1])
C0205307 (UMLS CUI [1,2])
Predictive group of karyotypes
Item
text
Item
text
C2827405 (UMLS CUI [1])
IPSS
Code List
IPSS
CL Item
 (0)
CL Item
 (0,5)
CL Item
 (1)
CL Item
 (1,5)
CL Item
 (2)
CL Item
 (2,5)
CL Item
 (3)
CL Item
 (3,5)
IPSS prognostic category
Code List
IPSS prognostic category
CL Item
Low risk (0)
(Comment:en)
C3538919 (UMLS CUI-1)
(Comment:el)
CL Item
Intermediate risk I (0,5–1)
(Comment:en)
C3640764 (UMLS CUI-1)
C0205447 (UMLS CUI-2)
(Comment:el)
CL Item
Intermediate risk II (1,5–2)
(Comment:en)
C3640764 (UMLS CUI-1)
C0205448 (UMLS CUI-2)
(Comment:el)
CL Item
High risk (≥ 2,5)
(Comment:en)
C0332167 (UMLS CUI-1)
(Comment:el)
WPSS Predictive System
Item
text
C0449821 (UMLS CUI [1])
Score
Item
text
C0449820 (UMLS CUI [1])
Immunophenotyping
Item
text
C0079611 (UMLS CUI [1])
Molecular analysis
Item
text
C1513380 (UMLS CUI [1])
Item Group
Treatment
C0087111 (UMLS CUI-1)
Item
integer
C0086252 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Red blood cell transfusions
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Dependence on transfusions
Code List
Dependence on transfusions
CL Item
complete (1)
C0205197 (UMLS CUI-1)
(Comment:en)
CL Item
partial (2)
C0728938 (UMLS CUI-1)
(Comment:en)
CL Item
none (3)
C0549184 (UMLS CUI-1)
(Comment:en)
Item
integer
C0086818 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Platelet transfusions
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Total number of erythrocyte transfusions in year 1
Item
integer
C0086252 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
Total number of platelets transfusions the 1st year
Item
integer
C0086818 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
Supportive Care only
Item
Support only
boolean
C0344211 (UMLS CUI [1])
Item
integer
C0079490 (UMLS CUI [1])
Hematopoietic growth factors
Code List
Hematopoietic growth factors
CL Item
Epo only (1)
C0014822 (UMLS CUI-1)
(Comment:en)
CL Item
G-CSF only (2)
C0079459 (UMLS CUI-1)
(Comment:en)
CL Item
Combination Epo + G-CSF (3)
C0014822 (UMLS CUI-1)
C0079459 (UMLS CUI-2)
(Comment:en)
CL Item
Other combination (4)
C0013218 (UMLS CUI-1)
C0205394 (UMLS CUI-2)
(Comment:en)
Item
integer
C3653709 (UMLS CUI [1,1])
C1963758 (UMLS CUI [1,2])
Anabolic and immunomodulatory agents
Code List
Anabolic and immunomodulatory agents
CL Item
Danocrine (1)
(Comment:el)
C0813502 (UMLS CUI-1)
(Comment:en)
CL Item
Corticoids (2)
(Comment:el)
C2825233 (UMLS CUI-1)
(Comment:en)
CL Item
Interferon (3)
(Comment:el)
C3652465 (UMLS CUI-1)
(Comment:en)
CL Item
Ciclosporin (4)
(Comment:el)
C0010592 (UMLS CUI-1)
(Comment:en)
CL Item
Antithymocyte / antilymphocytic serum (5)
(Comment:el)
C0003442 (UMLS CUI-1)
C3826731 (UMLS CUI-2)
(Comment:en)
Other non-chemotherapeutic agents
Code List
Other non-chemotherapeutic agents
CL Item
ATRA, another retinoid (1)
C0040845 (UMLS CUI-1)
(Comment:en)
CL Item
Vitamin D and derivatives (2)
C3653327 (UMLS CUI-1)
(Comment:en)
CL Item
Amifostine (3)
C0015020 (UMLS CUI-1)
(Comment:en)
CL Item
Thalidomide-Thalidomide Derivatives (4)
C0039736 (UMLS CUI-1)
(Comment:en)
CL Item
Pentoxifylline (5)
C0030899 (UMLS CUI-1)
(Comment:en)
CL Item
Leonalidomide (6)
C1135145 (UMLS CUI-1)
(Comment:en)
Item Group
Follow-Up – Progress
C1522577 (UMLS CUI-1)
C1280477 (UMLS CUI-2)
Item
Evolution to leukemia or other aggressive MDS
integer
C1332153 (UMLS CUI [1,1])
C3463824 (UMLS CUI [1,2])
C0001807 (UMLS CUI [1,3])
Family history of clonal haematological disorder
Code List
Evolution to leukemia or other aggressive MDS
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Duration of dysplastic phase
Item
text
C0334044 (UMLS CUI [1,1])
C0449238 (UMLS CUI [1,2])
FAB Type AML
Item
text
C2984084 (UMLS CUI [1,1])
C0023467 (UMLS CUI [1,2])
Aberrant hematological findings
Item
text
C0474523 (UMLS CUI [1,1])
C0443127 (UMLS CUI [1,2])
Aberrant Immunophenotype
Item
text
C0079611 (UMLS CUI [1,1])
C0443127 (UMLS CUI [1,2])
Karyotype aberration
Item
text
C0008625 (UMLS CUI [1])
Molecular aberrations
Item
text
C1513380 (UMLS CUI [1,1])
C0443127 (UMLS CUI [1,2])
Treatment applied to aberrations
Item
text
C0008625 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
Item
integer
C0743221 (UMLS CUI [1,1])
C3853528 (UMLS CUI [1,2])
Dependence on transfusions
Code List
Epicrisis
CL Item
complete (1)
C0205197 (UMLS CUI-1)
(Comment:en)
CL Item
partial (2)
C0728938 (UMLS CUI-1)
(Comment:en)
CL Item
none (3)
C0549184 (UMLS CUI-1)
(Comment:en)
Item
integer
C2939419 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Developed another neoplastic disease
CL Item
no (1)
(Comment:el)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
yes (2)
(Comment:el)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
(Comment:el)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of last examination / contact
Item
date
C0805839 (UMLS CUI [1])
Date of death
Item
date
C1148348 (UMLS CUI [1])
Cause of death
Item
text
C0007465 (UMLS CUI [1])
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