ID

5182

Descrizione

NHL-BFM 2012 Registry. Principal Investigators: Birgit Burkhardt and Wilhelm Woessmann. NHL study group

Keywords

versioni (3)
  1. 15/05/14 15/05/14 - Martin Dugas
  2. 01/07/16 01/07/16 -
  3. 20/09/21 20/09/21 -
Caricato su

15 maggio 2014

DOI

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Licenza

Creative Commons BY-NC 3.0 Legacy
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NHL-BFM Registry 2012 Signed Informed Consent

Tedesco Inglese

Signed Informed Consent

1 moduli  
Signed informed consent available for participation in the registry and consultation
Descrizione

Signed informed consent available for participation in the registry and consultation

Participation in the NHL-BFM Registry 2012 (and treatment according to the included treatment recommendations)
Descrizione

Participation in the NHL-BFM Registry 2012 (and treatment according to the included treatment recommendations)

Tipo di dati

integer

Consultation of the NHL-BFM center with regard to medical problems / questions
Descrizione

Consultation of the NHL-BFM center with regard to medical problems / questions

Tipo di dati

integer

Signed informed consent available for data transfer, data storage, and data handling ...
Descrizione

Signed informed consent available for data transfer, data storage, and data handling ...

... in the NHL-BFM Registry 2012
Descrizione

... in the NHL-BFM Registry 2012

Tipo di dati

integer

... at the reference institutes
Descrizione

... at the reference institutes

Tipo di dati

integer

... at the German Children's Cancer Registry (Deutsches Kinderkrebsregister)
Descrizione

... at the German Children's Cancer Registry (Deutsches Kinderkrebsregister)

Tipo di dati

integer

... pseudonymized for research projects (see also below)
Descrizione

... pseudonymized for research projects (see also below)

Tipo di dati

integer

Storage of remaining bio material with contact for each scientific usage
Descrizione

Storage of remaining bio material with contact for each scientific usage

The patient wants to be contacted and asked for informed consent for each scientific usage
Descrizione

The patient wants to be contacted and asked for informed consent for each scientific usage

Tipo di dati

integer

Please give patient's e-mail-address and / or phone number for contact
Descrizione

Please give patient's e-mail-address and / or phone number for contact

Tipo di dati

text

Storage and use of remaining bio material for the following research projects (pseudonymized) for all NHL
Descrizione

Storage and use of remaining bio material for the following research projects (pseudonymized) for all NHL

* genetic aberrations in lymphoma cells and their prognostic impact
Descrizione

* genetic aberrations in lymphoma cells and their prognostic impact

Tipo di dati

integer

* genetic aberrations and polymorhisms in lymphoma cells and their impact on treatment response
Descrizione

* genetic aberrations and polymorhisms in lymphoma cells and their impact on treatment response

Tipo di dati

integer

Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LYMPHOBLASTIC LYMPHOMA
Descrizione

Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LYMPHOBLASTIC LYMPHOMA

* examination of chromosome 6 deletions with two methods
Descrizione

* examination of chromosome 6 deletions with two methods

Tipo di dati

integer

* frequency and impact of mutations of the genes NOTCH and FBXW7
Descrizione

* frequency and impact of mutations of the genes NOTCH and FBXW7

Tipo di dati

integer

* prognostic impact of the immunophenotype of the lymphoma cells
Descrizione

* prognostic impact of the immunophenotype of the lymphoma cells

Tipo di dati

integer

Storage and use of remaining bio material for the following research projects (pseudonymized) FOR MATURE B-CELL LYMPHOMA
Descrizione

Storage and use of remaining bio material for the following research projects (pseudonymized) FOR MATURE B-CELL LYMPHOMA

* impact of gene ploymorphisms on treatment response and outcome
Descrizione

* impact of gene ploymorphisms on treatment response and outcome

Tipo di dati

integer

Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LARGE CELL ANAPLASTIC LYMPHOMA (ALCL)
Descrizione

Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LARGE CELL ANAPLASTIC LYMPHOMA (ALCL)

* quantification of minimal disseminated disease (MDD) with three different methods
Descrizione

