ID
5182
Description
NHL-BFM 2012 Registry. Principal Investigators: Birgit Burkhardt and Wilhelm Woessmann. NHL study group
Keywords
Versions (3)
- 5/15/14 5/15/14 - Martin Dugas
- 7/1/16 7/1/16 -
- 9/20/21 9/20/21 -
Uploaded on
May 15, 2014
DOI
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License
Creative Commons BY-NC 3.0 Legacy
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NHL-BFM Registry 2012 Signed Informed Consent
Signed Informed Consent
- StudyEvent: SE
Description
Signed informed consent available for data transfer, data storage, and data handling ...
Description
... in the NHL-BFM Registry 2012
Data type
integer
Description
... at the reference institutes
Data type
integer
Description
... at the German Children's Cancer Registry (Deutsches Kinderkrebsregister)
Data type
integer
Description
... pseudonymized for research projects (see also below)
Data type
integer
Description
Storage of remaining bio material with contact for each scientific usage
Description
The patient wants to be contacted and asked for informed consent for each scientific usage
Data type
integer
Description
Please give patient's e-mail-address and / or phone number for contact
Data type
text
Description
Storage and use of remaining bio material for the following research projects (pseudonymized) for all NHL
Description
* genetic aberrations in lymphoma cells and their prognostic impact
Data type
integer
Description
* genetic aberrations and polymorhisms in lymphoma cells and their impact on treatment response
Data type
integer
Description
Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LYMPHOBLASTIC LYMPHOMA
Description
* examination of chromosome 6 deletions with two methods
Data type
integer
Description
* frequency and impact of mutations of the genes NOTCH and FBXW7
Data type
integer
Description
* prognostic impact of the immunophenotype of the lymphoma cells
Data type
integer
Description
Storage and use of remaining bio material for the following research projects (pseudonymized) FOR MATURE B-CELL LYMPHOMA
Description
Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LARGE CELL ANAPLASTIC LYMPHOMA (ALCL)
Description
* quantification of minimal disseminated disease (MDD) with three different methods
Data type
integer
Description
* prognostic impact of minimal residual disease (MRD)
Data type
integer
Description
* course of anti-ALK-antibody-titers during treatment
Data type
integer
Similar models
Signed Informed Consent
- StudyEvent: SE