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Información:
Error:
ID
5182
Descripción
NHL-BFM 2012 Registry. Principal Investigators: Birgit Burkhardt and Wilhelm Woessmann. NHL study group
Palabras clave
Versiones (3)
- 15/5/14 15/5/14 - Martin Dugas
- 1/7/16 1/7/16 -
- 20/9/21 20/9/21 -
Subido en
15 de mayo de 2014
DOI
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Licencia
Creative Commons BY-NC 3.0 Legacy
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NHL-BFM Registry 2012 Signed Informed Consent
Signed Informed Consent
- StudyEvent: SE
Similar models
Signed Informed Consent
- StudyEvent: SE
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de datos
Alias
Item
Participation in the NHL-BFM Registry 2012 (and treatment according to the included treatment recommendations)
integer
Code List
Participation in the NHL-BFM Registry 2012 (and treatment according to the included treatment recommendations)
CL Item
no (1)
CL Item
yes (2)
Item
Consultation of the NHL-BFM center with regard to medical problems / questions
integer
CL Item
no (1)
CL Item
yes (2)
CL Item
no (1)
CL Item
yes (2)
CL Item
no (1)
CL Item
yes (2)
Item
... at the German Children's Cancer Registry (Deutsches Kinderkrebsregister)
integer
CL Item
no (1)
CL Item
yes (2)
Item
... pseudonymized for research projects (see also below)
integer
CL Item
no (1)
CL Item
yes (2)
Item
The patient wants to be contacted and asked for informed consent for each scientific usage
integer
Code List
The patient wants to be contacted and asked for informed consent for each scientific usage
CL Item
no (1)
CL Item
yes (2)
Please give patient's e-mail-address and / or phone number for contact
Item
Please give patient's e-mail-address and / or phone number for contact
text
Item
* genetic aberrations in lymphoma cells and their prognostic impact
integer
CL Item
no (1)
CL Item
yes (2)
Item
* genetic aberrations and polymorhisms in lymphoma cells and their impact on treatment response
integer
Code List
* genetic aberrations and polymorhisms in lymphoma cells and their impact on treatment response
CL Item
no (1)
CL Item
yes (2)
Item
* examination of chromosome 6 deletions with two methods
integer
CL Item
no (1)
CL Item
yes (2)
Item
* frequency and impact of mutations of the genes NOTCH and FBXW7
integer
CL Item
no (1)
CL Item
yes (2)
Item
* prognostic impact of the immunophenotype of the lymphoma cells
integer
CL Item
no (1)
CL Item
yes (2)
Item
* impact of gene ploymorphisms on treatment response and outcome
integer
CL Item
no (1)
CL Item
yes (2)
Item
* quantification of minimal disseminated disease (MDD) with three different methods
integer
CL Item
no (1)
CL Item
yes (2)
Item
* prognostic impact of minimal residual disease (MRD)
integer
CL Item
no (1)
CL Item
yes (2)
Item
* course of anti-ALK-antibody-titers during treatment
integer
CL Item
no (1)
CL Item
yes (2)