* quantification of minimal disseminated disease (MDD) with three different methods

Tipo di dati

integer

* prognostic impact of minimal residual disease (MRD)
Descrizione

* prognostic impact of minimal residual disease (MRD)

Tipo di dati

integer

* course of anti-ALK-antibody-titers during treatment
Descrizione

* course of anti-ALK-antibody-titers during treatment

Tipo di dati

integer

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Similar models

Signed Informed Consent

1 moduli
Name
genere
Description | Question | Decode (Coded Value)
Tipo di dati
Alias
Item
Participation in the NHL-BFM Registry 2012 (and treatment according to the included treatment recommendations)
integer
NOYES
Code List
Participation in the NHL-BFM Registry 2012 (and treatment according to the included treatment recommendations)
CL Item
no (1)
CL Item
yes (2)
Item
Consultation of the NHL-BFM center with regard to medical problems / questions
integer
NOYES
Code List
Consultation of the NHL-BFM center with regard to medical problems / questions
CL Item
no (1)
CL Item
yes (2)
Item
... in the NHL-BFM Registry 2012
integer
NOYES
Code List
... in the NHL-BFM Registry 2012
CL Item
no (1)
CL Item
yes (2)
Item
... at the reference institutes
integer
NOYES
Code List
... at the reference institutes
CL Item
no (1)
CL Item
yes (2)
Item
... at the German Children's Cancer Registry (Deutsches Kinderkrebsregister)
integer
NOYES
Code List
... at the German Children's Cancer Registry (Deutsches Kinderkrebsregister)
CL Item
no (1)
CL Item
yes (2)
Item
... pseudonymized for research projects (see also below)
integer
NOYES
Code List
... pseudonymized for research projects (see also below)
CL Item
no (1)
CL Item
yes (2)
Item
The patient wants to be contacted and asked for informed consent for each scientific usage
integer
NOYES
Code List
The patient wants to be contacted and asked for informed consent for each scientific usage
CL Item
no (1)
CL Item
yes (2)
Please give patient's e-mail-address and / or phone number for contact
Item
Please give patient's e-mail-address and / or phone number for contact
text
Item
* genetic aberrations in lymphoma cells and their prognostic impact
integer
NOYES
Code List
* genetic aberrations in lymphoma cells and their prognostic impact
CL Item
no (1)
CL Item
yes (2)
Item
* genetic aberrations and polymorhisms in lymphoma cells and their impact on treatment response
integer
NOYES
Code List
* genetic aberrations and polymorhisms in lymphoma cells and their impact on treatment response
CL Item
no (1)
CL Item
yes (2)
Item
* examination of chromosome 6 deletions with two methods
integer
NOYES
Code List
* examination of chromosome 6 deletions with two methods
CL Item
no (1)
CL Item
yes (2)
Item
* frequency and impact of mutations of the genes NOTCH and FBXW7
integer
NOYES
Code List
* frequency and impact of mutations of the genes NOTCH and FBXW7
CL Item
no (1)
CL Item
yes (2)
Item
* prognostic impact of the immunophenotype of the lymphoma cells
integer
NOYES
Code List
* prognostic impact of the immunophenotype of the lymphoma cells
CL Item
no (1)
CL Item
yes (2)
Item
* impact of gene ploymorphisms on treatment response and outcome
integer
NOYES
Code List
* impact of gene ploymorphisms on treatment response and outcome
CL Item
no (1)
CL Item
yes (2)
Item
* quantification of minimal disseminated disease (MDD) with three different methods
integer
NOYES
Code List
* quantification of minimal disseminated disease (MDD) with three different methods
CL Item
no (1)
CL Item
yes (2)
Item
* prognostic impact of minimal residual disease (MRD)
integer
NOYES
Code List
* prognostic impact of minimal residual disease (MRD)
CL Item
no (1)
CL Item
yes (2)
Item
* course of anti-ALK-antibody-titers during treatment
integer
NOYES
Code List
* course of anti-ALK-antibody-titers during treatment
CL Item
no (1)
CL Item
yes (2)
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